TY - JOUR
T1 - Traversing the Aging Research and Health Equity Divide
T2 - Toward Intersectional Frameworks of Research Justice and Participation
AU - Gilmore-Bykovskyi, Andrea
AU - Croff, Raina
AU - Glover, Crystal M.
AU - Jackson, Jonathan D.
AU - Resendez, Jason
AU - Perez, Adriana
AU - Zuelsdorff, Megan
AU - Green-Harris, Gina
AU - Manly, Jennifer J.
N1 - Publisher Copyright:
© 2021 The Author(s) 2021
PY - 2022/6/1
Y1 - 2022/6/1
N2 - Meaningful reductions in racial and ethnic inequities in chronic diseases of aging remain unlikely without major advancements in the inclusion of minoritized populations in aging research. While sparse, studies investigating research participation disparities have predominantly focused on individual-level factors and behavioral change, overlooking the influence of study design, structural factors, and social determinants of health on participation. This is also reflected in conventional practices that consistently fail to address established participation barriers, such as study requirements that impose financial, transportation, linguistic, and/or logistical barriers that disproportionately burden participants belonging to minoritized populations. These shortcomings not only risk exacerbating distrust toward research and researchers, but also introduce significant selection biases, diminishing our ability to detect differential mechanisms of risk, resilience, and response to interventions across subpopulations. This forum article examines the intersecting factors that drive both health inequities in aging and disparate participation in aging research among minoritized populations. Using an intersectional, social justice, and emancipatory lens, we characterize the role of social determinants, historical contexts, and contemporaneous structures in shaping research accessibility and inclusion. We also introduce frameworks to accelerate transformative theoretical approaches to fostering equitable inclusion of minoritized populations in aging research.
AB - Meaningful reductions in racial and ethnic inequities in chronic diseases of aging remain unlikely without major advancements in the inclusion of minoritized populations in aging research. While sparse, studies investigating research participation disparities have predominantly focused on individual-level factors and behavioral change, overlooking the influence of study design, structural factors, and social determinants of health on participation. This is also reflected in conventional practices that consistently fail to address established participation barriers, such as study requirements that impose financial, transportation, linguistic, and/or logistical barriers that disproportionately burden participants belonging to minoritized populations. These shortcomings not only risk exacerbating distrust toward research and researchers, but also introduce significant selection biases, diminishing our ability to detect differential mechanisms of risk, resilience, and response to interventions across subpopulations. This forum article examines the intersecting factors that drive both health inequities in aging and disparate participation in aging research among minoritized populations. Using an intersectional, social justice, and emancipatory lens, we characterize the role of social determinants, historical contexts, and contemporaneous structures in shaping research accessibility and inclusion. We also introduce frameworks to accelerate transformative theoretical approaches to fostering equitable inclusion of minoritized populations in aging research.
KW - Chronic illness
KW - Disparities (health, racial)
KW - Diversity and ethnicity
KW - Research participation
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UR - http://www.scopus.com/inward/citedby.url?scp=85131220042&partnerID=8YFLogxK
U2 - 10.1093/geront/gnab107
DO - 10.1093/geront/gnab107
M3 - Article
C2 - 34324633
AN - SCOPUS:85131220042
SN - 0016-9013
VL - 62
SP - 711
EP - 720
JO - The Gerontologist
JF - The Gerontologist
IS - 5
ER -