@article{46a8364bb3f54d77bfba3331cff75ff6,
title = "Supporting family caregivers of Veterans: Participant perceptions of a federally-mandated caregiver support program",
abstract = "Objectives: To understand patients{\textquoteright} and caregivers{\textquoteright} experiences with and perceptions of a federally-mandated program within the Department of Veterans Affairs (VA) that provides educational and monetary support to family caregivers of post-9/11 Veterans. Methods: Twenty-six Veterans and their family caregivers were recruited to participate in individual and dyadic interviews. Interviews lasted between 60 and 90 min and took place between August 2016 and July 2018 in Oregon and Louisiana. Interviews were recorded, transcribed and coded by multiple team members. Recurrent themes and categories were identified through close examination of coded text and comparison within and across transcripts. Results: Three main themes emerged in the data: 1) appreciation of the caregiver program for validating and compensating family caregiver work; 2) perception that some caregiving activities are less visible, and thus go unrecognized and uncompensated; 3) concern about loss of benefits. Conclusions: Implications and policy recommendations for programs to support family caregivers, both within the VA and in the context of the broader national movement to support family caregivers, are discussed.",
keywords = "Disability, Family caregiving, Qualitative, Veterans",
author = "Wyse, {Jessica J.} and Ono, {Sarah S.} and Margaret Kabat and Gala True",
note = "Funding Information: Dr. Wyse{\textquoteright}s time was supported by grant number K12HS026370 from the Agency for Healthcare Research and Quality and resources from the VA Health Services Research and Development-funded Center to Improve Veteran Involvement in Care at the VA Portland Health Care System ( CIN 13-404 ). Dr. True and Dr. Ono were supported by award number IIR 14-399 from the Veterans Health Administration, Health Services Research & Development. No author reports having any potential conflict of interest with this study. The content is solely the responsibility of the authors and does not necessarily represent the official views of the Agency for Healthcare Research and Quality nor the Department of Veterans Affairs. Funding Information: Dr. Wyse's time was supported by grant number K12HS026370 from the Agency for Healthcare Research and Quality and resources from the VA Health Services Research and Development-funded Center to Improve Veteran Involvement in Care at the VA Portland Health Care System (CIN 13-404). Dr. True and Dr. Ono were supported by award number IIR 14-399 from the Veterans Health Administration, Health Services Research & Development. No author reports having any potential conflict of interest with this study. The content is solely the responsibility of the authors and does not necessarily represent the official views of the Agency for Healthcare Research and Quality nor the Department of Veterans Affairs. Publisher Copyright: {\textcopyright} 2020 Copyright: Copyright 2020 Elsevier B.V., All rights reserved.",
year = "2020",
month = sep,
doi = "10.1016/j.hjdsi.2020.100441",
language = "English (US)",
volume = "8",
journal = "Healthcare",
issn = "2213-0764",
publisher = "Elsevier BV",
number = "3",
}