Shared decision-making in dementia

A review of patient and family carer involvement

Lyndsey Miller, Carol J. Whitlatch, Karen Lyons

Research output: Contribution to journalArticle

52 Citations (Scopus)

Abstract

This paper reviews empirical findings concerning the decision-making process of persons with dementia and their family carers, with a particular focus on the extent and determinants of involvement of persons with dementia in the decision-making process. To be included in this review, studies needed to be published in peer-reviewed journals between 1999 and 2014, report empirical data from participants with dementia and/or their family carers, and pertain to the involvement of persons with dementia and their family carers in decisions about everyday care, medical care and treatment, or long-term care. A total of 36 studies were included. Results indicated that not all persons with dementia are excluded from participating in the decision-making process, but there is a broad spectrum of what constitutes shared decision-making in dementia. Studies concerning the determinants of shared decision-making mostly focused on non-modifiable factors. Future research is needed to better promote shared decision-making among persons with dementia and their family carers.

Original languageEnglish (US)
Pages (from-to)1141-1157
Number of pages17
JournalDementia
Volume15
Issue number5
DOIs
StatePublished - Sep 1 2016

Fingerprint

dementia
decision making
human being
decision-making process
determinants
Decision Making
Dementia
Carers
physician's care
medical care
Person
Decision-making Process

Keywords

  • care values
  • caregiving
  • decision-making
  • dementia
  • personhood

ASJC Scopus subject areas

  • History
  • Social Sciences(all)
  • Sociology and Political Science

Cite this

Shared decision-making in dementia : A review of patient and family carer involvement. / Miller, Lyndsey; Whitlatch, Carol J.; Lyons, Karen.

In: Dementia, Vol. 15, No. 5, 01.09.2016, p. 1141-1157.

Research output: Contribution to journalArticle

Miller, Lyndsey ; Whitlatch, Carol J. ; Lyons, Karen. / Shared decision-making in dementia : A review of patient and family carer involvement. In: Dementia. 2016 ; Vol. 15, No. 5. pp. 1141-1157.
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