TY - JOUR
T1 - Response Shift Theory
T2 - Important Implications for Measuring Quality of Life in People With Disability
AU - Schwartz, Carolyn E.
AU - Andresen, Elena M.
AU - Nosek, Margaret A.
AU - Krahn, Gloria L.
N1 - Funding Information:
Supported in part by the National Institute of Disability and Rehabilitation Research (grant no. H133 B040034) and the Department of Veterans Affairs Medical Center, Gainesville, FL.
PY - 2007/4
Y1 - 2007/4
N2 - Schwartz CE, Andresen EM, Nosek MA, Krahn GL, and the RRTC Expert Panel on Health Status Management. Response shift theory: important implications for measuring quality of life in people with disability. Measurement of health-related quality of life (HRQOL) in people with disability can be problematic. Ambiguous or paradoxical findings can occur because of differences among people or changes within people regarding internal standards, values, or conceptualization of HRQOL. These "response shifts" can affect standard psychometric indices, such as reliability and validity. Attending to appraisal processes and response shift theory can inform development of HRQOL measures for people with disability that do not confound function and health and that consider important causal indicators such as environment. By design, most HRQOL measures equate function with health, necessarily leading to a lower measured HRQOL in people with functional impairments regardless of their level of self-perceived health. In this article, we present theoretical and conceptual distinctions building on response shift theory and other current developments in HRQOL research. We then submit a set of suggested directions for future measurement development in populations with disabilities that consider these distinctions and extend their use in future measurement developments.
AB - Schwartz CE, Andresen EM, Nosek MA, Krahn GL, and the RRTC Expert Panel on Health Status Management. Response shift theory: important implications for measuring quality of life in people with disability. Measurement of health-related quality of life (HRQOL) in people with disability can be problematic. Ambiguous or paradoxical findings can occur because of differences among people or changes within people regarding internal standards, values, or conceptualization of HRQOL. These "response shifts" can affect standard psychometric indices, such as reliability and validity. Attending to appraisal processes and response shift theory can inform development of HRQOL measures for people with disability that do not confound function and health and that consider important causal indicators such as environment. By design, most HRQOL measures equate function with health, necessarily leading to a lower measured HRQOL in people with functional impairments regardless of their level of self-perceived health. In this article, we present theoretical and conceptual distinctions building on response shift theory and other current developments in HRQOL research. We then submit a set of suggested directions for future measurement development in populations with disabilities that consider these distinctions and extend their use in future measurement developments.
KW - Disabled persons
KW - Psychometrics
KW - Quality of life
KW - Rehabilitation
UR - http://www.scopus.com/inward/record.url?scp=33947583435&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=33947583435&partnerID=8YFLogxK
U2 - 10.1016/j.apmr.2006.12.032
DO - 10.1016/j.apmr.2006.12.032
M3 - Article
C2 - 17398257
AN - SCOPUS:33947583435
SN - 0003-9993
VL - 88
SP - 529
EP - 536
JO - Archives of Physical Medicine and Rehabilitation
JF - Archives of Physical Medicine and Rehabilitation
IS - 4
ER -