TY - JOUR
T1 - Health-related quality of life outcomes measures
AU - Andresen, Elena M.
AU - Meyers, Allan R.
N1 - Funding Information:
Supported, in part, by the Centers for Disease Control and Prevention (CDC) through the Saint Louis University Prevention Research Center (grant no. U48/CCU710807), the American Association of Spinal Cord Injury Psychologists and Social Workers, by a cooperative agreement between the Disabilities Prevention Program (now, Office on Disability and Health), CDC, and the Department of Public Health, Commonwealth of Massachusetts (contract no. U59/CCU103370), by the National Institute on Disability and Rehabilitation Research, Office of Special Education and Rehabilitation Services, US Department of Education (grants no. H13360037, H133N50014), by the Center for Health Economics, Outcomes, and Quality Research, Bedford (MA) Veterans Affairs Medical Center, and by the Department of Health Services of Boston University School of Public Health.
PY - 2000
Y1 - 2000
N2 - Objective: To review critically the features of measures of generic health-related quality of life (HRQOL) for disability outcomes research. Data Sources: A search of electronic databases, summary reviews, books, and government documents was performed. Comment and experiences from participants of a conference on outcomes research were also incorporated. Study Selection: English language literature from scientists from a broad range of disciplines and research settings, including medicine, nursing, social science, and public health, and health services research and practice. Data Extraction: A critical review of measures that have been or might be used to measure disability outcomes. Data Synthesis: Commonly used generic measures of HRQOL can be applied to disability outcomes research with some caveats. Three common tools are the Medical Outcomes Study Short-Form Health Survey (SF-36), Sickness Impact Profile (SIP), and Quality of Well-Being (QWB) scale. The SF-36 and SIP have been used with some success in research with people with disability. The QWB scale has been used less frequently. Conclusion: Most studies using generic HRQOL tools are of groups with specific impairments rather than heterogeneous groups of people with disability. None of the tools appears to measure HRQOL without some potential biases (eg, inappropriate wording) for people with disability, but more specific testing of these problems is needed. Also needed are studies to determine whether these tools can measure meaningful longitudinal changes. (C) 2000 by the American Congress of Rehabilitation Medicine.
AB - Objective: To review critically the features of measures of generic health-related quality of life (HRQOL) for disability outcomes research. Data Sources: A search of electronic databases, summary reviews, books, and government documents was performed. Comment and experiences from participants of a conference on outcomes research were also incorporated. Study Selection: English language literature from scientists from a broad range of disciplines and research settings, including medicine, nursing, social science, and public health, and health services research and practice. Data Extraction: A critical review of measures that have been or might be used to measure disability outcomes. Data Synthesis: Commonly used generic measures of HRQOL can be applied to disability outcomes research with some caveats. Three common tools are the Medical Outcomes Study Short-Form Health Survey (SF-36), Sickness Impact Profile (SIP), and Quality of Well-Being (QWB) scale. The SF-36 and SIP have been used with some success in research with people with disability. The QWB scale has been used less frequently. Conclusion: Most studies using generic HRQOL tools are of groups with specific impairments rather than heterogeneous groups of people with disability. None of the tools appears to measure HRQOL without some potential biases (eg, inappropriate wording) for people with disability, but more specific testing of these problems is needed. Also needed are studies to determine whether these tools can measure meaningful longitudinal changes. (C) 2000 by the American Congress of Rehabilitation Medicine.
KW - Disabled persons
KW - Outcome assessment (health care)
KW - Rehabilitation
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U2 - 10.1053/apmr.2000.20621
DO - 10.1053/apmr.2000.20621
M3 - Article
C2 - 11128902
AN - SCOPUS:0033635928
SN - 0003-9993
VL - 81
SP - S30-S45
JO - Archives of Physical Medicine and Rehabilitation
JF - Archives of Physical Medicine and Rehabilitation
IS - 12 SUPPL. 2
ER -