TY - JOUR
T1 - Found in translation
T2 - Decoding local understandings of genetics and heredity in a Yup'ik Eskimo community
AU - West, Kathleen M.
AU - Hopkins, Scarlett E.
AU - Hopper, Kim J.
AU - Mohatt, Gerald V.
AU - Boyer, Bert B.
N1 - Funding Information:
The CANHR study is funded by a grant from the National Center for Research Resources at the National Institutes of Health (P20 RR16430, to Dr. Gerald Mohatt). Additional funding was provided by the Department of Biology and Wildlife and the Institute of Arctic Biology, at the University of Alaska Fairbanks. Thanks for contributions to the development of this project and analysis go to the CANHR team, Drs. Kelly Edwards, Jim Allen, Elaine Drew, Heather Wallace, Steven Jacobson, Wylie Burke, Helene Starks, and the students and faculty of the University of Washington Center for Genomics and Healthcare Equality, Summer Seminar, 2007. Thanks to Dr. Phyllis Morrow, and two anonymous reviewers for their insightful comments on drafts of this manuscript. Finally, the authors thank the community field research assistants, translators, consultants, and participants in this study, as well as the community members who have welcomed us into their community and taught us about the Yup’ik way of life. Quyana!
PY - 2013/1
Y1 - 2013/1
N2 - The Center for Alaska Native Health Research is a community-based participatory research center that conducts studies involving genetic research with Yup'ik Eskimo community members in Southwest Alaska, where Yup'ik remains the first language for most residents. Cultural equivalents are needed to communicate results of these studies among all partners and members of the participating communities, since many scientific terms have no direct translation in Yup'ik. To inform that effort, we examined local understandings of genetics and heredity in one community. Here, we report results from back-translated Yup'ik interviews, and identify working genetic concepts shared by participants from interviews and focus groups. We suggest issues involved in, and some potential steps toward, developing a concise, scientifically accurate and culturally relevant term for "genetics" and other health concepts.
AB - The Center for Alaska Native Health Research is a community-based participatory research center that conducts studies involving genetic research with Yup'ik Eskimo community members in Southwest Alaska, where Yup'ik remains the first language for most residents. Cultural equivalents are needed to communicate results of these studies among all partners and members of the participating communities, since many scientific terms have no direct translation in Yup'ik. To inform that effort, we examined local understandings of genetics and heredity in one community. Here, we report results from back-translated Yup'ik interviews, and identify working genetic concepts shared by participants from interviews and focus groups. We suggest issues involved in, and some potential steps toward, developing a concise, scientifically accurate and culturally relevant term for "genetics" and other health concepts.
KW - Center for Alaska Native Health Research
KW - Yup'ik Eskimo
KW - back-translation
KW - community-based participatory research
KW - genetic concepts
KW - public understanding of science
KW - science communication
UR - http://www.scopus.com/inward/record.url?scp=84872291481&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84872291481&partnerID=8YFLogxK
U2 - 10.1177/0963662510397224
DO - 10.1177/0963662510397224
M3 - Article
C2 - 23832886
AN - SCOPUS:84872291481
SN - 0963-6625
VL - 22
SP - 80
EP - 90
JO - Public Understanding of Science
JF - Public Understanding of Science
IS - 1
ER -