TY - JOUR
T1 - Feasibility of an Intervention Study to Support Families When Their Loved One Has Life-sustaining Therapy Withdrawn
AU - Scharf, Barbara
AU - Zhu, Shijun
AU - Tomlin, Sarah
AU - Cheon, Jooyoung
AU - Mooney-Doyle, Kim
AU - Baggs, Judith Gedney
AU - Weigand, Debra
N1 - Publisher Copyright:
Copyright © 2020 by The Hospice and Palliative Nurses Association. All rights reserved.
Copyright:
This record is sourced from MEDLINE/PubMed, a database of the U.S. National Library of Medicine
PY - 2021/2/1
Y1 - 2021/2/1
N2 - This investigation addressed family member perceptions of preparation for withdrawal of life-sustaining treatment in the intensive care unit. These families are at a high risk for psychosocial and physical sequelae. The quantitative results of this mixed methods study are reported. A control group received usual care and an educational booklet component of the intervention. The experimental group received the above plus exposure to comfort cart items and additional psychological support. Twenty-eight family members enrolled over a 13-month period. Sixty-one percent (10 intervention, 7 control) completed the follow-up. Fourteen family members (82%) recalled the booklet. Some family members reported moderate to severe depression (12.5%), anxiety (12.5%), and stress (12.6%). Satisfaction with care (83.7%-85.2%) and family member well-being (44.1) were within the norm. Short Form-36 physical component score was higher than the norm, and the mental component score was lower than the norm. This study demonstrated feasibility and acceptability of the interventions and follow-up questionnaires when families make the difficult decision to withdraw treatment. Strategies are suggested to strengthen statistical power.
AB - This investigation addressed family member perceptions of preparation for withdrawal of life-sustaining treatment in the intensive care unit. These families are at a high risk for psychosocial and physical sequelae. The quantitative results of this mixed methods study are reported. A control group received usual care and an educational booklet component of the intervention. The experimental group received the above plus exposure to comfort cart items and additional psychological support. Twenty-eight family members enrolled over a 13-month period. Sixty-one percent (10 intervention, 7 control) completed the follow-up. Fourteen family members (82%) recalled the booklet. Some family members reported moderate to severe depression (12.5%), anxiety (12.5%), and stress (12.6%). Satisfaction with care (83.7%-85.2%) and family member well-being (44.1) were within the norm. Short Form-36 physical component score was higher than the norm, and the mental component score was lower than the norm. This study demonstrated feasibility and acceptability of the interventions and follow-up questionnaires when families make the difficult decision to withdraw treatment. Strategies are suggested to strengthen statistical power.
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U2 - 10.1097/NJH.0000000000000717
DO - 10.1097/NJH.0000000000000717
M3 - Article
C2 - 33284144
AN - SCOPUS:85099428964
VL - 23
SP - 89
EP - 97
JO - Journal of Hospice and Palliative Nursing
JF - Journal of Hospice and Palliative Nursing
SN - 1522-2179
IS - 1
ER -