End-of-Life care and treatment preferences among adults with congenital heart disease

Meaghan K. Ferguson, Adrienne Kovacs

Research output: Chapter in Book/Report/Conference proceedingChapter

Abstract

Due to significant developments in cardiac surgery, pediatric cardiology, and medical technologies, individuals born with congenital heart disease (CHD) are now living longer than ever before. Approximately 85 % of infants born with CHD now survive to reach adulthood, which is in stark contrast to the much lower survival rates of only a few decades ago. Experts estimated that there were approximately 800,000 adults living with CHD in the United States in 2000. Despite notable medical advances resulting in increased life expectancy, the long-term prognosis for this population remains of concern. Adult patients with defects of moderate or great complexity remains at risk of premature death from progressive heart failure or arrhythmias and/or a prolonged period of progressive disease before death. For many patients, cardiac surgeries are considered palliative measures rather than curative ones because they do not modify the basic anatomic or physiologic disturbance. For these reasons, as a group, patients would likely benefit from advance care planning (ACP) and palliative or end-of-life (EOL) care similar to that which is recommended for other chronically ill patients, such as those with cancer or heart failure associated with acquired heart disease.

Original languageEnglish (US)
Title of host publicationClinical Psychology and Congenital Heart Disease
Subtitle of host publicationLifelong Psychological Aspects and Interventions
PublisherSpringer-Verlag Milan
Pages119-129
Number of pages11
ISBN (Electronic)9788847056992
ISBN (Print)9788847056985
DOIs
StatePublished - Jan 1 2015
Externally publishedYes

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Terminal Care
Heart Diseases
Thoracic Surgery
Heart Failure
Advance Care Planning
Premature Mortality
Therapeutics
Life Expectancy
Cardiology
Cardiac Arrhythmias
Chronic Disease
Survival Rate
Pediatrics
Technology
Population
Neoplasms

ASJC Scopus subject areas

  • Psychology(all)
  • Medicine(all)

Cite this

Ferguson, M. K., & Kovacs, A. (2015). End-of-Life care and treatment preferences among adults with congenital heart disease. In Clinical Psychology and Congenital Heart Disease: Lifelong Psychological Aspects and Interventions (pp. 119-129). Springer-Verlag Milan. https://doi.org/10.1007/978-88-470-5699-2_8

End-of-Life care and treatment preferences among adults with congenital heart disease. / Ferguson, Meaghan K.; Kovacs, Adrienne.

Clinical Psychology and Congenital Heart Disease: Lifelong Psychological Aspects and Interventions. Springer-Verlag Milan, 2015. p. 119-129.

Research output: Chapter in Book/Report/Conference proceedingChapter

Ferguson, MK & Kovacs, A 2015, End-of-Life care and treatment preferences among adults with congenital heart disease. in Clinical Psychology and Congenital Heart Disease: Lifelong Psychological Aspects and Interventions. Springer-Verlag Milan, pp. 119-129. https://doi.org/10.1007/978-88-470-5699-2_8
Ferguson MK, Kovacs A. End-of-Life care and treatment preferences among adults with congenital heart disease. In Clinical Psychology and Congenital Heart Disease: Lifelong Psychological Aspects and Interventions. Springer-Verlag Milan. 2015. p. 119-129 https://doi.org/10.1007/978-88-470-5699-2_8
Ferguson, Meaghan K. ; Kovacs, Adrienne. / End-of-Life care and treatment preferences among adults with congenital heart disease. Clinical Psychology and Congenital Heart Disease: Lifelong Psychological Aspects and Interventions. Springer-Verlag Milan, 2015. pp. 119-129
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