Development and testing of the Parkinson's disease quality of life scale

Mickie Welsh, Michael P. Mcdermott, Robert G. Holloway, Sandy Plumb, Ronald Pfeiffer, Jean Hubble, E. Rost-Ruffner, D. McGuire, B. Fussell, L. Shulman, P. Gray, D. Amyot, C. Reider, M. Brewer, D. Fontaine, P. Lewis, M. Lannon, C. Wood, S. Rast, I. GardnerJ. Dobson

Research output: Contribution to journalArticle

88 Citations (Scopus)

Abstract

We report on the development and results of preliminary psychometric testing of a disease specific health-related quality of life (HRQoL) scale intended for use in individuals diagnosed with idiopathic Parkinson's disease (PD). Results from an initial qualitative study provided content for item development and scale construction of the Parkinson's disease quality of life scale (PDQUALIF). The 33-item instrument includes seven domains: social/role function, self-image/sexuality, sleep, outlook, physical function, independence, and urinary function, plus one item of Global HRQoL. Initial psychometric testing of the instrument was conducted in 233 outpatient clinic attendees with physician-confirmed idiopathic PD. Factor structure, reliability and validity of the scale have been established in this cross-sectional study. Continuing development of the PDQUALIF will be directed at enhancing the psychometric properties, establishing responsiveness and determining appropriateness in culturally diverse samples.

Original languageEnglish (US)
Pages (from-to)637-645
Number of pages9
JournalMovement Disorders
Volume18
Issue number6
DOIs
StatePublished - Jun 1 2003
Externally publishedYes

Fingerprint

Parkinson Disease
Quality of Life
Psychometrics
Sexuality
Ambulatory Care Facilities
Reproducibility of Results
Sleep
Cross-Sectional Studies
Physicians

Keywords

  • Health-related quality of life
  • Parkinson's disease

ASJC Scopus subject areas

  • Clinical Neurology
  • Neuroscience(all)

Cite this

Welsh, M., Mcdermott, M. P., Holloway, R. G., Plumb, S., Pfeiffer, R., Hubble, J., ... Dobson, J. (2003). Development and testing of the Parkinson's disease quality of life scale. Movement Disorders, 18(6), 637-645. https://doi.org/10.1002/mds.10424

Development and testing of the Parkinson's disease quality of life scale. / Welsh, Mickie; Mcdermott, Michael P.; Holloway, Robert G.; Plumb, Sandy; Pfeiffer, Ronald; Hubble, Jean; Rost-Ruffner, E.; McGuire, D.; Fussell, B.; Shulman, L.; Gray, P.; Amyot, D.; Reider, C.; Brewer, M.; Fontaine, D.; Lewis, P.; Lannon, M.; Wood, C.; Rast, S.; Gardner, I.; Dobson, J.

In: Movement Disorders, Vol. 18, No. 6, 01.06.2003, p. 637-645.

Research output: Contribution to journalArticle

Welsh, M, Mcdermott, MP, Holloway, RG, Plumb, S, Pfeiffer, R, Hubble, J, Rost-Ruffner, E, McGuire, D, Fussell, B, Shulman, L, Gray, P, Amyot, D, Reider, C, Brewer, M, Fontaine, D, Lewis, P, Lannon, M, Wood, C, Rast, S, Gardner, I & Dobson, J 2003, 'Development and testing of the Parkinson's disease quality of life scale', Movement Disorders, vol. 18, no. 6, pp. 637-645. https://doi.org/10.1002/mds.10424
Welsh M, Mcdermott MP, Holloway RG, Plumb S, Pfeiffer R, Hubble J et al. Development and testing of the Parkinson's disease quality of life scale. Movement Disorders. 2003 Jun 1;18(6):637-645. https://doi.org/10.1002/mds.10424
Welsh, Mickie ; Mcdermott, Michael P. ; Holloway, Robert G. ; Plumb, Sandy ; Pfeiffer, Ronald ; Hubble, Jean ; Rost-Ruffner, E. ; McGuire, D. ; Fussell, B. ; Shulman, L. ; Gray, P. ; Amyot, D. ; Reider, C. ; Brewer, M. ; Fontaine, D. ; Lewis, P. ; Lannon, M. ; Wood, C. ; Rast, S. ; Gardner, I. ; Dobson, J. / Development and testing of the Parkinson's disease quality of life scale. In: Movement Disorders. 2003 ; Vol. 18, No. 6. pp. 637-645.
@article{c94d243be0e94a959cfe27856d4d22a0,
title = "Development and testing of the Parkinson's disease quality of life scale",
abstract = "We report on the development and results of preliminary psychometric testing of a disease specific health-related quality of life (HRQoL) scale intended for use in individuals diagnosed with idiopathic Parkinson's disease (PD). Results from an initial qualitative study provided content for item development and scale construction of the Parkinson's disease quality of life scale (PDQUALIF). The 33-item instrument includes seven domains: social/role function, self-image/sexuality, sleep, outlook, physical function, independence, and urinary function, plus one item of Global HRQoL. Initial psychometric testing of the instrument was conducted in 233 outpatient clinic attendees with physician-confirmed idiopathic PD. Factor structure, reliability and validity of the scale have been established in this cross-sectional study. Continuing development of the PDQUALIF will be directed at enhancing the psychometric properties, establishing responsiveness and determining appropriateness in culturally diverse samples.",
keywords = "Health-related quality of life, Parkinson's disease",
author = "Mickie Welsh and Mcdermott, {Michael P.} and Holloway, {Robert G.} and Sandy Plumb and Ronald Pfeiffer and Jean Hubble and E. Rost-Ruffner and D. McGuire and B. Fussell and L. Shulman and P. Gray and D. Amyot and C. Reider and M. Brewer and D. Fontaine and P. Lewis and M. Lannon and C. Wood and S. Rast and I. Gardner and J. Dobson",
year = "2003",
month = "6",
day = "1",
doi = "10.1002/mds.10424",
language = "English (US)",
volume = "18",
pages = "637--645",
journal = "Movement Disorders",
issn = "0885-3185",
publisher = "John Wiley and Sons Inc.",
number = "6",

}

TY - JOUR

T1 - Development and testing of the Parkinson's disease quality of life scale

AU - Welsh, Mickie

AU - Mcdermott, Michael P.

AU - Holloway, Robert G.

AU - Plumb, Sandy

AU - Pfeiffer, Ronald

AU - Hubble, Jean

AU - Rost-Ruffner, E.

AU - McGuire, D.

AU - Fussell, B.

AU - Shulman, L.

AU - Gray, P.

AU - Amyot, D.

AU - Reider, C.

AU - Brewer, M.

AU - Fontaine, D.

AU - Lewis, P.

AU - Lannon, M.

AU - Wood, C.

AU - Rast, S.

AU - Gardner, I.

AU - Dobson, J.

PY - 2003/6/1

Y1 - 2003/6/1

N2 - We report on the development and results of preliminary psychometric testing of a disease specific health-related quality of life (HRQoL) scale intended for use in individuals diagnosed with idiopathic Parkinson's disease (PD). Results from an initial qualitative study provided content for item development and scale construction of the Parkinson's disease quality of life scale (PDQUALIF). The 33-item instrument includes seven domains: social/role function, self-image/sexuality, sleep, outlook, physical function, independence, and urinary function, plus one item of Global HRQoL. Initial psychometric testing of the instrument was conducted in 233 outpatient clinic attendees with physician-confirmed idiopathic PD. Factor structure, reliability and validity of the scale have been established in this cross-sectional study. Continuing development of the PDQUALIF will be directed at enhancing the psychometric properties, establishing responsiveness and determining appropriateness in culturally diverse samples.

AB - We report on the development and results of preliminary psychometric testing of a disease specific health-related quality of life (HRQoL) scale intended for use in individuals diagnosed with idiopathic Parkinson's disease (PD). Results from an initial qualitative study provided content for item development and scale construction of the Parkinson's disease quality of life scale (PDQUALIF). The 33-item instrument includes seven domains: social/role function, self-image/sexuality, sleep, outlook, physical function, independence, and urinary function, plus one item of Global HRQoL. Initial psychometric testing of the instrument was conducted in 233 outpatient clinic attendees with physician-confirmed idiopathic PD. Factor structure, reliability and validity of the scale have been established in this cross-sectional study. Continuing development of the PDQUALIF will be directed at enhancing the psychometric properties, establishing responsiveness and determining appropriateness in culturally diverse samples.

KW - Health-related quality of life

KW - Parkinson's disease

UR - http://www.scopus.com/inward/record.url?scp=0038760847&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=0038760847&partnerID=8YFLogxK

U2 - 10.1002/mds.10424

DO - 10.1002/mds.10424

M3 - Article

C2 - 12784266

AN - SCOPUS:0038760847

VL - 18

SP - 637

EP - 645

JO - Movement Disorders

JF - Movement Disorders

SN - 0885-3185

IS - 6

ER -