Development and testing of the Parkinson's disease quality of life scale

Mickie Welsh, Michael P. Mcdermott, Robert G. Holloway, Sandy Plumb, Ronald Pfeiffer, Jean Hubble, E. Rost-Ruffner, D. McGuire, B. Fussell, L. Shulman, P. Gray, D. Amyot, C. Reider, M. Brewer, D. Fontaine, P. Lewis, M. Lannon, C. Wood, S. Rast, I. GardnerJ. Dobson

Research output: Contribution to journalArticle

90 Scopus citations

Abstract

We report on the development and results of preliminary psychometric testing of a disease specific health-related quality of life (HRQoL) scale intended for use in individuals diagnosed with idiopathic Parkinson's disease (PD). Results from an initial qualitative study provided content for item development and scale construction of the Parkinson's disease quality of life scale (PDQUALIF). The 33-item instrument includes seven domains: social/role function, self-image/sexuality, sleep, outlook, physical function, independence, and urinary function, plus one item of Global HRQoL. Initial psychometric testing of the instrument was conducted in 233 outpatient clinic attendees with physician-confirmed idiopathic PD. Factor structure, reliability and validity of the scale have been established in this cross-sectional study. Continuing development of the PDQUALIF will be directed at enhancing the psychometric properties, establishing responsiveness and determining appropriateness in culturally diverse samples.

Original languageEnglish (US)
Pages (from-to)637-645
Number of pages9
JournalMovement Disorders
Volume18
Issue number6
DOIs
StatePublished - Jun 1 2003

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Keywords

  • Health-related quality of life
  • Parkinson's disease

ASJC Scopus subject areas

  • Neurology
  • Clinical Neurology

Cite this

Welsh, M., Mcdermott, M. P., Holloway, R. G., Plumb, S., Pfeiffer, R., Hubble, J., Rost-Ruffner, E., McGuire, D., Fussell, B., Shulman, L., Gray, P., Amyot, D., Reider, C., Brewer, M., Fontaine, D., Lewis, P., Lannon, M., Wood, C., Rast, S., ... Dobson, J. (2003). Development and testing of the Parkinson's disease quality of life scale. Movement Disorders, 18(6), 637-645. https://doi.org/10.1002/mds.10424