Comparison of perceptions of oral health-related quality of life in adolescents affected with ectodermal dysplasias relative to caregivers

Richie Kohli, Steven Levy, Colleen M. Kummet, Deborah V. Dawson, Clark M. Stanford

Research output: Contribution to journalArticle

12 Scopus citations

Abstract

The objective of this study was to assess the perceived oral health-related quality of life (OHQoL) of adolescents affected with one of the ectodermal dysplasias (EDs). Data were collected from 2003 to 2007 in a cross-sectional study of a convenience sample of individuals affected by ED (n = 35) using the Child Perceptions Questionnaire (CPQ11-14) for children and the Parent-Caregiver Perceptions Questionnaire for their caregivers. The main findings of this study were that individuals who were affected with ED in the older age group (15- to 19-year-olds) perceived more functional problems than younger individuals (11- to 14-year-olds) (p=.04). Females with ED (n = 13) perceived more emotional problems than males (n = 22; p=.01). Although caregivers tended to report slightly higher OHQoL scores (indicating worse OHQoL), no significant differences were observed between children's and parents' total OHQoL and individual domains' median scores (p >.05). Thus, the perceptions of oral health and well-being may vary by age and gender for children who have ED. Caution is warranted concerning using parents as proxies for their children when assessing the child's OHQoL.

Original languageEnglish (US)
Pages (from-to)88-94
Number of pages7
JournalSpecial Care in Dentistry
Volume31
Issue number3
DOIs
StatePublished - May 1 2011

Keywords

  • children
  • ectodermal dysplasias
  • oral health-related quality of life
  • parents
  • perceptions
  • teenagers

ASJC Scopus subject areas

  • Dentistry(all)

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