Attitudes toward the diagnosis and disclosure of dementia among family caregivers and primary care physicians

Cathleen M. Connell, Linda Boise, John C. Stuckey, Sara B. Holmes, Margaret L. Hudson

Research output: Contribution to journalArticle

91 Citations (Scopus)

Abstract

Purpose: This study examined attitudes of caregivers and physicians toward assessing and diagnosing dementia, with an emphasis on how a diagnosis is disclosed. Design and Methods: Seventeen focus group interviews were conducted with caregivers or physicians from three sites; 52 caregivers participated in nine interviews (three each at the three sites), and 39 physicians participated in eight interviews (three each at two sites; two at one site). Structured interview protocols were used to assess diagnostic disclosure, first reactions, and suggestions for improving the diagnostic process. Results: Caregivers recounted a highly negative emotional response to the disclosure, whereas many physicians reported that families handled the information well. Caregivers expressed a range of preferences for how the diagnosis should have been disclosed, from a direct approach to having the physician ease them into the results. Implications: Whenever possible, physicians should consult with the patient and family at the outset of the diagnostic process to better understand their preferences for diagnostic disclosure. Addressing diagnostic disclosure as part of physician education programs on dementia is recommended.

Original languageEnglish (US)
Pages (from-to)500-507
Number of pages8
JournalGerontologist
Volume44
Issue number4
StatePublished - Aug 2004

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Disclosure
Primary Care Physicians
Caregivers
Dementia
Physicians
Interviews
Family Physicians
Focus Groups
Education

Keywords

  • Alzheimer's disease
  • Disclosure
  • Focus group interviews
  • Qualitative methods

ASJC Scopus subject areas

  • Aging

Cite this

Connell, C. M., Boise, L., Stuckey, J. C., Holmes, S. B., & Hudson, M. L. (2004). Attitudes toward the diagnosis and disclosure of dementia among family caregivers and primary care physicians. Gerontologist, 44(4), 500-507.

Attitudes toward the diagnosis and disclosure of dementia among family caregivers and primary care physicians. / Connell, Cathleen M.; Boise, Linda; Stuckey, John C.; Holmes, Sara B.; Hudson, Margaret L.

In: Gerontologist, Vol. 44, No. 4, 08.2004, p. 500-507.

Research output: Contribution to journalArticle

Connell, CM, Boise, L, Stuckey, JC, Holmes, SB & Hudson, ML 2004, 'Attitudes toward the diagnosis and disclosure of dementia among family caregivers and primary care physicians', Gerontologist, vol. 44, no. 4, pp. 500-507.
Connell CM, Boise L, Stuckey JC, Holmes SB, Hudson ML. Attitudes toward the diagnosis and disclosure of dementia among family caregivers and primary care physicians. Gerontologist. 2004 Aug;44(4):500-507.
Connell, Cathleen M. ; Boise, Linda ; Stuckey, John C. ; Holmes, Sara B. ; Hudson, Margaret L. / Attitudes toward the diagnosis and disclosure of dementia among family caregivers and primary care physicians. In: Gerontologist. 2004 ; Vol. 44, No. 4. pp. 500-507.
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