Attitudes toward prenatal testing and pregnancy termination among a diverse population of parents of children with intellectual disabilities

Miriam Kuppermann, Sanae Nakagawa, Shana Raquel Cohen, Irenka Dominguez-Pareto, Brian Shaffer, Susan D. Holloway

Research output: Contribution to journalArticle

7 Citations (Scopus)

Abstract

Objective: To determine how parents of children with intellectual disabilities view prenatal testing and pregnancy termination for their child's condition. Method: We interviewed 201 English-speaking or Spanish-speaking caregivers of children aged 2 to 10years. Primary outcomes were being disinclined to undergo prenatal testing or pregnancy termination for the child's condition in a future pregnancy. Results: While only 33% of the sample indicated they would not have prenatal testing, 75% were disinclined to terminate their pregnancy if their fetus was affected. In multivariable logistic regression analysis, Asians were significantly less likely than White participants to say they would forego prenatal testing (adjusted odds ratio (aOR)=0.08, 95% confidence interval (CI)=0.01-0.86, p=0.037), while Latinos had lower odds of being disinclined to terminate (aOR=0.27, 95% CI=0.07-0.99, p=0.048). Participants who felt that abortion for their child's condition should not be available were more likely to say they would forego prenatal testing (aOR=5.10, 95% CI=2.09-12.43, p

Original languageEnglish (US)
Pages (from-to)1251-1258
Number of pages8
JournalPrenatal Diagnosis
Volume31
Issue number13
DOIs
StatePublished - Dec 2011

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Disabled Children
Intellectual Disability
Parents
Pregnancy
Odds Ratio
Confidence Intervals
Population
Hispanic Americans
Caregivers
Fetus
Logistic Models
Regression Analysis

Keywords

  • Intellectual disabilities
  • Pregnancy termination
  • Prenatal testing

ASJC Scopus subject areas

  • Genetics(clinical)
  • Obstetrics and Gynecology

Cite this

Attitudes toward prenatal testing and pregnancy termination among a diverse population of parents of children with intellectual disabilities. / Kuppermann, Miriam; Nakagawa, Sanae; Cohen, Shana Raquel; Dominguez-Pareto, Irenka; Shaffer, Brian; Holloway, Susan D.

In: Prenatal Diagnosis, Vol. 31, No. 13, 12.2011, p. 1251-1258.

Research output: Contribution to journalArticle

Kuppermann, Miriam ; Nakagawa, Sanae ; Cohen, Shana Raquel ; Dominguez-Pareto, Irenka ; Shaffer, Brian ; Holloway, Susan D. / Attitudes toward prenatal testing and pregnancy termination among a diverse population of parents of children with intellectual disabilities. In: Prenatal Diagnosis. 2011 ; Vol. 31, No. 13. pp. 1251-1258.
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