A mixed methods study of symptom perception in patients with chronic heart failure

Barbara Riegel, Victoria Vaughan Dickson, Christopher S. Lee, Marguerite Daus, Julia Hill, Elliane Irani, Solim Lee, Joyce W. Wald, Stephen T. Moelter, Lisa Rathman, Megan Streur, Foster Osei Baah, Linda Ruppert, Daniel R. Schwartz, Alfred Bove

Research output: Contribution to journalArticle

  • 2 Citations

Abstract

Background: Early heart failure (HF) symptoms are frequently unrecognized for reasons that are unclear. We explored symptom perception in patients with chronic HF. Methods: We enrolled 36 HF out-patients into a longitudinal sequential explanatory mixed methods study. We used objectively measured thoracic fluid accumulation and daily reports of signs and symptoms to evaluate accuracy of detected changes in fluid retention. Patterns of symptom interpretation and response were explored in telephone interviews conducted every 2 weeks for 3-months. Results: In this sample, 44% had a mismatch between objective and subjective fluid retention; younger persons were more likely to have mismatch. In interviews, two patterns were identified: those able to interpret and respond appropriately to symptoms were higher in decision-making skill and the quality of social support received. Conclusion: Many HF patients were poor at interpreting and managing their symptoms. These results suggest a subgroup of patients to target for intervention.

LanguageEnglish (US)
JournalHeart and Lung: Journal of Acute and Critical Care
DOIs
StateAccepted/In press - Jan 1 2018

Fingerprint

Heart Failure
Interviews
Social Support
Signs and Symptoms
Decision Making
Outpatients
Thorax

Keywords

  • Decision-making
  • Delay
  • Fluid retention
  • Heart failure
  • Mixed methods
  • Self-care
  • Social support
  • Symptom perception

ASJC Scopus subject areas

  • Pulmonary and Respiratory Medicine
  • Critical Care and Intensive Care Medicine
  • Cardiology and Cardiovascular Medicine

Cite this

A mixed methods study of symptom perception in patients with chronic heart failure. / Riegel, Barbara; Dickson, Victoria Vaughan; Lee, Christopher S.; Daus, Marguerite; Hill, Julia; Irani, Elliane; Lee, Solim; Wald, Joyce W.; Moelter, Stephen T.; Rathman, Lisa; Streur, Megan; Baah, Foster Osei; Ruppert, Linda; Schwartz, Daniel R.; Bove, Alfred.

In: Heart and Lung: Journal of Acute and Critical Care, 01.01.2018.

Research output: Contribution to journalArticle

Riegel, B, Dickson, VV, Lee, CS, Daus, M, Hill, J, Irani, E, Lee, S, Wald, JW, Moelter, ST, Rathman, L, Streur, M, Baah, FO, Ruppert, L, Schwartz, DR & Bove, A 2018, 'A mixed methods study of symptom perception in patients with chronic heart failure' Heart and Lung: Journal of Acute and Critical Care. https://doi.org/10.1016/j.hrtlng.2017.11.002
Riegel, Barbara ; Dickson, Victoria Vaughan ; Lee, Christopher S. ; Daus, Marguerite ; Hill, Julia ; Irani, Elliane ; Lee, Solim ; Wald, Joyce W. ; Moelter, Stephen T. ; Rathman, Lisa ; Streur, Megan ; Baah, Foster Osei ; Ruppert, Linda ; Schwartz, Daniel R. ; Bove, Alfred. / A mixed methods study of symptom perception in patients with chronic heart failure. In: Heart and Lung: Journal of Acute and Critical Care. 2018.
@article{5d99f5d0ffef40408d72d30e362fac84,
title = "A mixed methods study of symptom perception in patients with chronic heart failure",
abstract = "Background: Early heart failure (HF) symptoms are frequently unrecognized for reasons that are unclear. We explored symptom perception in patients with chronic HF. Methods: We enrolled 36 HF out-patients into a longitudinal sequential explanatory mixed methods study. We used objectively measured thoracic fluid accumulation and daily reports of signs and symptoms to evaluate accuracy of detected changes in fluid retention. Patterns of symptom interpretation and response were explored in telephone interviews conducted every 2 weeks for 3-months. Results: In this sample, 44{\%} had a mismatch between objective and subjective fluid retention; younger persons were more likely to have mismatch. In interviews, two patterns were identified: those able to interpret and respond appropriately to symptoms were higher in decision-making skill and the quality of social support received. Conclusion: Many HF patients were poor at interpreting and managing their symptoms. These results suggest a subgroup of patients to target for intervention.",
keywords = "Decision-making, Delay, Fluid retention, Heart failure, Mixed methods, Self-care, Social support, Symptom perception",
author = "Barbara Riegel and Dickson, {Victoria Vaughan} and Lee, {Christopher S.} and Marguerite Daus and Julia Hill and Elliane Irani and Solim Lee and Wald, {Joyce W.} and Moelter, {Stephen T.} and Lisa Rathman and Megan Streur and Baah, {Foster Osei} and Linda Ruppert and Schwartz, {Daniel R.} and Alfred Bove",
year = "2018",
month = "1",
day = "1",
doi = "10.1016/j.hrtlng.2017.11.002",
language = "English (US)",
journal = "Heart and Lung: Journal of Acute and Critical Care",
issn = "0147-9563",
publisher = "Mosby Inc.",

}

TY - JOUR

T1 - A mixed methods study of symptom perception in patients with chronic heart failure

AU - Riegel, Barbara

AU - Dickson, Victoria Vaughan

AU - Lee, Christopher S.

AU - Daus, Marguerite

AU - Hill, Julia

AU - Irani, Elliane

AU - Lee, Solim

AU - Wald, Joyce W.

AU - Moelter, Stephen T.

AU - Rathman, Lisa

AU - Streur, Megan

AU - Baah, Foster Osei

AU - Ruppert, Linda

AU - Schwartz, Daniel R.

AU - Bove, Alfred

PY - 2018/1/1

Y1 - 2018/1/1

N2 - Background: Early heart failure (HF) symptoms are frequently unrecognized for reasons that are unclear. We explored symptom perception in patients with chronic HF. Methods: We enrolled 36 HF out-patients into a longitudinal sequential explanatory mixed methods study. We used objectively measured thoracic fluid accumulation and daily reports of signs and symptoms to evaluate accuracy of detected changes in fluid retention. Patterns of symptom interpretation and response were explored in telephone interviews conducted every 2 weeks for 3-months. Results: In this sample, 44% had a mismatch between objective and subjective fluid retention; younger persons were more likely to have mismatch. In interviews, two patterns were identified: those able to interpret and respond appropriately to symptoms were higher in decision-making skill and the quality of social support received. Conclusion: Many HF patients were poor at interpreting and managing their symptoms. These results suggest a subgroup of patients to target for intervention.

AB - Background: Early heart failure (HF) symptoms are frequently unrecognized for reasons that are unclear. We explored symptom perception in patients with chronic HF. Methods: We enrolled 36 HF out-patients into a longitudinal sequential explanatory mixed methods study. We used objectively measured thoracic fluid accumulation and daily reports of signs and symptoms to evaluate accuracy of detected changes in fluid retention. Patterns of symptom interpretation and response were explored in telephone interviews conducted every 2 weeks for 3-months. Results: In this sample, 44% had a mismatch between objective and subjective fluid retention; younger persons were more likely to have mismatch. In interviews, two patterns were identified: those able to interpret and respond appropriately to symptoms were higher in decision-making skill and the quality of social support received. Conclusion: Many HF patients were poor at interpreting and managing their symptoms. These results suggest a subgroup of patients to target for intervention.

KW - Decision-making

KW - Delay

KW - Fluid retention

KW - Heart failure

KW - Mixed methods

KW - Self-care

KW - Social support

KW - Symptom perception

UR - http://www.scopus.com/inward/record.url?scp=85039857428&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85039857428&partnerID=8YFLogxK

U2 - 10.1016/j.hrtlng.2017.11.002

DO - 10.1016/j.hrtlng.2017.11.002

M3 - Article

JO - Heart and Lung: Journal of Acute and Critical Care

T2 - Heart and Lung: Journal of Acute and Critical Care

JF - Heart and Lung: Journal of Acute and Critical Care

SN - 0147-9563

ER -