A Conceptual Framework and Key Research Questions in Educational Needs of Blood and Marrow Transplantation Patients, Caregivers, and Families

Helene M. Schoemans, Laura Finn, Jackie Foster, Alva Roche-Green, Margaret Bevans, Susan Kullberg, Everett Lee, Cindy Sargeant, Barry A. Schatz, Kristin Scheeler, Bronwen E. Shaw, Evan Shereck, Elizabeth A. Murphy, Linda J. Burns, Kim Schmit-Pokorny

Research output: Contribution to journalArticle

Abstract

Patient, caregiver, and family education and support was 1 of 6 key areas of interest identified by the National Marrow Donor Program/Be The Match 2-year project to prioritize patient-centered outcomes research (PCOR) goals for the blood and marrow transplantation (BMT) community. PCOR focuses on research to help patients and their caregivers make informed decisions about health care. Therefore, each area of interest was assigned to a working group with broad representation, including patients, caregivers, and clinicians. Each working group was charged with identifying gaps in knowledge and making priority recommendations for critical research to fill those gaps. The report from this working group presents a conceptual framework to address gaps in knowledge regarding patient and caregiver education in BMT and recommendations for priority research questions on this topic.

Original languageEnglish (US)
JournalBiology of Blood and Marrow Transplantation
DOIs
StatePublished - Jan 1 2019

Fingerprint

Caregivers
Patient Outcome Assessment
Transplantation
Bone Marrow
Research
Patient Education
Tissue Donors
Delivery of Health Care
Education

Keywords

  • Blood and marrow transplantation
  • Caregivers
  • Education needs
  • Patients
  • Self-management

ASJC Scopus subject areas

  • Hematology
  • Transplantation

Cite this

A Conceptual Framework and Key Research Questions in Educational Needs of Blood and Marrow Transplantation Patients, Caregivers, and Families. / Schoemans, Helene M.; Finn, Laura; Foster, Jackie; Roche-Green, Alva; Bevans, Margaret; Kullberg, Susan; Lee, Everett; Sargeant, Cindy; Schatz, Barry A.; Scheeler, Kristin; Shaw, Bronwen E.; Shereck, Evan; Murphy, Elizabeth A.; Burns, Linda J.; Schmit-Pokorny, Kim.

In: Biology of Blood and Marrow Transplantation, 01.01.2019.

Research output: Contribution to journalArticle

Schoemans, HM, Finn, L, Foster, J, Roche-Green, A, Bevans, M, Kullberg, S, Lee, E, Sargeant, C, Schatz, BA, Scheeler, K, Shaw, BE, Shereck, E, Murphy, EA, Burns, LJ & Schmit-Pokorny, K 2019, 'A Conceptual Framework and Key Research Questions in Educational Needs of Blood and Marrow Transplantation Patients, Caregivers, and Families', Biology of Blood and Marrow Transplantation. https://doi.org/10.1016/j.bbmt.2019.02.017
Schoemans, Helene M. ; Finn, Laura ; Foster, Jackie ; Roche-Green, Alva ; Bevans, Margaret ; Kullberg, Susan ; Lee, Everett ; Sargeant, Cindy ; Schatz, Barry A. ; Scheeler, Kristin ; Shaw, Bronwen E. ; Shereck, Evan ; Murphy, Elizabeth A. ; Burns, Linda J. ; Schmit-Pokorny, Kim. / A Conceptual Framework and Key Research Questions in Educational Needs of Blood and Marrow Transplantation Patients, Caregivers, and Families. In: Biology of Blood and Marrow Transplantation. 2019.
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