Well-being in dementia: A cross-sectional dyadic study of the impact of multiple dimensions of strain on persons living with dementia and their family care partners

Lyndsey Miller, Jeffrey Kaye, Karen Lyons, Christopher Lee, Carol J. Whitlatch, Michael S. Caserta

Research output: Contribution to journalArticle

1 Citation (Scopus)

Abstract

Background and Purpose:The impact of dementia-related stressors and strains have been examined for their potential to threaten the well-being of either the person with dementia or the family care partner, but rarely have studies considered the dyadic nature of well-being in dementia. The purpose of this study was to examine the dyadic effects of multiple dimensions of strain on the well-being of dementia care dyads.Methods:Using multilevel modeling to account for the inter-relatedness of individual well-being within dementia care dyads, we examined cross-sectional responses collected from 42 dyads comprised of a hospitalized patient diagnosed with a primary progressive dementia (PWD) and their family care partner (CP). Both PWDs and CPs self-reported on their own well-being using measures of quality of life (QOL-Alzheimer's Disease scale) and depressive symptoms (Center for Epidemiological Studies Depression Scale).Results:In adjusted models, the PWD's well-being (higher QOL and lower depressive symptoms) was associated with significantly less strain in the dyad's relationship. The CP's well-being was associated with significantly less care-related strain and (for QOL scale) less relationship strain.Conclusions:Understanding the impact of dementia on the well-being of PWDs or CPs may require an assessment of both members of the dementia care dyad in order to gain a complete picture of how dementia-related stressors and strains impact individual well-being. These results underscore the need to assess and manage dementia-related strain as a multi-dimensional construct that may include strain related to the progression of the disease, strain from providing care, and strain on the dyad's relationship quality.

Original languageEnglish (US)
JournalInternational Psychogeriatrics
DOIs
StatePublished - Jan 1 2019

Fingerprint

Dementia
Cross-Sectional Studies
Depression
Disease Progression
Epidemiologic Studies
Alzheimer Disease
Quality of Life

Keywords

  • dementia
  • depression
  • dyadic analysis
  • family caregiving
  • quality-of-life
  • Stress Process Model

ASJC Scopus subject areas

  • Clinical Psychology
  • Gerontology
  • Geriatrics and Gerontology
  • Psychiatry and Mental health

Cite this

@article{aa6552eba37f44af9c7550e992c7ea02,
title = "Well-being in dementia: A cross-sectional dyadic study of the impact of multiple dimensions of strain on persons living with dementia and their family care partners",
abstract = "Background and Purpose:The impact of dementia-related stressors and strains have been examined for their potential to threaten the well-being of either the person with dementia or the family care partner, but rarely have studies considered the dyadic nature of well-being in dementia. The purpose of this study was to examine the dyadic effects of multiple dimensions of strain on the well-being of dementia care dyads.Methods:Using multilevel modeling to account for the inter-relatedness of individual well-being within dementia care dyads, we examined cross-sectional responses collected from 42 dyads comprised of a hospitalized patient diagnosed with a primary progressive dementia (PWD) and their family care partner (CP). Both PWDs and CPs self-reported on their own well-being using measures of quality of life (QOL-Alzheimer's Disease scale) and depressive symptoms (Center for Epidemiological Studies Depression Scale).Results:In adjusted models, the PWD's well-being (higher QOL and lower depressive symptoms) was associated with significantly less strain in the dyad's relationship. The CP's well-being was associated with significantly less care-related strain and (for QOL scale) less relationship strain.Conclusions:Understanding the impact of dementia on the well-being of PWDs or CPs may require an assessment of both members of the dementia care dyad in order to gain a complete picture of how dementia-related stressors and strains impact individual well-being. These results underscore the need to assess and manage dementia-related strain as a multi-dimensional construct that may include strain related to the progression of the disease, strain from providing care, and strain on the dyad's relationship quality.",
keywords = "dementia, depression, dyadic analysis, family caregiving, quality-of-life, Stress Process Model",
author = "Lyndsey Miller and Jeffrey Kaye and Karen Lyons and Christopher Lee and Whitlatch, {Carol J.} and Caserta, {Michael S.}",
year = "2019",
month = "1",
day = "1",
doi = "10.1017/S104161021800203X",
language = "English (US)",
journal = "International Psychogeriatrics",
issn = "1041-6102",
publisher = "Cambridge University Press",

}

TY - JOUR

T1 - Well-being in dementia

T2 - A cross-sectional dyadic study of the impact of multiple dimensions of strain on persons living with dementia and their family care partners

AU - Miller, Lyndsey

AU - Kaye, Jeffrey

AU - Lyons, Karen

AU - Lee, Christopher

AU - Whitlatch, Carol J.

AU - Caserta, Michael S.

PY - 2019/1/1

Y1 - 2019/1/1

N2 - Background and Purpose:The impact of dementia-related stressors and strains have been examined for their potential to threaten the well-being of either the person with dementia or the family care partner, but rarely have studies considered the dyadic nature of well-being in dementia. The purpose of this study was to examine the dyadic effects of multiple dimensions of strain on the well-being of dementia care dyads.Methods:Using multilevel modeling to account for the inter-relatedness of individual well-being within dementia care dyads, we examined cross-sectional responses collected from 42 dyads comprised of a hospitalized patient diagnosed with a primary progressive dementia (PWD) and their family care partner (CP). Both PWDs and CPs self-reported on their own well-being using measures of quality of life (QOL-Alzheimer's Disease scale) and depressive symptoms (Center for Epidemiological Studies Depression Scale).Results:In adjusted models, the PWD's well-being (higher QOL and lower depressive symptoms) was associated with significantly less strain in the dyad's relationship. The CP's well-being was associated with significantly less care-related strain and (for QOL scale) less relationship strain.Conclusions:Understanding the impact of dementia on the well-being of PWDs or CPs may require an assessment of both members of the dementia care dyad in order to gain a complete picture of how dementia-related stressors and strains impact individual well-being. These results underscore the need to assess and manage dementia-related strain as a multi-dimensional construct that may include strain related to the progression of the disease, strain from providing care, and strain on the dyad's relationship quality.

AB - Background and Purpose:The impact of dementia-related stressors and strains have been examined for their potential to threaten the well-being of either the person with dementia or the family care partner, but rarely have studies considered the dyadic nature of well-being in dementia. The purpose of this study was to examine the dyadic effects of multiple dimensions of strain on the well-being of dementia care dyads.Methods:Using multilevel modeling to account for the inter-relatedness of individual well-being within dementia care dyads, we examined cross-sectional responses collected from 42 dyads comprised of a hospitalized patient diagnosed with a primary progressive dementia (PWD) and their family care partner (CP). Both PWDs and CPs self-reported on their own well-being using measures of quality of life (QOL-Alzheimer's Disease scale) and depressive symptoms (Center for Epidemiological Studies Depression Scale).Results:In adjusted models, the PWD's well-being (higher QOL and lower depressive symptoms) was associated with significantly less strain in the dyad's relationship. The CP's well-being was associated with significantly less care-related strain and (for QOL scale) less relationship strain.Conclusions:Understanding the impact of dementia on the well-being of PWDs or CPs may require an assessment of both members of the dementia care dyad in order to gain a complete picture of how dementia-related stressors and strains impact individual well-being. These results underscore the need to assess and manage dementia-related strain as a multi-dimensional construct that may include strain related to the progression of the disease, strain from providing care, and strain on the dyad's relationship quality.

KW - dementia

KW - depression

KW - dyadic analysis

KW - family caregiving

KW - quality-of-life

KW - Stress Process Model

UR - http://www.scopus.com/inward/record.url?scp=85061141454&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85061141454&partnerID=8YFLogxK

U2 - 10.1017/S104161021800203X

DO - 10.1017/S104161021800203X

M3 - Article

C2 - 30722800

AN - SCOPUS:85061141454

JO - International Psychogeriatrics

JF - International Psychogeriatrics

SN - 1041-6102

ER -