Using population-based survey data to monitor the health of children and youth with special health care needs and disabilities

Willi Horner-Johnson, Kathleen Newton

Research output: Chapter in Book/Report/Conference proceedingChapter

1 Citation (Scopus)

Abstract

Population-based surveys serve as a key source of information about a range of health issues. Children and youth with special health care needs (CSHCN) or disabilities have been less visible in these efforts. However, a number of large-scale surveys over the years have captured health data that include and identify children, adolescents, and young adults with disabilities and/or special health care needs (SHCN). Such surveys provide a valuable window on the tremendous diversity of health conditions that may impact individuals from early development through adolescence and adulthood, as well as the many factors that can facilitate or hinder positive health and well-being. In this chapter, we describe in detail several CSHCN national health surveys, including the National Survey of Children with Special Health Care Needs (NS-CSHCN), National Survey of Children's Health (NSCH), National Longitudinal Study of Adolescent Health (Add Health), National Health Interview Survey (NHIS), National Education Longitudinal Study of 1988-2000 (NELS:88), Youth Risk Behavior Surveillance System (YRBSS), and the Medical Expenditure Panel Survey (MEPS). Across these and other data sources, children and youth with SHCN or disability appear to be at greater risk for a range of health problems as well as unmet health care needs. Population-based data are crucial not only for identifying these problems, but also for tracking the success of efforts to address them.

Original languageEnglish (US)
Title of host publicationHandbook of Children with Special Health Care Needs
PublisherSpringer New York
Pages307-334
Number of pages28
ISBN (Electronic)9781461423355
ISBN (Print)9781461423348
DOIs
StatePublished - Jan 1 2012

Fingerprint

Delivery of Health Care
Health
Population
Health Surveys
National Longitudinal Study of Adolescent Health
Information Storage and Retrieval
Health Expenditures
Risk-Taking
Longitudinal Studies
Child Health
Surveys and Questionnaires
Young Adult
Interviews
Education

ASJC Scopus subject areas

  • Nursing(all)

Cite this

Using population-based survey data to monitor the health of children and youth with special health care needs and disabilities. / Horner-Johnson, Willi; Newton, Kathleen.

Handbook of Children with Special Health Care Needs. Springer New York, 2012. p. 307-334.

Research output: Chapter in Book/Report/Conference proceedingChapter

Horner-Johnson, Willi ; Newton, Kathleen. / Using population-based survey data to monitor the health of children and youth with special health care needs and disabilities. Handbook of Children with Special Health Care Needs. Springer New York, 2012. pp. 307-334
@inbook{ac92099e5cf94858ac85e9622e5c8b0e,
title = "Using population-based survey data to monitor the health of children and youth with special health care needs and disabilities",
abstract = "Population-based surveys serve as a key source of information about a range of health issues. Children and youth with special health care needs (CSHCN) or disabilities have been less visible in these efforts. However, a number of large-scale surveys over the years have captured health data that include and identify children, adolescents, and young adults with disabilities and/or special health care needs (SHCN). Such surveys provide a valuable window on the tremendous diversity of health conditions that may impact individuals from early development through adolescence and adulthood, as well as the many factors that can facilitate or hinder positive health and well-being. In this chapter, we describe in detail several CSHCN national health surveys, including the National Survey of Children with Special Health Care Needs (NS-CSHCN), National Survey of Children's Health (NSCH), National Longitudinal Study of Adolescent Health (Add Health), National Health Interview Survey (NHIS), National Education Longitudinal Study of 1988-2000 (NELS:88), Youth Risk Behavior Surveillance System (YRBSS), and the Medical Expenditure Panel Survey (MEPS). Across these and other data sources, children and youth with SHCN or disability appear to be at greater risk for a range of health problems as well as unmet health care needs. Population-based data are crucial not only for identifying these problems, but also for tracking the success of efforts to address them.",
author = "Willi Horner-Johnson and Kathleen Newton",
year = "2012",
month = "1",
day = "1",
doi = "10.1007/978-1-4614-2335-5_16",
language = "English (US)",
isbn = "9781461423348",
pages = "307--334",
booktitle = "Handbook of Children with Special Health Care Needs",
publisher = "Springer New York",

}

TY - CHAP

T1 - Using population-based survey data to monitor the health of children and youth with special health care needs and disabilities

AU - Horner-Johnson, Willi

AU - Newton, Kathleen

PY - 2012/1/1

Y1 - 2012/1/1

N2 - Population-based surveys serve as a key source of information about a range of health issues. Children and youth with special health care needs (CSHCN) or disabilities have been less visible in these efforts. However, a number of large-scale surveys over the years have captured health data that include and identify children, adolescents, and young adults with disabilities and/or special health care needs (SHCN). Such surveys provide a valuable window on the tremendous diversity of health conditions that may impact individuals from early development through adolescence and adulthood, as well as the many factors that can facilitate or hinder positive health and well-being. In this chapter, we describe in detail several CSHCN national health surveys, including the National Survey of Children with Special Health Care Needs (NS-CSHCN), National Survey of Children's Health (NSCH), National Longitudinal Study of Adolescent Health (Add Health), National Health Interview Survey (NHIS), National Education Longitudinal Study of 1988-2000 (NELS:88), Youth Risk Behavior Surveillance System (YRBSS), and the Medical Expenditure Panel Survey (MEPS). Across these and other data sources, children and youth with SHCN or disability appear to be at greater risk for a range of health problems as well as unmet health care needs. Population-based data are crucial not only for identifying these problems, but also for tracking the success of efforts to address them.

AB - Population-based surveys serve as a key source of information about a range of health issues. Children and youth with special health care needs (CSHCN) or disabilities have been less visible in these efforts. However, a number of large-scale surveys over the years have captured health data that include and identify children, adolescents, and young adults with disabilities and/or special health care needs (SHCN). Such surveys provide a valuable window on the tremendous diversity of health conditions that may impact individuals from early development through adolescence and adulthood, as well as the many factors that can facilitate or hinder positive health and well-being. In this chapter, we describe in detail several CSHCN national health surveys, including the National Survey of Children with Special Health Care Needs (NS-CSHCN), National Survey of Children's Health (NSCH), National Longitudinal Study of Adolescent Health (Add Health), National Health Interview Survey (NHIS), National Education Longitudinal Study of 1988-2000 (NELS:88), Youth Risk Behavior Surveillance System (YRBSS), and the Medical Expenditure Panel Survey (MEPS). Across these and other data sources, children and youth with SHCN or disability appear to be at greater risk for a range of health problems as well as unmet health care needs. Population-based data are crucial not only for identifying these problems, but also for tracking the success of efforts to address them.

UR - http://www.scopus.com/inward/record.url?scp=85037069228&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85037069228&partnerID=8YFLogxK

U2 - 10.1007/978-1-4614-2335-5_16

DO - 10.1007/978-1-4614-2335-5_16

M3 - Chapter

AN - SCOPUS:85037069228

SN - 9781461423348

SP - 307

EP - 334

BT - Handbook of Children with Special Health Care Needs

PB - Springer New York

ER -