The National Marrow Donor Program's Symposium on Patient Advocacy in Cellular Transplantation Therapy: Addressing Barriers to Hematopoietic Cell Transplantation

Elizabeth A. Murphy, Stacy Stickney Ferguson, Nancy Atieno Omondi, Lisa C. Getzendaner, James L. Gajewski, Gary A. Goldstein, John R. Wingard, J. Douglas Rizzo, Navneet S. Mahjail

    Research output: Contribution to journalReview article

    9 Scopus citations

    Abstract

    Although hematopoietic cell transplantation (HCT) is an effective treatment option for patients with life-threatening blood, immune system, or genetic disorders, many barriers besides a lack of suitably matched donors exist and can have an adverse impact on access and outcomes of HCT. In 2008, the National Marrow Donor Program, through its Office of Patient Advocacy, convened a diverse group of experts and transplantation survivors to identify persistent patient barriers throughout the transplantation process and to make recommendations for programs and initiatives to address these barriers, including new research opportunities. This group included transplantation physicians and other health care providers, relevant subject experts, and representatives from transplantation centers and patient advocacy organizations. Working groups were formed to identify patient barriers to HCT and to recommend and prioritize initiatives as they relate to the pretransplantation period, the early posttransplantation period, long-term survivorship, financial issues, and special populations. This report summarizes the symposium's deliberations and recommendations to address persistent patient barriers throughout the transplantation process.

    Original languageEnglish (US)
    Pages (from-to)147-156
    Number of pages10
    JournalBiology of Blood and Marrow Transplantation
    Volume16
    Issue number2
    DOIs
    StatePublished - Feb 1 2010

    Keywords

    • Barriers to transplantation
    • Financial barriers
    • Health disparities
    • Hematopoietic stem cell transplantation
    • National Marrow Donor Program
    • Patient advocacy
    • Quality of life
    • Survivorship

    ASJC Scopus subject areas

    • Hematology
    • Transplantation

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  • Cite this

    Murphy, E. A., Ferguson, S. S., Omondi, N. A., Getzendaner, L. C., Gajewski, J. L., Goldstein, G. A., Wingard, J. R., Rizzo, J. D., & Mahjail, N. S. (2010). The National Marrow Donor Program's Symposium on Patient Advocacy in Cellular Transplantation Therapy: Addressing Barriers to Hematopoietic Cell Transplantation. Biology of Blood and Marrow Transplantation, 16(2), 147-156. https://doi.org/10.1016/j.bbmt.2009.08.004