TY - JOUR
T1 - The National Marrow Donor Program's Symposium on Patient Advocacy in Cellular Transplantation Therapy
T2 - Addressing Barriers to Hematopoietic Cell Transplantation
AU - Murphy, Elizabeth A.
AU - Ferguson, Stacy Stickney
AU - Omondi, Nancy Atieno
AU - Getzendaner, Lisa C.
AU - Gajewski, James L.
AU - Goldstein, Gary A.
AU - Wingard, John R.
AU - Rizzo, J. Douglas
AU - Mahjail, Navneet S.
PY - 2010/2
Y1 - 2010/2
N2 - Although hematopoietic cell transplantation (HCT) is an effective treatment option for patients with life-threatening blood, immune system, or genetic disorders, many barriers besides a lack of suitably matched donors exist and can have an adverse impact on access and outcomes of HCT. In 2008, the National Marrow Donor Program, through its Office of Patient Advocacy, convened a diverse group of experts and transplantation survivors to identify persistent patient barriers throughout the transplantation process and to make recommendations for programs and initiatives to address these barriers, including new research opportunities. This group included transplantation physicians and other health care providers, relevant subject experts, and representatives from transplantation centers and patient advocacy organizations. Working groups were formed to identify patient barriers to HCT and to recommend and prioritize initiatives as they relate to the pretransplantation period, the early posttransplantation period, long-term survivorship, financial issues, and special populations. This report summarizes the symposium's deliberations and recommendations to address persistent patient barriers throughout the transplantation process.
AB - Although hematopoietic cell transplantation (HCT) is an effective treatment option for patients with life-threatening blood, immune system, or genetic disorders, many barriers besides a lack of suitably matched donors exist and can have an adverse impact on access and outcomes of HCT. In 2008, the National Marrow Donor Program, through its Office of Patient Advocacy, convened a diverse group of experts and transplantation survivors to identify persistent patient barriers throughout the transplantation process and to make recommendations for programs and initiatives to address these barriers, including new research opportunities. This group included transplantation physicians and other health care providers, relevant subject experts, and representatives from transplantation centers and patient advocacy organizations. Working groups were formed to identify patient barriers to HCT and to recommend and prioritize initiatives as they relate to the pretransplantation period, the early posttransplantation period, long-term survivorship, financial issues, and special populations. This report summarizes the symposium's deliberations and recommendations to address persistent patient barriers throughout the transplantation process.
KW - Barriers to transplantation
KW - Financial barriers
KW - Health disparities
KW - Hematopoietic stem cell transplantation
KW - National Marrow Donor Program
KW - Patient advocacy
KW - Quality of life
KW - Survivorship
UR - http://www.scopus.com/inward/record.url?scp=75149151795&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=75149151795&partnerID=8YFLogxK
U2 - 10.1016/j.bbmt.2009.08.004
DO - 10.1016/j.bbmt.2009.08.004
M3 - Review article
C2 - 20142045
AN - SCOPUS:75149151795
SN - 1083-8791
VL - 16
SP - 147
EP - 156
JO - Biology of Blood and Marrow Transplantation
JF - Biology of Blood and Marrow Transplantation
IS - 2
ER -