The design of a low literacy decision aid about rheumatoid arthritis medications developed in three languages for use during the clinical encounter

Jennifer Barton, Christopher J. Koenig, Gina Evans-Young, Laura Trupin, Jennie Anderson, Dana Ragouzeos, Maggie Breslin, Timothy Morse, Dean Schillinger, Victor M. Montori, Edward H. Yelin

Research output: Contribution to journalArticle

16 Citations (Scopus)

Abstract

Background: Shared decision-making in rheumatoid arthritis (RA) care is a priority among policy makers, clinicians and patients both nationally and internationally. Demands on patients to have basic knowledge of RA, treatment options, and details of risk and benefit when making medication decisions with clinicians can be overwhelming, especially for those with limited literacy or limited English language proficiency. The objective of this study is to describe the development of a medication choice decision aid for patients with rheumatoid arthritis (RA) in three languages using low literacy principles. Methods: Based on the development of a diabetes decision aid, the RA decision aid (RA Choice) was developed through a collaborative process involving patients, clinicians, designers, decision-aid and health literacy experts. A combination of evidence synthesis and direct observation of clinician-patient interactions generated content and guided an iterative process of prototype development. Results: Three iterations of RA Choice were developed and field-tested before completion. The final tool organized data using icons and plain language for 12 RA medications across 5 issues: frequency of administration, time to onset, cost, side effects, and special considerations. The tool successfully created a conversation between clinician and patient, and garnered high acceptability from clinicians. Conclusions: The process of collaboratively developing an RA decision aid designed to promote shared decision making resulted in a graphically-enhanced, low literacy tool. The use of RA Choice in the clinical encounter has the potential to enhance communication for RA patients, including those with limited health literacy and limited English language proficiency.

Original languageEnglish (US)
Pages (from-to)1-14
Number of pages14
JournalBMC Medical Informatics and Decision Making
DOIs
StateAccepted/In press - Nov 25 2014
Externally publishedYes

Fingerprint

Decision Support Techniques
Rheumatoid Arthritis
Language
Health Literacy
Decision Making
Literacy
Administrative Personnel
Communication
Observation
Costs and Cost Analysis

Keywords

  • Decision aid
  • Health literacy
  • Rheumatoid arthritis

ASJC Scopus subject areas

  • Health Informatics
  • Health Policy

Cite this

The design of a low literacy decision aid about rheumatoid arthritis medications developed in three languages for use during the clinical encounter. / Barton, Jennifer; Koenig, Christopher J.; Evans-Young, Gina; Trupin, Laura; Anderson, Jennie; Ragouzeos, Dana; Breslin, Maggie; Morse, Timothy; Schillinger, Dean; Montori, Victor M.; Yelin, Edward H.

In: BMC Medical Informatics and Decision Making, 25.11.2014, p. 1-14.

Research output: Contribution to journalArticle

Barton, Jennifer ; Koenig, Christopher J. ; Evans-Young, Gina ; Trupin, Laura ; Anderson, Jennie ; Ragouzeos, Dana ; Breslin, Maggie ; Morse, Timothy ; Schillinger, Dean ; Montori, Victor M. ; Yelin, Edward H. / The design of a low literacy decision aid about rheumatoid arthritis medications developed in three languages for use during the clinical encounter. In: BMC Medical Informatics and Decision Making. 2014 ; pp. 1-14.
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