Supporting home hospice family caregivers

Insights from different perspectives

Lee Ellington, Kristin G. Cloyes, Jiayun Xu, Lanell Bellury, Patricia Berry, Maija Reblin, Margaret F. Clayton

    Research output: Contribution to journalArticle

    2 Citations (Scopus)

    Abstract

    Objective:: Our intention was to describe and compare the perspectives of national hospice thought leaders, hospice nurses, and former family caregivers on factors that promote or threaten family caregiver perceptions of support. Method:: Nationally recognized hospice thought leaders (n = 11), hospice nurses (n = 13), and former family caregivers (n = 14) participated. Interviews and focus groups were audiotaped and transcribed. Data were coded inductively, and codes were hierarchically grouped by topic. Emergent categories were summarized descriptively and compared across groups. Results:: Four categories linked responses from the three participant groups (95%, 366/384 codes): (1) essentials of skilled communication (30.6%), (2) importance of building authentic relationships (28%), (3) value of expert teaching (22.4%), and (4) critical role of teamwork (18.3%). The thought leaders emphasized communication (44.6%), caregivers stressed expert teaching (51%), and nurses highlighted teamwork (35.8%). Nurses discussed teamwork significantly more than caregivers (z = 2.2786), thought leaders discussed communication more than caregivers (z = 2.8551), and caregivers discussed expert teaching more than thought leaders ( z = 2.1693) and nurses (z = 2.4718; all values of p < 0.05). Significance of Results:: Our findings suggest differences in priorities for caregiver support across family caregivers, hospice nurses, and thought leaders. Hospice teams may benefit from further education and training to help cross the schism of family-centered hospice care as a clinical ideal to one where hospice team members can fully support and empower family caregivers as a hospice team member.

    Original languageEnglish (US)
    Pages (from-to)1-11
    Number of pages11
    JournalPalliative and Supportive Care
    DOIs
    StateAccepted/In press - May 3 2017

    Fingerprint

    Hospices
    Caregivers
    Nurses
    Teaching
    Communication
    Hospice Care
    Focus Groups
    Interviews
    Education

    Keywords

    • Caregiver
    • Caregiver support
    • Communication
    • Comparative analysis
    • Hospice nursing

    ASJC Scopus subject areas

    • Nursing(all)
    • Medicine(all)
    • Clinical Psychology
    • Psychiatry and Mental health

    Cite this

    Ellington, L., Cloyes, K. G., Xu, J., Bellury, L., Berry, P., Reblin, M., & Clayton, M. F. (Accepted/In press). Supporting home hospice family caregivers: Insights from different perspectives. Palliative and Supportive Care, 1-11. https://doi.org/10.1017/S1478951517000219

    Supporting home hospice family caregivers : Insights from different perspectives. / Ellington, Lee; Cloyes, Kristin G.; Xu, Jiayun; Bellury, Lanell; Berry, Patricia; Reblin, Maija; Clayton, Margaret F.

    In: Palliative and Supportive Care, 03.05.2017, p. 1-11.

    Research output: Contribution to journalArticle

    Ellington, Lee ; Cloyes, Kristin G. ; Xu, Jiayun ; Bellury, Lanell ; Berry, Patricia ; Reblin, Maija ; Clayton, Margaret F. / Supporting home hospice family caregivers : Insights from different perspectives. In: Palliative and Supportive Care. 2017 ; pp. 1-11.
    @article{e1c86d94036a420490876f7cba5e9318,
    title = "Supporting home hospice family caregivers: Insights from different perspectives",
    abstract = "Objective:: Our intention was to describe and compare the perspectives of national hospice thought leaders, hospice nurses, and former family caregivers on factors that promote or threaten family caregiver perceptions of support. Method:: Nationally recognized hospice thought leaders (n = 11), hospice nurses (n = 13), and former family caregivers (n = 14) participated. Interviews and focus groups were audiotaped and transcribed. Data were coded inductively, and codes were hierarchically grouped by topic. Emergent categories were summarized descriptively and compared across groups. Results:: Four categories linked responses from the three participant groups (95{\%}, 366/384 codes): (1) essentials of skilled communication (30.6{\%}), (2) importance of building authentic relationships (28{\%}), (3) value of expert teaching (22.4{\%}), and (4) critical role of teamwork (18.3{\%}). The thought leaders emphasized communication (44.6{\%}), caregivers stressed expert teaching (51{\%}), and nurses highlighted teamwork (35.8{\%}). Nurses discussed teamwork significantly more than caregivers (z = 2.2786), thought leaders discussed communication more than caregivers (z = 2.8551), and caregivers discussed expert teaching more than thought leaders ( z = 2.1693) and nurses (z = 2.4718; all values of p < 0.05). Significance of Results:: Our findings suggest differences in priorities for caregiver support across family caregivers, hospice nurses, and thought leaders. Hospice teams may benefit from further education and training to help cross the schism of family-centered hospice care as a clinical ideal to one where hospice team members can fully support and empower family caregivers as a hospice team member.",
    keywords = "Caregiver, Caregiver support, Communication, Comparative analysis, Hospice nursing",
    author = "Lee Ellington and Cloyes, {Kristin G.} and Jiayun Xu and Lanell Bellury and Patricia Berry and Maija Reblin and Clayton, {Margaret F.}",
    year = "2017",
    month = "5",
    day = "3",
    doi = "10.1017/S1478951517000219",
    language = "English (US)",
    pages = "1--11",
    journal = "Palliative and Supportive Care",
    issn = "1478-9515",
    publisher = "Cambridge University Press",

    }

    TY - JOUR

    T1 - Supporting home hospice family caregivers

    T2 - Insights from different perspectives

    AU - Ellington, Lee

    AU - Cloyes, Kristin G.

    AU - Xu, Jiayun

    AU - Bellury, Lanell

    AU - Berry, Patricia

    AU - Reblin, Maija

    AU - Clayton, Margaret F.

    PY - 2017/5/3

    Y1 - 2017/5/3

    N2 - Objective:: Our intention was to describe and compare the perspectives of national hospice thought leaders, hospice nurses, and former family caregivers on factors that promote or threaten family caregiver perceptions of support. Method:: Nationally recognized hospice thought leaders (n = 11), hospice nurses (n = 13), and former family caregivers (n = 14) participated. Interviews and focus groups were audiotaped and transcribed. Data were coded inductively, and codes were hierarchically grouped by topic. Emergent categories were summarized descriptively and compared across groups. Results:: Four categories linked responses from the three participant groups (95%, 366/384 codes): (1) essentials of skilled communication (30.6%), (2) importance of building authentic relationships (28%), (3) value of expert teaching (22.4%), and (4) critical role of teamwork (18.3%). The thought leaders emphasized communication (44.6%), caregivers stressed expert teaching (51%), and nurses highlighted teamwork (35.8%). Nurses discussed teamwork significantly more than caregivers (z = 2.2786), thought leaders discussed communication more than caregivers (z = 2.8551), and caregivers discussed expert teaching more than thought leaders ( z = 2.1693) and nurses (z = 2.4718; all values of p < 0.05). Significance of Results:: Our findings suggest differences in priorities for caregiver support across family caregivers, hospice nurses, and thought leaders. Hospice teams may benefit from further education and training to help cross the schism of family-centered hospice care as a clinical ideal to one where hospice team members can fully support and empower family caregivers as a hospice team member.

    AB - Objective:: Our intention was to describe and compare the perspectives of national hospice thought leaders, hospice nurses, and former family caregivers on factors that promote or threaten family caregiver perceptions of support. Method:: Nationally recognized hospice thought leaders (n = 11), hospice nurses (n = 13), and former family caregivers (n = 14) participated. Interviews and focus groups were audiotaped and transcribed. Data were coded inductively, and codes were hierarchically grouped by topic. Emergent categories were summarized descriptively and compared across groups. Results:: Four categories linked responses from the three participant groups (95%, 366/384 codes): (1) essentials of skilled communication (30.6%), (2) importance of building authentic relationships (28%), (3) value of expert teaching (22.4%), and (4) critical role of teamwork (18.3%). The thought leaders emphasized communication (44.6%), caregivers stressed expert teaching (51%), and nurses highlighted teamwork (35.8%). Nurses discussed teamwork significantly more than caregivers (z = 2.2786), thought leaders discussed communication more than caregivers (z = 2.8551), and caregivers discussed expert teaching more than thought leaders ( z = 2.1693) and nurses (z = 2.4718; all values of p < 0.05). Significance of Results:: Our findings suggest differences in priorities for caregiver support across family caregivers, hospice nurses, and thought leaders. Hospice teams may benefit from further education and training to help cross the schism of family-centered hospice care as a clinical ideal to one where hospice team members can fully support and empower family caregivers as a hospice team member.

    KW - Caregiver

    KW - Caregiver support

    KW - Communication

    KW - Comparative analysis

    KW - Hospice nursing

    UR - http://www.scopus.com/inward/record.url?scp=85018433369&partnerID=8YFLogxK

    UR - http://www.scopus.com/inward/citedby.url?scp=85018433369&partnerID=8YFLogxK

    U2 - 10.1017/S1478951517000219

    DO - 10.1017/S1478951517000219

    M3 - Article

    SP - 1

    EP - 11

    JO - Palliative and Supportive Care

    JF - Palliative and Supportive Care

    SN - 1478-9515

    ER -