TY - JOUR
T1 - Supporting home hospice family caregivers
T2 - Insights from different perspectives
AU - Ellington, Lee
AU - Cloyes, Kristin G.
AU - Xu, Jiayun
AU - Bellury, Lanell
AU - Berry, Patricia H.
AU - Reblin, Maija
AU - Clayton, Margaret F.
N1 - Funding Information:
This work was supported by the American Cancer Society (ACS PEP-11-165-01-PCSM; Lee Ellington, PI), and J. Xu was supported by a National Institutes of Health training grant (NINR T32 NR 013456-03; Susan L. Beck and Ginette A. Pepper, PIs). Funding sources did not influence the design, collection, analysis, data interpretation, writing, or decision to submit this study for publication. In addition, there are no conflicts of interest to report.
Publisher Copyright:
Copyright © Cambridge University Press 2017.
PY - 2018/4/1
Y1 - 2018/4/1
N2 - Objective: Our intention was to describe and compare the perspectives of national hospice thought leaders, hospice nurses, and former family caregivers on factors that promote or threaten family caregiver perceptions of support.Method: Nationally recognized hospice thought leaders (n = 11), hospice nurses (n = 13), and former family caregivers (n = 14) participated. Interviews and focus groups were audiotaped and transcribed. Data were coded inductively, and codes were hierarchically grouped by topic. Emergent categories were summarized descriptively and compared across groups.Results: Four categories linked responses from the three participant groups (95%, 366/384 codes): (1) essentials of skilled communication (30.6%), (2) importance of building authentic relationships (28%), (3) value of expert teaching (22.4%), and (4) critical role of teamwork (18.3%). The thought leaders emphasized communication (44.6%), caregivers stressed expert teaching (51%), and nurses highlighted teamwork (35.8%). Nurses discussed teamwork significantly more than caregivers (z = 2.2786), thought leaders discussed communication more than caregivers (z = 2.8551), and caregivers discussed expert teaching more than thought leaders (z = 2.1693) and nurses (z = 2.4718; all values of p < 0.05).Significance of Results: Our findings suggest differences in priorities for caregiver support across family caregivers, hospice nurses, and thought leaders. Hospice teams may benefit from further education and training to help cross the schism of family-centered hospice care as a clinical ideal to one where hospice team members can fully support and empower family caregivers as a hospice team member.
AB - Objective: Our intention was to describe and compare the perspectives of national hospice thought leaders, hospice nurses, and former family caregivers on factors that promote or threaten family caregiver perceptions of support.Method: Nationally recognized hospice thought leaders (n = 11), hospice nurses (n = 13), and former family caregivers (n = 14) participated. Interviews and focus groups were audiotaped and transcribed. Data were coded inductively, and codes were hierarchically grouped by topic. Emergent categories were summarized descriptively and compared across groups.Results: Four categories linked responses from the three participant groups (95%, 366/384 codes): (1) essentials of skilled communication (30.6%), (2) importance of building authentic relationships (28%), (3) value of expert teaching (22.4%), and (4) critical role of teamwork (18.3%). The thought leaders emphasized communication (44.6%), caregivers stressed expert teaching (51%), and nurses highlighted teamwork (35.8%). Nurses discussed teamwork significantly more than caregivers (z = 2.2786), thought leaders discussed communication more than caregivers (z = 2.8551), and caregivers discussed expert teaching more than thought leaders (z = 2.1693) and nurses (z = 2.4718; all values of p < 0.05).Significance of Results: Our findings suggest differences in priorities for caregiver support across family caregivers, hospice nurses, and thought leaders. Hospice teams may benefit from further education and training to help cross the schism of family-centered hospice care as a clinical ideal to one where hospice team members can fully support and empower family caregivers as a hospice team member.
KW - Caregiver
KW - Caregiver support
KW - Communication
KW - Comparative analysis
KW - Hospice nursing
UR - http://www.scopus.com/inward/record.url?scp=85018433369&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85018433369&partnerID=8YFLogxK
U2 - 10.1017/S1478951517000219
DO - 10.1017/S1478951517000219
M3 - Article
C2 - 28464961
AN - SCOPUS:85018433369
SN - 1478-9515
VL - 16
SP - 209
EP - 219
JO - Palliative and Supportive Care
JF - Palliative and Supportive Care
IS - 2
ER -