Strategies used by teens growing up in families with huntington disease

Janet K. Williams, Martha Driessnack, J. Jackson Barnette, Kathleen J H Sparbel, Anne Leserman, Sean Thompson, Jane S. Paulsen

Research output: Contribution to journalArticle

7 Citations (Scopus)

Abstract

The purpose of this study was to identify helpfulness of strategies used by teens growing up in families with Huntington disease (HD). Forty-four participants responded to a mailed HD Family Survey-Teens Strategies. Strategies were those with strong positive correlation between use and perceived helpfulness, and those with negative or inverse relationships. Obtaining information, thinking about or doing something else, and actions on behalf of the parent with HD were rated as highest use and perceived helpfulness. Emotional suppression had high use but low helpfulness. Participants reported using numerous helpful strategies. Social support was often unavailable to help manage teen concerns.

Original languageEnglish (US)
Pages (from-to)464-469
Number of pages6
JournalJournal of Pediatric Nursing
Volume28
Issue number5
DOIs
StatePublished - Sep 2013

Fingerprint

Huntington Disease
Social Support

Keywords

  • Adolescence
  • Coping
  • Family
  • Huntington disease
  • Young adult

ASJC Scopus subject areas

  • Pediatrics

Cite this

Williams, J. K., Driessnack, M., Barnette, J. J., Sparbel, K. J. H., Leserman, A., Thompson, S., & Paulsen, J. S. (2013). Strategies used by teens growing up in families with huntington disease. Journal of Pediatric Nursing, 28(5), 464-469. https://doi.org/10.1016/j.pedn.2013.02.030

Strategies used by teens growing up in families with huntington disease. / Williams, Janet K.; Driessnack, Martha; Barnette, J. Jackson; Sparbel, Kathleen J H; Leserman, Anne; Thompson, Sean; Paulsen, Jane S.

In: Journal of Pediatric Nursing, Vol. 28, No. 5, 09.2013, p. 464-469.

Research output: Contribution to journalArticle

Williams, JK, Driessnack, M, Barnette, JJ, Sparbel, KJH, Leserman, A, Thompson, S & Paulsen, JS 2013, 'Strategies used by teens growing up in families with huntington disease', Journal of Pediatric Nursing, vol. 28, no. 5, pp. 464-469. https://doi.org/10.1016/j.pedn.2013.02.030
Williams, Janet K. ; Driessnack, Martha ; Barnette, J. Jackson ; Sparbel, Kathleen J H ; Leserman, Anne ; Thompson, Sean ; Paulsen, Jane S. / Strategies used by teens growing up in families with huntington disease. In: Journal of Pediatric Nursing. 2013 ; Vol. 28, No. 5. pp. 464-469.
@article{15c16b8b1d9b41b2b169b61868210e22,
title = "Strategies used by teens growing up in families with huntington disease",
abstract = "The purpose of this study was to identify helpfulness of strategies used by teens growing up in families with Huntington disease (HD). Forty-four participants responded to a mailed HD Family Survey-Teens Strategies. Strategies were those with strong positive correlation between use and perceived helpfulness, and those with negative or inverse relationships. Obtaining information, thinking about or doing something else, and actions on behalf of the parent with HD were rated as highest use and perceived helpfulness. Emotional suppression had high use but low helpfulness. Participants reported using numerous helpful strategies. Social support was often unavailable to help manage teen concerns.",
keywords = "Adolescence, Coping, Family, Huntington disease, Young adult",
author = "Williams, {Janet K.} and Martha Driessnack and Barnette, {J. Jackson} and Sparbel, {Kathleen J H} and Anne Leserman and Sean Thompson and Paulsen, {Jane S.}",
year = "2013",
month = "9",
doi = "10.1016/j.pedn.2013.02.030",
language = "English (US)",
volume = "28",
pages = "464--469",
journal = "Journal of Pediatric Nursing",
issn = "0882-5963",
publisher = "W.B. Saunders Ltd",
number = "5",

}

TY - JOUR

T1 - Strategies used by teens growing up in families with huntington disease

AU - Williams, Janet K.

AU - Driessnack, Martha

AU - Barnette, J. Jackson

AU - Sparbel, Kathleen J H

AU - Leserman, Anne

AU - Thompson, Sean

AU - Paulsen, Jane S.

PY - 2013/9

Y1 - 2013/9

N2 - The purpose of this study was to identify helpfulness of strategies used by teens growing up in families with Huntington disease (HD). Forty-four participants responded to a mailed HD Family Survey-Teens Strategies. Strategies were those with strong positive correlation between use and perceived helpfulness, and those with negative or inverse relationships. Obtaining information, thinking about or doing something else, and actions on behalf of the parent with HD were rated as highest use and perceived helpfulness. Emotional suppression had high use but low helpfulness. Participants reported using numerous helpful strategies. Social support was often unavailable to help manage teen concerns.

AB - The purpose of this study was to identify helpfulness of strategies used by teens growing up in families with Huntington disease (HD). Forty-four participants responded to a mailed HD Family Survey-Teens Strategies. Strategies were those with strong positive correlation between use and perceived helpfulness, and those with negative or inverse relationships. Obtaining information, thinking about or doing something else, and actions on behalf of the parent with HD were rated as highest use and perceived helpfulness. Emotional suppression had high use but low helpfulness. Participants reported using numerous helpful strategies. Social support was often unavailable to help manage teen concerns.

KW - Adolescence

KW - Coping

KW - Family

KW - Huntington disease

KW - Young adult

UR - http://www.scopus.com/inward/record.url?scp=84883256897&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84883256897&partnerID=8YFLogxK

U2 - 10.1016/j.pedn.2013.02.030

DO - 10.1016/j.pedn.2013.02.030

M3 - Article

C2 - 23531469

AN - SCOPUS:84883256897

VL - 28

SP - 464

EP - 469

JO - Journal of Pediatric Nursing

JF - Journal of Pediatric Nursing

SN - 0882-5963

IS - 5

ER -