Protocol for the development of guidance for stakeholder engagement in health and healthcare guideline development and implementation

Jennifer Petkovic; Alison Riddle; Elie A. Akl; Joanne Khabsa; Lyubov Lytvyn; Pearl Atwere; Pauline Campbell; Kalipso Chalkidou; Stephanie M. Chang; Sally Crowe; Leonila Dans; Fadi El Jardali; Davina Ghersi; Ian D. Graham; Sean Grant; Regina Greer-Smith; Jeanne Marie Guise; Glen Hazlewood; Janet Jull; S. Vittal Katikireddi; Etienne V. Langlois; Anne Lyddiatt; Lara Maxwell; Richard Morley; Reem A. Mustafa; Francesco Nonino; Jordi Pardo Pardo; Alex Pollock; Kevin Pottie; John Riva; Holger Schünemann; Rosiane Simeon; Maureen Smith; Airton T. Stein; Anneliese Synnot; Janice Tufte; Howard White; Vivian Welch; Thomas W. Concannon; Peter Tugwell

doi:10.1186/s13643-020-1272-5

Protocol for the development of guidance for stakeholder engagement in health and healthcare guideline development and implementation

Jennifer Petkovic, Alison Riddle, Elie A. Akl, Joanne Khabsa, Lyubov Lytvyn, Pearl Atwere, Pauline Campbell, Kalipso Chalkidou, Stephanie M. Chang, Sally Crowe, Leonila Dans, Fadi El Jardali, Davina Ghersi, Ian D. Graham, Sean Grant, Regina Greer-Smith, Jeanne Marie Guise, Glen Hazlewood, Janet Jull, S. Vittal KatikireddiEtienne V. Langlois, Anne Lyddiatt, Lara Maxwell, Richard Morley, Reem A. Mustafa, Francesco Nonino, Jordi Pardo Pardo, Alex Pollock, Kevin Pottie, John Riva, Holger Schünemann, Rosiane Simeon, Maureen Smith, Airton T. Stein, Anneliese Synnot, Janice Tufte, Howard White, Vivian Welch, Thomas W. Concannon, Peter Tugwell

Obstetrics and Gynecology

Research output: Contribution to journal › Article › peer-review

95 Scopus citations

Abstract

Background: Stakeholder engagement has become widely accepted as a necessary component of guideline development and implementation. While frameworks for developing guidelines express the need for those potentially affected by guideline recommendations to be involved in their development, there is a lack of consensus on how this should be done in practice. Further, there is a lack of guidance on how to equitably and meaningfully engage multiple stakeholders. We aim to develop guidance for the meaningful and equitable engagement of multiple stakeholders in guideline development and implementation. Methods: This will be a multi-stage project. The first stage is to conduct a series of four systematic reviews. These will (1) describe existing guidance and methods for stakeholder engagement in guideline development and implementation, (2) characterize barriers and facilitators to stakeholder engagement in guideline development and implementation, (3) explore the impact of stakeholder engagement on guideline development and implementation, and (4) identify issues related to conflicts of interest when engaging multiple stakeholders in guideline development and implementation. Discussion: We will collaborate with our multiple and diverse stakeholders to develop guidance for multi-stakeholder engagement in guideline development and implementation. We will use the results of the systematic reviews to develop a candidate list of draft guidance recommendations and will seek broad feedback on the draft guidance via an online survey of guideline developers and external stakeholders. An invited group of representatives from all stakeholder groups will discuss the results of the survey at a consensus meeting which will inform the development of the final guidance papers. Our overall goal is to improve the development of guidelines through meaningful and equitable multi-stakeholder engagement, and subsequently to improve health outcomes and reduce inequities in health.

Original language	English (US)
Article number	21
Journal	Systematic Reviews
Volume	9
Issue number	1
DOIs	https://doi.org/10.1186/s13643-020-1272-5
State	Published - Feb 1 2020

Keywords

Coproduction
Equity
Guidance
Guidelines
Integrated knowledge translation
Stakeholder engagement
Systematic reviews

ASJC Scopus subject areas

Medicine (miscellaneous)

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10.1186/s13643-020-1272-5

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Petkovic, J., Riddle, A., Akl, E. A., Khabsa, J., Lytvyn, L., Atwere, P., Campbell, P., Chalkidou, K., Chang, S. M., Crowe, S., Dans, L., Jardali, F. E., Ghersi, D., Graham, I. D., Grant, S., Greer-Smith, R., Guise, J. M., Hazlewood, G., Jull, J., ... Tugwell, P. (2020). Protocol for the development of guidance for stakeholder engagement in health and healthcare guideline development and implementation. Systematic Reviews, 9(1), Article 21. https://doi.org/10.1186/s13643-020-1272-5

Petkovic, J, Riddle, A, Akl, EA, Khabsa, J, Lytvyn, L, Atwere, P, Campbell, P, Chalkidou, K, Chang, SM, Crowe, S, Dans, L, Jardali, FE, Ghersi, D, Graham, ID, Grant, S, Greer-Smith, R, Guise, JM, Hazlewood, G, Jull, J, Katikireddi, SV, Langlois, EV, Lyddiatt, A, Maxwell, L, Morley, R, Mustafa, RA, Nonino, F, Pardo, JP, Pollock, A, Pottie, K, Riva, J, Schünemann, H, Simeon, R, Smith, M, Stein, AT, Synnot, A, Tufte, J, White, H, Welch, V, Concannon, TW & Tugwell, P 2020, 'Protocol for the development of guidance for stakeholder engagement in health and healthcare guideline development and implementation', Systematic Reviews, vol. 9, no. 1, 21. https://doi.org/10.1186/s13643-020-1272-5

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abstract = "Background: Stakeholder engagement has become widely accepted as a necessary component of guideline development and implementation. While frameworks for developing guidelines express the need for those potentially affected by guideline recommendations to be involved in their development, there is a lack of consensus on how this should be done in practice. Further, there is a lack of guidance on how to equitably and meaningfully engage multiple stakeholders. We aim to develop guidance for the meaningful and equitable engagement of multiple stakeholders in guideline development and implementation. Methods: This will be a multi-stage project. The first stage is to conduct a series of four systematic reviews. These will (1) describe existing guidance and methods for stakeholder engagement in guideline development and implementation, (2) characterize barriers and facilitators to stakeholder engagement in guideline development and implementation, (3) explore the impact of stakeholder engagement on guideline development and implementation, and (4) identify issues related to conflicts of interest when engaging multiple stakeholders in guideline development and implementation. Discussion: We will collaborate with our multiple and diverse stakeholders to develop guidance for multi-stakeholder engagement in guideline development and implementation. We will use the results of the systematic reviews to develop a candidate list of draft guidance recommendations and will seek broad feedback on the draft guidance via an online survey of guideline developers and external stakeholders. An invited group of representatives from all stakeholder groups will discuss the results of the survey at a consensus meeting which will inform the development of the final guidance papers. Our overall goal is to improve the development of guidelines through meaningful and equitable multi-stakeholder engagement, and subsequently to improve health outcomes and reduce inequities in health.",

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AU - Petkovic, Jennifer

AU - Riddle, Alison

AU - Akl, Elie A.

AU - Khabsa, Joanne

AU - Lytvyn, Lyubov

AU - Atwere, Pearl

AU - Campbell, Pauline

AU - Chalkidou, Kalipso

AU - Chang, Stephanie M.

AU - Crowe, Sally

AU - Dans, Leonila

AU - Jardali, Fadi El

AU - Ghersi, Davina

AU - Graham, Ian D.

AU - Grant, Sean

AU - Greer-Smith, Regina

AU - Guise, Jeanne Marie

AU - Hazlewood, Glen

AU - Jull, Janet

AU - Katikireddi, S. Vittal

AU - Langlois, Etienne V.

AU - Lyddiatt, Anne

AU - Maxwell, Lara

AU - Morley, Richard

AU - Mustafa, Reem A.

AU - Nonino, Francesco

AU - Pardo, Jordi Pardo

AU - Pollock, Alex

AU - Pottie, Kevin

AU - Riva, John

AU - Schünemann, Holger

AU - Simeon, Rosiane

AU - Smith, Maureen

AU - Stein, Airton T.

AU - Synnot, Anneliese

AU - Tufte, Janice

AU - White, Howard

AU - Welch, Vivian

AU - Concannon, Thomas W.

AU - Tugwell, Peter

PY - 2020/2/1

Y1 - 2020/2/1

N2 - Background: Stakeholder engagement has become widely accepted as a necessary component of guideline development and implementation. While frameworks for developing guidelines express the need for those potentially affected by guideline recommendations to be involved in their development, there is a lack of consensus on how this should be done in practice. Further, there is a lack of guidance on how to equitably and meaningfully engage multiple stakeholders. We aim to develop guidance for the meaningful and equitable engagement of multiple stakeholders in guideline development and implementation. Methods: This will be a multi-stage project. The first stage is to conduct a series of four systematic reviews. These will (1) describe existing guidance and methods for stakeholder engagement in guideline development and implementation, (2) characterize barriers and facilitators to stakeholder engagement in guideline development and implementation, (3) explore the impact of stakeholder engagement on guideline development and implementation, and (4) identify issues related to conflicts of interest when engaging multiple stakeholders in guideline development and implementation. Discussion: We will collaborate with our multiple and diverse stakeholders to develop guidance for multi-stakeholder engagement in guideline development and implementation. We will use the results of the systematic reviews to develop a candidate list of draft guidance recommendations and will seek broad feedback on the draft guidance via an online survey of guideline developers and external stakeholders. An invited group of representatives from all stakeholder groups will discuss the results of the survey at a consensus meeting which will inform the development of the final guidance papers. Our overall goal is to improve the development of guidelines through meaningful and equitable multi-stakeholder engagement, and subsequently to improve health outcomes and reduce inequities in health.

AB - Background: Stakeholder engagement has become widely accepted as a necessary component of guideline development and implementation. While frameworks for developing guidelines express the need for those potentially affected by guideline recommendations to be involved in their development, there is a lack of consensus on how this should be done in practice. Further, there is a lack of guidance on how to equitably and meaningfully engage multiple stakeholders. We aim to develop guidance for the meaningful and equitable engagement of multiple stakeholders in guideline development and implementation. Methods: This will be a multi-stage project. The first stage is to conduct a series of four systematic reviews. These will (1) describe existing guidance and methods for stakeholder engagement in guideline development and implementation, (2) characterize barriers and facilitators to stakeholder engagement in guideline development and implementation, (3) explore the impact of stakeholder engagement on guideline development and implementation, and (4) identify issues related to conflicts of interest when engaging multiple stakeholders in guideline development and implementation. Discussion: We will collaborate with our multiple and diverse stakeholders to develop guidance for multi-stakeholder engagement in guideline development and implementation. We will use the results of the systematic reviews to develop a candidate list of draft guidance recommendations and will seek broad feedback on the draft guidance via an online survey of guideline developers and external stakeholders. An invited group of representatives from all stakeholder groups will discuss the results of the survey at a consensus meeting which will inform the development of the final guidance papers. Our overall goal is to improve the development of guidelines through meaningful and equitable multi-stakeholder engagement, and subsequently to improve health outcomes and reduce inequities in health.

KW - Coproduction

KW - Equity

KW - Guidance

KW - Guidelines

KW - Integrated knowledge translation

KW - Stakeholder engagement

KW - Systematic reviews

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Protocol for the development of guidance for stakeholder engagement in health and healthcare guideline development and implementation

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Keywords

ASJC Scopus subject areas

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