@inproceedings{c059888765834e4d9bf0419c9798ffea,
title = "Patient Narratives Representing Patient Voices to Inform Research: A Pilot Qualitative Study",
abstract = "We are investigating the feasibility and effectiveness of establishing a library of patient narratives to inform patient-centered research in the U.S. Veterans Affairs organization. Using qualitative methods, we conducted a needs assessment of 15 researchers and then interviewed and videotaped 11 veterans with traumatic brain injury or diabetes. We developed a method for displaying the narratives to researchers modeled after a UK initiative called DIPEx and then performed preliminary usability testing. We found that it is not only feasible to provide researchers with patient narratives that could help guide their research, but that similar narratives might be useful to practitioners, health system decision makers, and other patients as well.",
keywords = "Consumer health, patient narratives, research design, usability",
author = "Ash, {Joan S.} and Erika Cottrell and Lauren Saxton and Lucas Newman and Eric Gebhardt and Mark Helfand",
note = "Publisher Copyright: {\textcopyright} 2015 The authors and IOS Press. All rights reserved.; International Conference on Information Technology and Communication in Health, ITCH 2015 ; Conference date: 26-02-2015 Through 01-03-2015",
year = "2015",
doi = "10.3233/978-1-61499-488-6-55",
language = "English (US)",
series = "Studies in Health Technology and Informatics",
publisher = "IOS Press",
pages = "55--60",
editor = "Karen Courtney and Alex Kuo and Omid Shabestari",
booktitle = "Driving Quality in Informatics",
}