Participant satisfaction with dementia prevention research: Results from Home-Based Assessment trial

Mary Sano, Susan Egelko, Carolyn W. Zhu, Clara Li, Michael C. Donohue, Steven Ferris, Jeffrey Kaye, James C. Mundt, Chung Kai Sun, Paul S. Aisen, Howard H. Feldman

Research output: Contribution to journalArticle

Abstract

INTRODUCTION: Little is known about factors affecting motivation and satisfaction of participants in dementia prevention trials. METHODS: A Research Satisfaction Survey was administered to 422 nondemented older adults who participated in the Home-Based Assessment trial. RESULTS: Overall satisfaction was high, with means of all individual items near to above a value of 3 on a scale from 1 (worst) to 4 (best). Greater satisfaction was associated with staff-administered interviews versus automated technologies. The most liked aspects of research participation were volunteerism, opportunity to challenge and improve mental function, and positive interactions with staff. The least liked aspect was repetitiveness of the assessments. Participants requested more contact with staff and other older adults and more feedback on performance. DISCUSSION: Older adults' participation in research was primarily motivated by altruism. Methodologies that facilitate human contact, encourage feedback and novelty of tasks should be incorporated into future trial design.

Original languageEnglish (US)
Pages (from-to)1397-1405
Number of pages9
JournalAlzheimer's & dementia : the journal of the Alzheimer's Association
Volume14
Issue number11
DOIs
StatePublished - Nov 1 2018

Keywords

  • Clinical Trial
  • Dementia prevention
  • Home-based assessment
  • Research satisfaction
  • Technology

ASJC Scopus subject areas

  • Epidemiology
  • Health Policy
  • Developmental Neuroscience
  • Clinical Neurology
  • Geriatrics and Gerontology
  • Cellular and Molecular Neuroscience
  • Psychiatry and Mental health

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    Sano, M., Egelko, S., Zhu, C. W., Li, C., Donohue, M. C., Ferris, S., Kaye, J., Mundt, J. C., Sun, C. K., Aisen, P. S., & Feldman, H. H. (2018). Participant satisfaction with dementia prevention research: Results from Home-Based Assessment trial. Alzheimer's & dementia : the journal of the Alzheimer's Association, 14(11), 1397-1405. https://doi.org/10.1016/j.jalz.2018.05.016