Parental perceptions of the outcome and meaning of normalization

Kathleen A. Knafl, Blair G. Darney, Agatha M. Gallo, Denise B. Angst

Research output: Contribution to journalArticle

32 Scopus citations

Abstract

The purpose of this secondary analysiswas to identify themeaning of normalization for parents of a child with a chronic genetic condition. The sample was comprised of 28 families (48 parents), selected to reflect two groups: Normalization Present (NP) and Normalization Absent (NA). Constant comparison analysis was used to identify themes characterizing parents' perceptions of the meaning of normalization. The meanings parents attributed to normalization reflected their evaluation of condition management, parenting role, and condition impact, with parents in the NP and NA groups demonstrating distinct patterns of meaning. These meaning patterns are discussed as an outcome of normalization. Providers can play a pivotal role in helping families achieve normalization by providing guidance on how to balance condition management with normal family life.

Original languageEnglish (US)
Pages (from-to)87-98
Number of pages12
JournalResearch in Nursing and Health
Volume33
Issue number2
DOIs
StatePublished - Apr 1 2010

Keywords

  • Family
  • Genetic condition
  • Normalization

ASJC Scopus subject areas

  • Nursing(all)

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