Parent Perceptions of Community Autism Spectrum Disorder Stigma: Measure Validation and Associations in a Multi-site Sample

Katharine E. Zuckerman, Olivia J. Lindly, Nuri M. Reyes, Alison E. Chavez, Maritza Cobian, Kristy Macias, Ann M. Reynolds, Kathryn A. Smith

Research output: Contribution to journalArticle

5 Scopus citations

Abstract

In this study we developed a brief, English/Spanish bilingual parent-reported scale of perceived community autism spectrum disorder (ASD) stigma and tested it in a multi-site sample of Latino and non-Latino white parents of children with ASD. Confirmatory factor analysis of the scale supported a single factor solution with 8 items showing good internal consistency. Regression modeling suggested that stigma score was associated with unmet ASD care needs but not therapy hours or therapy types. Child public insurance, parent nativity, number of children with ASD in the household, parent-reported ASD severity, and family structure, were associated with higher stigma score. The scale and the scale’s associations with service use may be useful to those attempting to measure or reduce ASD stigma.

Original languageEnglish (US)
Pages (from-to)3199-3209
Number of pages11
JournalJournal of autism and developmental disorders
Volume48
Issue number9
DOIs
StatePublished - Sep 1 2018

Keywords

  • Autism spectrum disorder
  • Developmental disability
  • Health care surveys
  • Healthcare disparities
  • Mental health services
  • Stigma

ASJC Scopus subject areas

  • Developmental and Educational Psychology

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