Mistrust Reported by US Mexicans with Cancer at End of Life and Hospice Enrollment

Margaret L. Rising, Dena Hassouneh, Patricia Berry, Kristin Lutz

Research output: Contribution to journalArticlepeer-review

Abstract

Hospice research with Hispanics mostly focuses on cultural barriers. Mindful of social justice and structural violence, we used critical grounded theory in a postcolonial theory framework to develop a grounded theory of hospice decision making in US Mexicans with terminal cancer. Findings suggest that hospice avoidance is predicted by mistrust, rather than culture, whereas hospice enrollers felt a sense of belonging. Cultural accommodation may do little to mitigate hospice avoidance rooted in discrimination-fueled mistrust. Future research with nondominant populations should employ research designs mitigating Eurocentric biases. Policy makers should consider concurrent therapy for nondominant populations with low trust in the health care system.

Original languageEnglish (US)
Pages (from-to)14-31
Number of pages18
JournalAdvances in Nursing Science
Volume44
Issue number1
DOIs
StatePublished - Jan 2021

Keywords

  • Hispanics
  • Mexicans
  • critical grounded theory
  • discrimination
  • end of life
  • family
  • hospice
  • mistrust
  • postcolonial theory
  • prognostic secrecy
  • racism
  • religion

ASJC Scopus subject areas

  • Nursing(all)

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