Measuring the parental, service and cost impacts of children with autistic spectrum disorder: A pilot study

Krister Järbrink; Eric Fombonne; Martin Knapp

doi:10.1023/A:1025058711465

Measuring the parental, service and cost impacts of children with autistic spectrum disorder: A pilot study

Krister Järbrink, Eric Fombonne, Martin Knapp

Research output: Contribution to journal › Article › peer-review

134 Scopus citations

Abstract

The aim of this study was to carry out a preliminary examination of a research instrument developed specifically to collect cost information for individuals with autistic spectrum disorder. There is very little cost information on children or adults with autism or autism-related disorder, and no study appears to have carried out a specific cost collection in this area. Although some global cost estimates can be made, little is known about the cost implications of parental burden. By using different techniques to collect indirect costs, the study outlines a functional methodology. Results from this small pilot study point to considerable economic burden for parents and give some indication of the associated costs of autistic spectrum disorder.

Original language	English (US)
Pages (from-to)	395-402
Number of pages	8
Journal	Journal of autism and developmental disorders
Volume	33
Issue number	4
DOIs	https://doi.org/10.1023/A:1025058711465
State	Published - Aug 2003
Externally published	Yes

Keywords

Autism
Burden of illness
Cost
Informal care

ASJC Scopus subject areas

Developmental and Educational Psychology

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10.1023/A:1025058711465

Cite this

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abstract = "The aim of this study was to carry out a preliminary examination of a research instrument developed specifically to collect cost information for individuals with autistic spectrum disorder. There is very little cost information on children or adults with autism or autism-related disorder, and no study appears to have carried out a specific cost collection in this area. Although some global cost estimates can be made, little is known about the cost implications of parental burden. By using different techniques to collect indirect costs, the study outlines a functional methodology. Results from this small pilot study point to considerable economic burden for parents and give some indication of the associated costs of autistic spectrum disorder.",

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note = "Funding Information: We are enormously grateful to Parents{\textquoteright} Autism Campaign for Education (PACE) and the parents who completed our questionnaires and agreed to be interviewed. This research was carried out without any funding, and there were no conflicts of interest.",

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AU - Knapp, Martin

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AB - The aim of this study was to carry out a preliminary examination of a research instrument developed specifically to collect cost information for individuals with autistic spectrum disorder. There is very little cost information on children or adults with autism or autism-related disorder, and no study appears to have carried out a specific cost collection in this area. Although some global cost estimates can be made, little is known about the cost implications of parental burden. By using different techniques to collect indirect costs, the study outlines a functional methodology. Results from this small pilot study point to considerable economic burden for parents and give some indication of the associated costs of autistic spectrum disorder.

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Measuring the parental, service and cost impacts of children with autistic spectrum disorder: A pilot study

Abstract

Keywords

ASJC Scopus subject areas

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