Measuring the parental, service and cost impacts of children with autistic spectrum disorder: A pilot study

Krister Järbrink, Eric Fombonne, Martin Knapp

Research output: Contribution to journalArticle

110 Scopus citations

Abstract

The aim of this study was to carry out a preliminary examination of a research instrument developed specifically to collect cost information for individuals with autistic spectrum disorder. There is very little cost information on children or adults with autism or autism-related disorder, and no study appears to have carried out a specific cost collection in this area. Although some global cost estimates can be made, little is known about the cost implications of parental burden. By using different techniques to collect indirect costs, the study outlines a functional methodology. Results from this small pilot study point to considerable economic burden for parents and give some indication of the associated costs of autistic spectrum disorder.

Original languageEnglish (US)
Pages (from-to)395-402
Number of pages8
JournalJournal of autism and developmental disorders
Volume33
Issue number4
DOIs
StatePublished - Aug 2003

Keywords

  • Autism
  • Burden of illness
  • Cost
  • Informal care

ASJC Scopus subject areas

  • Developmental and Educational Psychology

Fingerprint Dive into the research topics of 'Measuring the parental, service and cost impacts of children with autistic spectrum disorder: A pilot study'. Together they form a unique fingerprint.

  • Cite this