Maternal beliefs about autism: A link between intervention services and autism severity in White and Latino mothers

Nuri M. Reyes, Olivia J. Lindly, Alison E. Chavez, Ann Folan, Kristy Macias, Kathryn A. Smith, Ann Reynolds, Katharine Zuckerman

Research output: Contribution to journalArticle

2 Citations (Scopus)

Abstract

Variation in parental beliefs about Autism Spectrum Disorder (ASD) may impact subsequent service use profiles. This study aimed to examine (1) variation in beliefs about ASD among English language proficient White (EP-W) mothers, English language proficient Latino (EPL) mothers, and limited English language proficient Latino (LEP-L) mothers of children with ASD; (2) variation in beliefs about ASD in the context of the child's ASD severity, among EP White mothers, EP Latino others, and LEP Latino mothers; and (3) potential links between maternal beliefs about ASD and children's current ASD treatment. This multi-site study included 305 English or Spanish-speaking parents of children with ASD, ages 2–10 years, who completed a survey about their beliefs about their child's ASD, their child's ASD severity, and treatments used by their children. Results showed that mothers in the EP-W, EP-L, and LEP-L groups differed in their beliefs about viewing ASD as a mystery. Only maternal views of ASD severity in the EP-W group were linked to their beliefs about ASD. Finally, maternal beliefs about ASD having major consequences on their child's life, and ASD being a mystery were strongly associated with a child's use of ASD intervention services. These findings provide new knowledge of how maternal beliefs about ASD vary in linguistically diverse groups, how a child's ASD severity may influence such beliefs, and how maternal beliefs correlate with the amount of therapy children with ASD receive. Future research should address how these beliefs or views are formed, what factors influence them, or whether they are malleable. Understanding parents' beliefs or views of having a child with ASD can potentially help us increase use of ASD intervention services in families of children with ASD.

Original languageEnglish (US)
Pages (from-to)38-48
Number of pages11
JournalResearch in Autism Spectrum Disorders
Volume51
DOIs
StatePublished - Jul 1 2018

Fingerprint

Autistic Disorder
Hispanic Americans
Mothers
Language
Autism Spectrum Disorder
Parents

Keywords

  • ASD severity
  • Autism
  • Children
  • Intervention services use
  • Maternal beliefs about ASD

ASJC Scopus subject areas

  • Developmental and Educational Psychology
  • Clinical Psychology
  • Psychiatry and Mental health

Cite this

Maternal beliefs about autism : A link between intervention services and autism severity in White and Latino mothers. / Reyes, Nuri M.; Lindly, Olivia J.; Chavez, Alison E.; Folan, Ann; Macias, Kristy; Smith, Kathryn A.; Reynolds, Ann; Zuckerman, Katharine.

In: Research in Autism Spectrum Disorders, Vol. 51, 01.07.2018, p. 38-48.

Research output: Contribution to journalArticle

Reyes, Nuri M. ; Lindly, Olivia J. ; Chavez, Alison E. ; Folan, Ann ; Macias, Kristy ; Smith, Kathryn A. ; Reynolds, Ann ; Zuckerman, Katharine. / Maternal beliefs about autism : A link between intervention services and autism severity in White and Latino mothers. In: Research in Autism Spectrum Disorders. 2018 ; Vol. 51. pp. 38-48.
@article{2b1a633aab6e4321a86b1225bb9d1842,
title = "Maternal beliefs about autism: A link between intervention services and autism severity in White and Latino mothers",
abstract = "Variation in parental beliefs about Autism Spectrum Disorder (ASD) may impact subsequent service use profiles. This study aimed to examine (1) variation in beliefs about ASD among English language proficient White (EP-W) mothers, English language proficient Latino (EPL) mothers, and limited English language proficient Latino (LEP-L) mothers of children with ASD; (2) variation in beliefs about ASD in the context of the child's ASD severity, among EP White mothers, EP Latino others, and LEP Latino mothers; and (3) potential links between maternal beliefs about ASD and children's current ASD treatment. This multi-site study included 305 English or Spanish-speaking parents of children with ASD, ages 2–10 years, who completed a survey about their beliefs about their child's ASD, their child's ASD severity, and treatments used by their children. Results showed that mothers in the EP-W, EP-L, and LEP-L groups differed in their beliefs about viewing ASD as a mystery. Only maternal views of ASD severity in the EP-W group were linked to their beliefs about ASD. Finally, maternal beliefs about ASD having major consequences on their child's life, and ASD being a mystery were strongly associated with a child's use of ASD intervention services. These findings provide new knowledge of how maternal beliefs about ASD vary in linguistically diverse groups, how a child's ASD severity may influence such beliefs, and how maternal beliefs correlate with the amount of therapy children with ASD receive. Future research should address how these beliefs or views are formed, what factors influence them, or whether they are malleable. Understanding parents' beliefs or views of having a child with ASD can potentially help us increase use of ASD intervention services in families of children with ASD.",
keywords = "ASD severity, Autism, Children, Intervention services use, Maternal beliefs about ASD",
author = "Reyes, {Nuri M.} and Lindly, {Olivia J.} and Chavez, {Alison E.} and Ann Folan and Kristy Macias and Smith, {Kathryn A.} and Ann Reynolds and Katharine Zuckerman",
year = "2018",
month = "7",
day = "1",
doi = "10.1016/j.rasd.2018.04.001",
language = "English (US)",
volume = "51",
pages = "38--48",
journal = "Research in Autism Spectrum Disorders",
issn = "1750-9467",
publisher = "Elsevier BV",

}

TY - JOUR

T1 - Maternal beliefs about autism

T2 - A link between intervention services and autism severity in White and Latino mothers

AU - Reyes, Nuri M.

AU - Lindly, Olivia J.

AU - Chavez, Alison E.

AU - Folan, Ann

AU - Macias, Kristy

AU - Smith, Kathryn A.

AU - Reynolds, Ann

AU - Zuckerman, Katharine

PY - 2018/7/1

Y1 - 2018/7/1

N2 - Variation in parental beliefs about Autism Spectrum Disorder (ASD) may impact subsequent service use profiles. This study aimed to examine (1) variation in beliefs about ASD among English language proficient White (EP-W) mothers, English language proficient Latino (EPL) mothers, and limited English language proficient Latino (LEP-L) mothers of children with ASD; (2) variation in beliefs about ASD in the context of the child's ASD severity, among EP White mothers, EP Latino others, and LEP Latino mothers; and (3) potential links between maternal beliefs about ASD and children's current ASD treatment. This multi-site study included 305 English or Spanish-speaking parents of children with ASD, ages 2–10 years, who completed a survey about their beliefs about their child's ASD, their child's ASD severity, and treatments used by their children. Results showed that mothers in the EP-W, EP-L, and LEP-L groups differed in their beliefs about viewing ASD as a mystery. Only maternal views of ASD severity in the EP-W group were linked to their beliefs about ASD. Finally, maternal beliefs about ASD having major consequences on their child's life, and ASD being a mystery were strongly associated with a child's use of ASD intervention services. These findings provide new knowledge of how maternal beliefs about ASD vary in linguistically diverse groups, how a child's ASD severity may influence such beliefs, and how maternal beliefs correlate with the amount of therapy children with ASD receive. Future research should address how these beliefs or views are formed, what factors influence them, or whether they are malleable. Understanding parents' beliefs or views of having a child with ASD can potentially help us increase use of ASD intervention services in families of children with ASD.

AB - Variation in parental beliefs about Autism Spectrum Disorder (ASD) may impact subsequent service use profiles. This study aimed to examine (1) variation in beliefs about ASD among English language proficient White (EP-W) mothers, English language proficient Latino (EPL) mothers, and limited English language proficient Latino (LEP-L) mothers of children with ASD; (2) variation in beliefs about ASD in the context of the child's ASD severity, among EP White mothers, EP Latino others, and LEP Latino mothers; and (3) potential links between maternal beliefs about ASD and children's current ASD treatment. This multi-site study included 305 English or Spanish-speaking parents of children with ASD, ages 2–10 years, who completed a survey about their beliefs about their child's ASD, their child's ASD severity, and treatments used by their children. Results showed that mothers in the EP-W, EP-L, and LEP-L groups differed in their beliefs about viewing ASD as a mystery. Only maternal views of ASD severity in the EP-W group were linked to their beliefs about ASD. Finally, maternal beliefs about ASD having major consequences on their child's life, and ASD being a mystery were strongly associated with a child's use of ASD intervention services. These findings provide new knowledge of how maternal beliefs about ASD vary in linguistically diverse groups, how a child's ASD severity may influence such beliefs, and how maternal beliefs correlate with the amount of therapy children with ASD receive. Future research should address how these beliefs or views are formed, what factors influence them, or whether they are malleable. Understanding parents' beliefs or views of having a child with ASD can potentially help us increase use of ASD intervention services in families of children with ASD.

KW - ASD severity

KW - Autism

KW - Children

KW - Intervention services use

KW - Maternal beliefs about ASD

UR - http://www.scopus.com/inward/record.url?scp=85045394274&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85045394274&partnerID=8YFLogxK

U2 - 10.1016/j.rasd.2018.04.001

DO - 10.1016/j.rasd.2018.04.001

M3 - Article

AN - SCOPUS:85045394274

VL - 51

SP - 38

EP - 48

JO - Research in Autism Spectrum Disorders

JF - Research in Autism Spectrum Disorders

SN - 1750-9467

ER -