Abstract
We conducted a prospective study in the ICU of life-sustaining treatment and comfort care decisions over time in patients with end-stage liver disease (ESLD) from the perspectives of patients, family members, and healthcare professionals. Six patients with ESLD, 19 family members, and 122 professionals participated. The overarching theme describing the decision-making process was "on the train." Four sub-themes positioned patients and family members as passengers with limited control, unable to fully understand the decision-making process. Findings suggest that including patients and family members in non-immediate life-saving decisions and verifying early on their understanding may help to improve the decision-making process.
Original language | English (US) |
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Pages (from-to) | 518-532 |
Number of pages | 15 |
Journal | Research in Nursing and Health |
Volume | 35 |
Issue number | 5 |
DOIs | |
State | Published - Oct 2012 |
Keywords
- Decision-making
- Intensive care
- Life support care
- Liver diseases
- Qualitative research
ASJC Scopus subject areas
- General Nursing