Improving informed consent with minority participants

Results from researcher and community surveys

Sandra Crouse Quinn, Mary A. Garza, James Butler, Craig S. Fryer, Erica T. Casper, Stephen B. Thomas, David Barnard, Kevin H. Kim

Research output: Contribution to journalArticle

13 Citations (Scopus)

Abstract

Strengthening the informed consent process is one avenue for improving recruitment of minorities into research. This study examines that process from two different perspectives, that of researchers and that of African American and Latino community members. Through the use of two separate surveys, we compared strategies used by researchers with the preferences and attitudes of community members during the informed consent process. Our data suggest that researchers can improve the informed consent process by incorporating methods preferred by the community members along with methods shown in the literature for increasing comprehension. With this approach, the informed consent process may increase both participants' comprehension of the material and overall satisfaction, fostering greater trust in research and openness to future research opportunities.

Original languageEnglish (US)
Pages (from-to)44-55
Number of pages12
JournalJournal of Empirical Research on Human Research Ethics
Volume7
Issue number5
DOIs
StatePublished - Dec 2012
Externally publishedYes

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Informed Consent
Research Personnel
minority
community
comprehension
Foster Home Care
Hispanic Americans
Research
African Americans
Surveys and Questionnaires

Keywords

  • Improving informed consent
  • Informed consent
  • Minorities

ASJC Scopus subject areas

  • Education
  • Communication
  • Social Psychology
  • Law

Cite this

Improving informed consent with minority participants : Results from researcher and community surveys. / Quinn, Sandra Crouse; Garza, Mary A.; Butler, James; Fryer, Craig S.; Casper, Erica T.; Thomas, Stephen B.; Barnard, David; Kim, Kevin H.

In: Journal of Empirical Research on Human Research Ethics, Vol. 7, No. 5, 12.2012, p. 44-55.

Research output: Contribution to journalArticle

Quinn, Sandra Crouse ; Garza, Mary A. ; Butler, James ; Fryer, Craig S. ; Casper, Erica T. ; Thomas, Stephen B. ; Barnard, David ; Kim, Kevin H. / Improving informed consent with minority participants : Results from researcher and community surveys. In: Journal of Empirical Research on Human Research Ethics. 2012 ; Vol. 7, No. 5. pp. 44-55.
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