IMPACCT Kids' Care: A real-world example of stakeholder involvement in comparative effectiveness research

Sonja Likumahuwa-Ackman, Heather Angier, Aleksandra Sumic, Rose L. Harding, Erika K. Cottrell, Deborah J. Cohen, Christine A. Nelson, Timothy E. Burdick, Lorraine S. Wallace, Charles Gallia, Jennifer E. Devoe

Research output: Contribution to journalArticle

7 Scopus citations

Abstract

The Patient-Centered Outcomes Research Institute has accelerated conversations about the importance of actively engaging stakeholders in all aspects of comparative effectiveness research (CER). Other scientific disciplines have a history of stakeholder engagement, yet few empirical examples exist of how these stakeholders can inform and enrich CER. Here we present a case study which includes the methods used to engage stakeholders, what we learned from them, and how we incorporated their ideas in a CER project. We selected stakeholders from key groups, built relationships with them and collected their feedback through interviews, observation and ongoing meetings during the four research process phases: proposal development, adapting study methods, understanding the context and information technology tool design and refinement.

Original languageEnglish (US)
Pages (from-to)351-357
Number of pages7
JournalJournal of Comparative Effectiveness Research
Volume4
Issue number4
DOIs
StatePublished - Aug 1 2015

Keywords

  • community networks
  • comparative effectiveness research
  • consumer participation
  • patient engagement
  • patient-centered outcomes research

ASJC Scopus subject areas

  • Health Policy

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