IMPACCT Kids' Care: A real-world example of stakeholder involvement in comparative effectiveness research

Sonja Likumahuwa-Ackman, Heather Angier, Aleksandra Sumic, Rose L. Harding, Erika Cottrell, Deborah Cohen, Christine A. Nelson, Timothy E. Burdick, Lorraine S. Wallace, Charles Gallia, Jennifer Devoe

Research output: Contribution to journalArticle

6 Citations (Scopus)

Abstract

The Patient-Centered Outcomes Research Institute has accelerated conversations about the importance of actively engaging stakeholders in all aspects of comparative effectiveness research (CER). Other scientific disciplines have a history of stakeholder engagement, yet few empirical examples exist of how these stakeholders can inform and enrich CER. Here we present a case study which includes the methods used to engage stakeholders, what we learned from them, and how we incorporated their ideas in a CER project. We selected stakeholders from key groups, built relationships with them and collected their feedback through interviews, observation and ongoing meetings during the four research process phases: proposal development, adapting study methods, understanding the context and information technology tool design and refinement.

Original languageEnglish (US)
Pages (from-to)351-357
Number of pages7
JournalJournal of Comparative Effectiveness Research
Volume4
Issue number4
DOIs
StatePublished - Aug 1 2015

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Comparative Effectiveness Research
Patient Outcome Assessment
Observation
Interviews
Technology
Research

Keywords

  • community networks
  • comparative effectiveness research
  • consumer participation
  • patient engagement
  • patient-centered outcomes research

ASJC Scopus subject areas

  • Health Policy

Cite this

IMPACCT Kids' Care : A real-world example of stakeholder involvement in comparative effectiveness research. / Likumahuwa-Ackman, Sonja; Angier, Heather; Sumic, Aleksandra; Harding, Rose L.; Cottrell, Erika; Cohen, Deborah; Nelson, Christine A.; Burdick, Timothy E.; Wallace, Lorraine S.; Gallia, Charles; Devoe, Jennifer.

In: Journal of Comparative Effectiveness Research, Vol. 4, No. 4, 01.08.2015, p. 351-357.

Research output: Contribution to journalArticle

Likumahuwa-Ackman, Sonja ; Angier, Heather ; Sumic, Aleksandra ; Harding, Rose L. ; Cottrell, Erika ; Cohen, Deborah ; Nelson, Christine A. ; Burdick, Timothy E. ; Wallace, Lorraine S. ; Gallia, Charles ; Devoe, Jennifer. / IMPACCT Kids' Care : A real-world example of stakeholder involvement in comparative effectiveness research. In: Journal of Comparative Effectiveness Research. 2015 ; Vol. 4, No. 4. pp. 351-357.
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