Identifying and addressing theneeds of adolescents and young adults with cancer

Summary of an institute of medicineworkshop

Sharyl J. Nass, Lynda K. Beaupin, Wendy Demark-Wahnefried, Karen Fasciano, Patricia A. Ganz, Brandon Hayes-Lattin, Melissa M. Hudson, Brenda Nevidjon, Kevin C. Oeffinger, Ruth Rechis, Lisa C. Richardson, Nita L. Seibel, Ashley W. Smith

Research output: Contribution to journalArticle

95 Citations (Scopus)

Abstract

Cancer is the leading disease-related cause of death in adolescents and young adults (AYAs). This population faces many short-and long-term health and psychosocial consequences of cancer diagnosis and treatment, but many programs for cancer treatment, survivorship care, and psychosocial support do not focus on the specific needs of AYA cancer patients. Recognizing this health care disparity, the National Cancer Policy Forum of the Institute of Medicine convened a public workshop to examine the needs of AYA patients with cancer. Workshop participants identified many gaps and challenges in the care of AYA cancer patients and discussed potential strategies to address these needs. Suggestions included ways to improve access to care for AYAs, to deliver cancer care that better meets the medical and psychosocial needs of AYAs, to develop educational programs for providers who care for AYA cancer survivors, and to enhance the evidence base for AYAs with cancer by facilitating participation in research.

Original languageEnglish (US)
Pages (from-to)186-195
Number of pages10
JournalOncologist
Volume20
Issue number2
DOIs
StatePublished - Jan 7 2015

Fingerprint

Young Adult
Neoplasms
Healthcare Disparities
Education
National Academies of Science, Engineering, and Medicine (U.S.) Health and Medicine Division
Survivors
Cause of Death
Survival Rate
Health
Therapeutics
Research
Population

Keywords

  • Adolescent
  • Adverse effects
  • Cancer survivorship
  • Fertility preservation
  • Psychosocial aspects
  • Young adult

ASJC Scopus subject areas

  • Cancer Research
  • Oncology

Cite this

Identifying and addressing theneeds of adolescents and young adults with cancer : Summary of an institute of medicineworkshop. / Nass, Sharyl J.; Beaupin, Lynda K.; Demark-Wahnefried, Wendy; Fasciano, Karen; Ganz, Patricia A.; Hayes-Lattin, Brandon; Hudson, Melissa M.; Nevidjon, Brenda; Oeffinger, Kevin C.; Rechis, Ruth; Richardson, Lisa C.; Seibel, Nita L.; Smith, Ashley W.

In: Oncologist, Vol. 20, No. 2, 07.01.2015, p. 186-195.

Research output: Contribution to journalArticle

Nass, SJ, Beaupin, LK, Demark-Wahnefried, W, Fasciano, K, Ganz, PA, Hayes-Lattin, B, Hudson, MM, Nevidjon, B, Oeffinger, KC, Rechis, R, Richardson, LC, Seibel, NL & Smith, AW 2015, 'Identifying and addressing theneeds of adolescents and young adults with cancer: Summary of an institute of medicineworkshop', Oncologist, vol. 20, no. 2, pp. 186-195. https://doi.org/10.1634/theoncologist.2014-0265
Nass, Sharyl J. ; Beaupin, Lynda K. ; Demark-Wahnefried, Wendy ; Fasciano, Karen ; Ganz, Patricia A. ; Hayes-Lattin, Brandon ; Hudson, Melissa M. ; Nevidjon, Brenda ; Oeffinger, Kevin C. ; Rechis, Ruth ; Richardson, Lisa C. ; Seibel, Nita L. ; Smith, Ashley W. / Identifying and addressing theneeds of adolescents and young adults with cancer : Summary of an institute of medicineworkshop. In: Oncologist. 2015 ; Vol. 20, No. 2. pp. 186-195.
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