Identifying and addressing theneeds of adolescents and young adults with cancer: Summary of an institute of medicineworkshop

Sharyl J. Nass, Lynda K. Beaupin, Wendy Demark-Wahnefried, Karen Fasciano, Patricia A. Ganz, Brandon Hayes-Lattin, Melissa M. Hudson, Brenda Nevidjon, Kevin C. Oeffinger, Ruth Rechis, Lisa C. Richardson, Nita L. Seibel, Ashley W. Smith

Research output: Contribution to journalArticle

120 Scopus citations

Abstract

Cancer is the leading disease-related cause of death in adolescents and young adults (AYAs). This population faces many short-and long-term health and psychosocial consequences of cancer diagnosis and treatment, but many programs for cancer treatment, survivorship care, and psychosocial support do not focus on the specific needs of AYA cancer patients. Recognizing this health care disparity, the National Cancer Policy Forum of the Institute of Medicine convened a public workshop to examine the needs of AYA patients with cancer. Workshop participants identified many gaps and challenges in the care of AYA cancer patients and discussed potential strategies to address these needs. Suggestions included ways to improve access to care for AYAs, to deliver cancer care that better meets the medical and psychosocial needs of AYAs, to develop educational programs for providers who care for AYA cancer survivors, and to enhance the evidence base for AYAs with cancer by facilitating participation in research.

Original languageEnglish (US)
Pages (from-to)186-195
Number of pages10
JournalOncologist
Volume20
Issue number2
DOIs
StatePublished - Jan 7 2015

Keywords

  • Adolescent
  • Adverse effects
  • Cancer survivorship
  • Fertility preservation
  • Psychosocial aspects
  • Young adult

ASJC Scopus subject areas

  • Oncology
  • Cancer Research

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  • Cite this

    Nass, S. J., Beaupin, L. K., Demark-Wahnefried, W., Fasciano, K., Ganz, P. A., Hayes-Lattin, B., Hudson, M. M., Nevidjon, B., Oeffinger, K. C., Rechis, R., Richardson, L. C., Seibel, N. L., & Smith, A. W. (2015). Identifying and addressing theneeds of adolescents and young adults with cancer: Summary of an institute of medicineworkshop. Oncologist, 20(2), 186-195. https://doi.org/10.1634/theoncologist.2014-0265