How should nations measure the quality of end-of-life care for older adults? Recommendations for an international minimum data set

David J. Casarett, Joan Teno, Irene Higginson

Research output: Contribution to journalReview article

39 Scopus citations


Nations face numerous challenges in providing high-quality end-of-life care for their citizens, and an aging population that has a prolonged trajectory of decline and substantial needs for care magnifies these challenges. As nations begin to address these challenges, it will be essential to determine whether their responses are effective, but current national data collection efforts are sporadic, and data are often collected only for patients who receive care through certain funding programs or provider organizations or in selected sites of care. Therefore, governments do not know whether their citizens are receiving adequate care, whether current programs are improving care, or how their outcomes compare with those of other countries. This article describes the importance of developing national minimum data sets that can be used to assess the quality of end-of-life care that older adults receive and recommends key variables that these data sets should include.

Original languageEnglish (US)
Pages (from-to)1765-1771
Number of pages7
JournalJournal of the American Geriatrics Society
Issue number11
StatePublished - Nov 1 2006


ASJC Scopus subject areas

  • Geriatrics and Gerontology

Cite this