Home Care in the Last Year of Life: Family Member Perceptions of Unmet Need Associated With Last Place of Care

Aman Nanda, Meg Bourbonniere, Terri Wetle, Joan Teno

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

Objective: To examine the association of family members' perception about the adequacy of home health services at the last place of care before death. Design: Retrospective cross-sectional study. Mortality follow-back survey by telephone interview. Setting: Home health services. Participants: Bereaved family members or knowledgeable informants of deceased persons in 22 states. Measurements: Proxy perception of need of home health care during the last 12 months of decedent's life, whether the amount of care received was enough, and last place of care (ie, where the person spent at least 48 hours nearest to the time of death). Results: Of the 1578 interviews, 622 informants reported that decedents needed home health care in the last year of life. Among decedents needing home health care, 144 informants reported that the home health services provided did not meet their needs. After adjusting for age, gender, insurance, education, race, cause of death, functional status, and place of residence, decedents reported as not receiving enough home health care were 1.8 (95% CI 1.1-2.9) times more likely to die in a nursing home. Conclusion: The perception that home health services before death did not meet the decedent's needs may contribute to greater nursing home use.

Original languageEnglish (US)
Pages (from-to)21-25
Number of pages5
JournalJournal of the American Medical Directors Association
Volume11
Issue number1
DOIs
StatePublished - Jan 1 2010
Externally publishedYes

Fingerprint

Home Care Services
Health Services
Delivery of Health Care
Nursing Homes
Interviews
Proxy
Insurance
Cause of Death
Cross-Sectional Studies
Education
Mortality

Keywords

  • dying
  • Home care
  • quality of care
  • site of death

ASJC Scopus subject areas

  • Nursing(all)
  • Health Policy

Cite this

Home Care in the Last Year of Life : Family Member Perceptions of Unmet Need Associated With Last Place of Care. / Nanda, Aman; Bourbonniere, Meg; Wetle, Terri; Teno, Joan.

In: Journal of the American Medical Directors Association, Vol. 11, No. 1, 01.01.2010, p. 21-25.

Research output: Contribution to journalArticle

@article{7a1eb62a23ed43559b5d1cf0ea9b7118,
title = "Home Care in the Last Year of Life: Family Member Perceptions of Unmet Need Associated With Last Place of Care",
abstract = "Objective: To examine the association of family members' perception about the adequacy of home health services at the last place of care before death. Design: Retrospective cross-sectional study. Mortality follow-back survey by telephone interview. Setting: Home health services. Participants: Bereaved family members or knowledgeable informants of deceased persons in 22 states. Measurements: Proxy perception of need of home health care during the last 12 months of decedent's life, whether the amount of care received was enough, and last place of care (ie, where the person spent at least 48 hours nearest to the time of death). Results: Of the 1578 interviews, 622 informants reported that decedents needed home health care in the last year of life. Among decedents needing home health care, 144 informants reported that the home health services provided did not meet their needs. After adjusting for age, gender, insurance, education, race, cause of death, functional status, and place of residence, decedents reported as not receiving enough home health care were 1.8 (95{\%} CI 1.1-2.9) times more likely to die in a nursing home. Conclusion: The perception that home health services before death did not meet the decedent's needs may contribute to greater nursing home use.",
keywords = "dying, Home care, quality of care, site of death",
author = "Aman Nanda and Meg Bourbonniere and Terri Wetle and Joan Teno",
year = "2010",
month = "1",
day = "1",
doi = "10.1016/j.jamda.2009.07.011",
language = "English (US)",
volume = "11",
pages = "21--25",
journal = "Journal of the American Medical Directors Association",
issn = "1525-8610",
publisher = "Elsevier Inc.",
number = "1",

}

TY - JOUR

T1 - Home Care in the Last Year of Life

T2 - Family Member Perceptions of Unmet Need Associated With Last Place of Care

AU - Nanda, Aman

AU - Bourbonniere, Meg

AU - Wetle, Terri

AU - Teno, Joan

PY - 2010/1/1

Y1 - 2010/1/1

N2 - Objective: To examine the association of family members' perception about the adequacy of home health services at the last place of care before death. Design: Retrospective cross-sectional study. Mortality follow-back survey by telephone interview. Setting: Home health services. Participants: Bereaved family members or knowledgeable informants of deceased persons in 22 states. Measurements: Proxy perception of need of home health care during the last 12 months of decedent's life, whether the amount of care received was enough, and last place of care (ie, where the person spent at least 48 hours nearest to the time of death). Results: Of the 1578 interviews, 622 informants reported that decedents needed home health care in the last year of life. Among decedents needing home health care, 144 informants reported that the home health services provided did not meet their needs. After adjusting for age, gender, insurance, education, race, cause of death, functional status, and place of residence, decedents reported as not receiving enough home health care were 1.8 (95% CI 1.1-2.9) times more likely to die in a nursing home. Conclusion: The perception that home health services before death did not meet the decedent's needs may contribute to greater nursing home use.

AB - Objective: To examine the association of family members' perception about the adequacy of home health services at the last place of care before death. Design: Retrospective cross-sectional study. Mortality follow-back survey by telephone interview. Setting: Home health services. Participants: Bereaved family members or knowledgeable informants of deceased persons in 22 states. Measurements: Proxy perception of need of home health care during the last 12 months of decedent's life, whether the amount of care received was enough, and last place of care (ie, where the person spent at least 48 hours nearest to the time of death). Results: Of the 1578 interviews, 622 informants reported that decedents needed home health care in the last year of life. Among decedents needing home health care, 144 informants reported that the home health services provided did not meet their needs. After adjusting for age, gender, insurance, education, race, cause of death, functional status, and place of residence, decedents reported as not receiving enough home health care were 1.8 (95% CI 1.1-2.9) times more likely to die in a nursing home. Conclusion: The perception that home health services before death did not meet the decedent's needs may contribute to greater nursing home use.

KW - dying

KW - Home care

KW - quality of care

KW - site of death

UR - http://www.scopus.com/inward/record.url?scp=73249132037&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=73249132037&partnerID=8YFLogxK

U2 - 10.1016/j.jamda.2009.07.011

DO - 10.1016/j.jamda.2009.07.011

M3 - Article

C2 - 20129211

AN - SCOPUS:73249132037

VL - 11

SP - 21

EP - 25

JO - Journal of the American Medical Directors Association

JF - Journal of the American Medical Directors Association

SN - 1525-8610

IS - 1

ER -