TY - JOUR
T1 - Home Care in the Last Year of Life
T2 - Family Member Perceptions of Unmet Need Associated With Last Place of Care
AU - Nanda, Aman
AU - Bourbonniere, Meg
AU - Wetle, Terri
AU - Teno, Joan
N1 - Funding Information:
Funding for this research was provided by the Robert Wood Johnson Foundation (Grant #037188 ). The opinions and findings in this manuscript are those of the authors and do not necessarily represent the views of Robert Wood Johnson Foundation. The Robert Wood Johnson Foundation did not have any role in the design, conduct or interpretation of the research or in the review, approval, or control of the manuscript.
PY - 2010/1
Y1 - 2010/1
N2 - Objective: To examine the association of family members' perception about the adequacy of home health services at the last place of care before death. Design: Retrospective cross-sectional study. Mortality follow-back survey by telephone interview. Setting: Home health services. Participants: Bereaved family members or knowledgeable informants of deceased persons in 22 states. Measurements: Proxy perception of need of home health care during the last 12 months of decedent's life, whether the amount of care received was enough, and last place of care (ie, where the person spent at least 48 hours nearest to the time of death). Results: Of the 1578 interviews, 622 informants reported that decedents needed home health care in the last year of life. Among decedents needing home health care, 144 informants reported that the home health services provided did not meet their needs. After adjusting for age, gender, insurance, education, race, cause of death, functional status, and place of residence, decedents reported as not receiving enough home health care were 1.8 (95% CI 1.1-2.9) times more likely to die in a nursing home. Conclusion: The perception that home health services before death did not meet the decedent's needs may contribute to greater nursing home use.
AB - Objective: To examine the association of family members' perception about the adequacy of home health services at the last place of care before death. Design: Retrospective cross-sectional study. Mortality follow-back survey by telephone interview. Setting: Home health services. Participants: Bereaved family members or knowledgeable informants of deceased persons in 22 states. Measurements: Proxy perception of need of home health care during the last 12 months of decedent's life, whether the amount of care received was enough, and last place of care (ie, where the person spent at least 48 hours nearest to the time of death). Results: Of the 1578 interviews, 622 informants reported that decedents needed home health care in the last year of life. Among decedents needing home health care, 144 informants reported that the home health services provided did not meet their needs. After adjusting for age, gender, insurance, education, race, cause of death, functional status, and place of residence, decedents reported as not receiving enough home health care were 1.8 (95% CI 1.1-2.9) times more likely to die in a nursing home. Conclusion: The perception that home health services before death did not meet the decedent's needs may contribute to greater nursing home use.
KW - Home care
KW - dying
KW - quality of care
KW - site of death
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U2 - 10.1016/j.jamda.2009.07.011
DO - 10.1016/j.jamda.2009.07.011
M3 - Article
C2 - 20129211
AN - SCOPUS:73249132037
SN - 1525-8610
VL - 11
SP - 21
EP - 25
JO - Journal of the American Medical Directors Association
JF - Journal of the American Medical Directors Association
IS - 1
ER -