TY - JOUR
T1 - Feeding Problems of Neonatal Intensive Care Unit and Pediatric Intensive Care Unit Graduates
T2 - Perceptions of Parents and Providers
AU - Lutz, Kristin F.
N1 - Funding Information:
This work was funded by the Center for Patient-Centered Interventions (National Institute of Nursing Research; P20 NR008987, Sandra Ward, Principal Investigator) at the University of Wisconsin–Madison School of Nursing. I deeply appreciate the help of the participating families and professionals who generously shared their experiences and my colleagues: Dr. Karen Pridham; Dr. Susan Riesch; Kristen Panther, MS, RN; Dr. Ann B. Harris and the UW interdisciplinary feeding team; and the nursing students who contributed their time and expertise to this research.
PY - 2012/12
Y1 - 2012/12
N2 - There is little known about family experiences with pediatric feeding problems after neonatal intensive care unit (NICU) or pediatric intensive care unit (PICU) discharge. The study purposes were to better understand the family experiences with and consequences of feeding problems among NICU and PICU graduates after they transitioned home. Using a qualitative, descriptive design, 15 parents and 10 health professionals completed in-depth interviews. Data were analyzed using qualitative content analysis. Analysis revealed that feeding problems greatly impacted families. Education and resources were considered important but generally insufficient. Although some parent-provider partnerships were strong, many others were not, and at times, partnerships were fraught with conflict, communication problems, and lack of collaboration. System barriers and financial concerns escalated parents' distress, affecting their emotional responses. Parents' perceptions of discrepancies between their family situation and those of "normal" families violated their expectations. Understanding the perspectives of parents and providers regarding feeding problems common among NICU and PICU graduates is essential to developing effective interventions.
AB - There is little known about family experiences with pediatric feeding problems after neonatal intensive care unit (NICU) or pediatric intensive care unit (PICU) discharge. The study purposes were to better understand the family experiences with and consequences of feeding problems among NICU and PICU graduates after they transitioned home. Using a qualitative, descriptive design, 15 parents and 10 health professionals completed in-depth interviews. Data were analyzed using qualitative content analysis. Analysis revealed that feeding problems greatly impacted families. Education and resources were considered important but generally insufficient. Although some parent-provider partnerships were strong, many others were not, and at times, partnerships were fraught with conflict, communication problems, and lack of collaboration. System barriers and financial concerns escalated parents' distress, affecting their emotional responses. Parents' perceptions of discrepancies between their family situation and those of "normal" families violated their expectations. Understanding the perspectives of parents and providers regarding feeding problems common among NICU and PICU graduates is essential to developing effective interventions.
KW - Families
KW - Feeding problems
KW - NICU
KW - Qualitative research
KW - Transitional care
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U2 - 10.1053/j.nainr.2012.09.008
DO - 10.1053/j.nainr.2012.09.008
M3 - Article
AN - SCOPUS:84869222560
SN - 1527-3369
VL - 12
SP - 207
EP - 213
JO - Newborn and Infant Nursing Reviews
JF - Newborn and Infant Nursing Reviews
IS - 4
ER -