Family decision making in foregoing life-extending treatments

Virginia P. Tilden, Susan W. Tolle, Christine A. Nelson, Maye Thompson, Susan C. Eggman

Research output: Contribution to journalArticle

50 Scopus citations

Abstract

Families generally serve as surrogate decision makers for hospitalized dying patients who are unable to express their own decisions regarding life-prolonging treatments. The authors interviewed family members whose relatives died in the hospital following the withdrawal of aggressive medical treatments. Interviews were at two time periods: at 1 and 6 months post-patient death. Study data indicated a core set of phases which family members experienced in the process of arriving at the decision to withdraw treatment: recognition of futility, coming to terms, shouldering the surrogate role, and facing the question. At 6 months post decision, families reflected on the need for corroborating evidence that they had made the right decision, which the authors term seeking a triangulation of certainty. Advance directives and forthright communication from clinicians were two factors that most helped family members feel more positive about events.

Original languageEnglish (US)
Pages (from-to)426-442
Number of pages17
JournalJournal of Family Nursing
Volume5
Issue number4
DOIs
StatePublished - Jan 1 1999

ASJC Scopus subject areas

  • Community and Home Care
  • Family Practice

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