Abstract
IMPORTANCE: The Intermittent Exotropia Questionnaire (IXTQ) is a patient, proxy, and parental report of quality of life specific to children with intermittent exotropia. We refine the IXTQ using Rasch analysis to improve reliability and validity. OBSERVATION: Rasch analysis was performed on responses of 575 patients with intermittent exotropia enrolled from May 15, 2008, through July 24, 2013, and their parents from each of the 4 IXTQ health-related quality-of-life questionnaires (child 5 through 7 years of age and child 8 through 17 years of age, proxy, and parent questionnaires). Questionnaire performance and structure were confirmed in a separate cohort of 379 patients with intermittent exotropia. One item was removed from the 12-item child and proxy questionnaires, and response options in the 8- to 17-year-old child IXTQ and proxy IXTQ were combined into 3 response options for both questionnaires. Targeting was relatively poor for the child and proxy questionnaires. For the parent questionnaire, 3 subscales (psychosocial, function, and surgery) were evident. One item was removed from the psychosocial subscale. Resulting subscales had appropriate targeting. CONCLUSIONS AND RELEVANCE: The Rasch-revised IXTQ may be a useful instrument for determining how intermittent exotropia affects health-related quality of life of children with intermittent exotropia and their parents, particularly for cohort studies.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 461-465 |
| Number of pages | 5 |
| Journal | JAMA ophthalmology |
| Volume | 133 |
| Issue number | 4 |
| DOIs | |
| State | Published - Apr 1 2015 |
ASJC Scopus subject areas
- Ophthalmology
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Evaluation of the intermittent exotropia questionnaire using rasch analysis. / Leske, David A.; Holmes, Jonathan M.; Michele Melia, B.; Miller, Aaron; Jackson, Jorie; Suh, Donny; Hayes, Susan; Glaser, Stephen; Pacheco, Monica; Graham, Laura; Paysse, Evelyn; Yen, Kimberly; Hussein, Mohamed; Steinkuller, Paul; Coats, David; Kong, Lingkun; Donahue, Sean; Morrison, David; Kehler, Lori Ann; Estes, Robert; Fraine, Lisa; Petersen, David; McMurtrey, J.; Sala, Nicholas; Romeo, Jeanine; Crouch, Earl; Ventura, Gaylord; Mohney, Brian; Yamada, Tomohiko; Hatt, Sarah; Nielsen, Rebecca; Liebermann, Laura; Superstein, Rosanne; Belanger, Caroline; Fallaha, Nicole; Thibeault, Maryse; Ticho, Benjamin; Khammar, Alexander; Allen, Megan; Clausius, Deborah; Hoover, Darren; Huston, Pamela; Enyedi, Laura; Wallace, David; Yanovitch, Tammy; Jones, Sarah; Silbert, David; Matta, Noelle; Weaver, Richard; Hein, Eric; Cooke, Lori; Lambert, Scott; Lenhart, Phoebe; Hutchinson, Amy; Brower, Judy; Rutstein, Robert; Marsh-Tootle, Wendy; Weise, Katherine; Frazier, Marcela; Roegner, Ross; Cotter, Susan; Chen, Angela; Barnhardt, Carmen; Huang, Kristine; Handford, Paula; Patel, Reena; Heyman, Catherine; Chu, Raymond; Mesropian, Lernik; Parker, Susan; Tamkins, Susanna; Goldblum, Todd; Adams, Kenneth; Alfaro, Angela; Morse, Christie; Wheeler, Maynard; Christian, Melanie; Gail Summers, C.; Anderson, Jill; Bothun, Erick; De Becker, Inge; Downes, Sarah; Holleschau, Ann; Khuddus, Nausheen; Price, Tammy; Rahmani, Bahram; Yoon, Hawke; Kiesau, Yana; Hamidullah, Aaliyah; Roberts, Joan; Klem, Heather; Arthur, Brian; Macsween, Lesley; Astle, William; Romanchuk, Kenneth; Sanders, Emi; Duckman, Robert; Vricella, Marilyn; Meeder, Sara; Davis, Patricia; Rudaitis, Indre; Peterseim, Mae; Teed, Ronald; Bradham, Carol; Collins, Mary Louise; Jensen, Allison; Flanagan, Maureen; Karr, Daniel; Summers, Allison; Stout, Ann; Rauch, Paula; Pang, Yi; Mvududu, Anesu; Bartiss, Michael; McGaw, Tennille; Ogre, Faruk; Colon, Beth; Scheiman, Mitchell; Pollack, Karen; Ramsey, Jean; Christiansen, Stephen; Harb, Elise; Vazquez, Vanessa; Manny, Ruth E.; Fern, Karen D.; McDaniel, Catherine; Anderson, Heather; Do, Joan; Grigorian, Adriana; Dent, Rebecca; Friedman, Ilana; Koestenblatt, Evelyn; Robert La Roche, G.; Van Iderstine, Stephen; Repka, Michael X.; Park, Hee Jung; Liu, Xiaonong; Christoff, Alex; Tien, David; Garner, Samantha; London, Richard; Silver, Jayne; Lyon, Don; Roberts, Tawna; Wong, Vivian; Dunlap, Kristy; Gearinger, Matthew; Macdowell, Peter; O'Hara, Mary; Gandhi, Nandini; Traboulsi, Elias; Rychwalski, Paul; Crowe, Susan; Cheeseman, Edward; Bass, Michelle; Colburn, Jeffery; Dittman, Eileen; Longmuir, Susannah; Pfeifer, Wanda Ottar; Neely, Daniel; Whitaker, Michele; Kulp, Marjean; Toole, Andrew; Oechslin, Tamara; Dallas, Freda; Stevens, Nancy; Bradfield, Yasmin; Soderling, Barbara; Strominger, Mitchell; Klein, Shelley; Herlihy, Erin; Brady, Jennifer; Ostrow, Gregory; Kirkeby, Laura; Frempong, Tamiesha; Dave, Dipali; Pineles, Stacy; Esguerra, Marianne; Erzurum, Sergul; McOwen, Diana; Forbes, Brian; Binenbaum, Gil; Karp, Karen; Cronin, Tara; Capobianco, Cheryl; Peters, Robert; Hilbrands, Jan; Laby, Daniel; Martin, Heidi; Rodena, Jacqueline; Bade, Annette; Fasiuddin, Airaj; Spencer, Blair; Smith, Justin; Mellott, Mei; Kieser., Troy.
In: JAMA ophthalmology, Vol. 133, No. 4, 01.04.2015, p. 461-465.Research output: Contribution to journal › Article › peer-review
}
TY - JOUR
T1 - Evaluation of the intermittent exotropia questionnaire using rasch analysis
AU - Leske, David A.
AU - Holmes, Jonathan M.
AU - Michele Melia, B.
AU - Miller, Aaron
AU - Jackson, Jorie
AU - Suh, Donny
AU - Hayes, Susan
AU - Glaser, Stephen
AU - Pacheco, Monica
AU - Graham, Laura
AU - Paysse, Evelyn
AU - Yen, Kimberly
AU - Hussein, Mohamed
AU - Steinkuller, Paul
AU - Coats, David
AU - Kong, Lingkun
AU - Donahue, Sean
AU - Morrison, David
AU - Kehler, Lori Ann
AU - Estes, Robert
AU - Fraine, Lisa
AU - Petersen, David
AU - McMurtrey, J.
AU - Sala, Nicholas
AU - Romeo, Jeanine
AU - Crouch, Earl
AU - Ventura, Gaylord
AU - Mohney, Brian
AU - Yamada, Tomohiko
AU - Hatt, Sarah
AU - Nielsen, Rebecca
AU - Liebermann, Laura
AU - Superstein, Rosanne
AU - Belanger, Caroline
AU - Fallaha, Nicole
AU - Thibeault, Maryse
AU - Ticho, Benjamin
AU - Khammar, Alexander
AU - Allen, Megan
AU - Clausius, Deborah
AU - Hoover, Darren
AU - Huston, Pamela
AU - Enyedi, Laura
AU - Wallace, David
AU - Yanovitch, Tammy
AU - Jones, Sarah
AU - Silbert, David
AU - Matta, Noelle
AU - Weaver, Richard
AU - Hein, Eric
AU - Cooke, Lori
AU - Lambert, Scott
AU - Lenhart, Phoebe
AU - Hutchinson, Amy
AU - Brower, Judy
AU - Rutstein, Robert
AU - Marsh-Tootle, Wendy
AU - Weise, Katherine
AU - Frazier, Marcela
AU - Roegner, Ross
AU - Cotter, Susan
AU - Chen, Angela
AU - Barnhardt, Carmen
AU - Huang, Kristine
AU - Handford, Paula
AU - Patel, Reena
AU - Heyman, Catherine
AU - Chu, Raymond
AU - Mesropian, Lernik
AU - Parker, Susan
AU - Tamkins, Susanna
AU - Goldblum, Todd
AU - Adams, Kenneth
AU - Alfaro, Angela
AU - Morse, Christie
AU - Wheeler, Maynard
AU - Christian, Melanie
AU - Gail Summers, C.
AU - Anderson, Jill
AU - Bothun, Erick
AU - De Becker, Inge
AU - Downes, Sarah
AU - Holleschau, Ann
AU - Khuddus, Nausheen
AU - Price, Tammy
AU - Rahmani, Bahram
AU - Yoon, Hawke
AU - Kiesau, Yana
AU - Hamidullah, Aaliyah
AU - Roberts, Joan
AU - Klem, Heather
AU - Arthur, Brian
AU - Macsween, Lesley
AU - Astle, William
AU - Romanchuk, Kenneth
AU - Sanders, Emi
AU - Duckman, Robert
AU - Vricella, Marilyn
AU - Meeder, Sara
AU - Davis, Patricia
AU - Rudaitis, Indre
AU - Peterseim, Mae
AU - Teed, Ronald
AU - Bradham, Carol
AU - Collins, Mary Louise
AU - Jensen, Allison
AU - Flanagan, Maureen
AU - Karr, Daniel
AU - Summers, Allison
AU - Stout, Ann
AU - Rauch, Paula
AU - Pang, Yi
AU - Mvududu, Anesu
AU - Bartiss, Michael
AU - McGaw, Tennille
AU - Ogre, Faruk
AU - Colon, Beth
AU - Scheiman, Mitchell
AU - Pollack, Karen
AU - Ramsey, Jean
AU - Christiansen, Stephen
AU - Harb, Elise
AU - Vazquez, Vanessa
AU - Manny, Ruth E.
AU - Fern, Karen D.
AU - McDaniel, Catherine
AU - Anderson, Heather
AU - Do, Joan
AU - Grigorian, Adriana
AU - Dent, Rebecca
AU - Friedman, Ilana
AU - Koestenblatt, Evelyn
AU - Robert La Roche, G.
AU - Van Iderstine, Stephen
AU - Repka, Michael X.
AU - Park, Hee Jung
AU - Liu, Xiaonong
AU - Christoff, Alex
AU - Tien, David
AU - Garner, Samantha
AU - London, Richard
AU - Silver, Jayne
AU - Lyon, Don
AU - Roberts, Tawna
AU - Wong, Vivian
AU - Dunlap, Kristy
AU - Gearinger, Matthew
AU - Macdowell, Peter
AU - O'Hara, Mary
AU - Gandhi, Nandini
AU - Traboulsi, Elias
AU - Rychwalski, Paul
AU - Crowe, Susan
AU - Cheeseman, Edward
AU - Bass, Michelle
AU - Colburn, Jeffery
AU - Dittman, Eileen
AU - Longmuir, Susannah
AU - Pfeifer, Wanda Ottar
AU - Neely, Daniel
AU - Whitaker, Michele
AU - Kulp, Marjean
AU - Toole, Andrew
AU - Oechslin, Tamara
AU - Dallas, Freda
AU - Stevens, Nancy
AU - Bradfield, Yasmin
AU - Soderling, Barbara
AU - Strominger, Mitchell
AU - Klein, Shelley
AU - Herlihy, Erin
AU - Brady, Jennifer
AU - Ostrow, Gregory
AU - Kirkeby, Laura
AU - Frempong, Tamiesha
AU - Dave, Dipali
AU - Pineles, Stacy
AU - Esguerra, Marianne
AU - Erzurum, Sergul
AU - McOwen, Diana
AU - Forbes, Brian
AU - Binenbaum, Gil
AU - Karp, Karen
AU - Cronin, Tara
AU - Capobianco, Cheryl
AU - Peters, Robert
AU - Hilbrands, Jan
AU - Laby, Daniel
AU - Martin, Heidi
AU - Rodena, Jacqueline
AU - Bade, Annette
AU - Fasiuddin, Airaj
AU - Spencer, Blair
AU - Smith, Justin
AU - Mellott, Mei
AU - Kieser., Troy
PY - 2015/4/1
Y1 - 2015/4/1
N2 - IMPORTANCE: The Intermittent Exotropia Questionnaire (IXTQ) is a patient, proxy, and parental report of quality of life specific to children with intermittent exotropia. We refine the IXTQ using Rasch analysis to improve reliability and validity. OBSERVATION: Rasch analysis was performed on responses of 575 patients with intermittent exotropia enrolled from May 15, 2008, through July 24, 2013, and their parents from each of the 4 IXTQ health-related quality-of-life questionnaires (child 5 through 7 years of age and child 8 through 17 years of age, proxy, and parent questionnaires). Questionnaire performance and structure were confirmed in a separate cohort of 379 patients with intermittent exotropia. One item was removed from the 12-item child and proxy questionnaires, and response options in the 8- to 17-year-old child IXTQ and proxy IXTQ were combined into 3 response options for both questionnaires. Targeting was relatively poor for the child and proxy questionnaires. For the parent questionnaire, 3 subscales (psychosocial, function, and surgery) were evident. One item was removed from the psychosocial subscale. Resulting subscales had appropriate targeting. CONCLUSIONS AND RELEVANCE: The Rasch-revised IXTQ may be a useful instrument for determining how intermittent exotropia affects health-related quality of life of children with intermittent exotropia and their parents, particularly for cohort studies.
AB - IMPORTANCE: The Intermittent Exotropia Questionnaire (IXTQ) is a patient, proxy, and parental report of quality of life specific to children with intermittent exotropia. We refine the IXTQ using Rasch analysis to improve reliability and validity. OBSERVATION: Rasch analysis was performed on responses of 575 patients with intermittent exotropia enrolled from May 15, 2008, through July 24, 2013, and their parents from each of the 4 IXTQ health-related quality-of-life questionnaires (child 5 through 7 years of age and child 8 through 17 years of age, proxy, and parent questionnaires). Questionnaire performance and structure were confirmed in a separate cohort of 379 patients with intermittent exotropia. One item was removed from the 12-item child and proxy questionnaires, and response options in the 8- to 17-year-old child IXTQ and proxy IXTQ were combined into 3 response options for both questionnaires. Targeting was relatively poor for the child and proxy questionnaires. For the parent questionnaire, 3 subscales (psychosocial, function, and surgery) were evident. One item was removed from the psychosocial subscale. Resulting subscales had appropriate targeting. CONCLUSIONS AND RELEVANCE: The Rasch-revised IXTQ may be a useful instrument for determining how intermittent exotropia affects health-related quality of life of children with intermittent exotropia and their parents, particularly for cohort studies.
UR - http://www.scopus.com/inward/record.url?scp=84928248681&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84928248681&partnerID=8YFLogxK
U2 - 10.1001/jamaophthalmol.2014.5622
DO - 10.1001/jamaophthalmol.2014.5622
M3 - Article
C2 - 25634146
AN - SCOPUS:84928248681
VL - 133
SP - 461
EP - 465
JO - JAMA Ophthalmology
JF - JAMA Ophthalmology
SN - 2168-6165
IS - 4
ER -