Ethics rounds

Trisomy 18 and complex congenital heart disease: Seeking the threshold benefit

Renee D. Boss, Kathryn Holmes, Janyne Althaus, Cynda H. Rushton, Hunter McNee, Theresa McNee

Research output: Contribution to journalArticle

20 Citations (Scopus)

Abstract

A prenatal diagnosis of ductal-dependent, complex congenital heart disease was made in a fetus with trisomy 18. The parents requested that the genetic diagnosis be excluded from all medical and surgical decision-making and that all life-prolonging therapies be made available to their infant. There was conflict among the medical team about what threshold of neonatal benefit could outweigh maternal and neonatal treatment burdens. A prenatal ethics consultation was requested. Pediatrics 2013;132:161-165.

Original languageEnglish (US)
Pages (from-to)161-165
Number of pages5
JournalPediatrics
Volume132
Issue number1
DOIs
StatePublished - Jul 1 2013

Fingerprint

Ethics
Heart Diseases
Ethics Consultation
Prenatal Diagnosis
Fetus
Parents
Mothers
Pediatrics
Therapeutics
Trisomy 18
Conflict (Psychology)
Clinical Decision-Making
Decision Making
Burden
Therapy

Keywords

  • Cardiac surgery
  • Decision-making
  • Ethics
  • Trisomy 18

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Arts and Humanities (miscellaneous)
  • Medicine(all)

Cite this

Ethics rounds : Trisomy 18 and complex congenital heart disease: Seeking the threshold benefit. / Boss, Renee D.; Holmes, Kathryn; Althaus, Janyne; Rushton, Cynda H.; McNee, Hunter; McNee, Theresa.

In: Pediatrics, Vol. 132, No. 1, 01.07.2013, p. 161-165.

Research output: Contribution to journalArticle

Boss, Renee D. ; Holmes, Kathryn ; Althaus, Janyne ; Rushton, Cynda H. ; McNee, Hunter ; McNee, Theresa. / Ethics rounds : Trisomy 18 and complex congenital heart disease: Seeking the threshold benefit. In: Pediatrics. 2013 ; Vol. 132, No. 1. pp. 161-165.
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