TY - JOUR
T1 - Estimating the need for palliative care at the population level
T2 - A cross-national study in 12 countries
AU - Morin, Lucas
AU - Aubry, Régis
AU - Frova, Luisa
AU - MacLeod, Roderick
AU - Wilson, Donna M.
AU - Loucka, Martin
AU - Csikos, Agnes
AU - Ruiz-Ramos, Miguel
AU - Cardenas-Turanzas, Marylou
AU - Rhee, Yong Joo
AU - Teno, Joan
AU - Öhlén, Joakim
AU - Deliens, Luc
AU - Houttekier, Dirk
AU - Cohen, Joachim
N1 - Publisher Copyright:
© 2016, © The Author(s) 2016.
PY - 2017/6/1
Y1 - 2017/6/1
N2 - Background: To implement the appropriate services and develop adequate interventions, detailed estimates of the needs for palliative care in the population are needed. Aim: To estimate the proportion of decedents potentially in need of palliative care across 12 European and non-European countries. Design: This is a cross-sectional study using death certificate data. Setting/participants: All adults (⩾18 years) who died in 2008 in Belgium, Czech Republic, France, Hungary, Italy, Spain (Andalusia, 2010), Sweden, Canada, the United States (2007), Korea, Mexico, and New Zealand (N = 4,908,114). Underlying causes of death were used to apply three estimation methods developed by Rosenwax et al., the French National Observatory on End-of-Life Care, and Murtagh et al., respectively. Results: The proportion of individuals who died from diseases that indicate palliative care needs at the end of life ranged from 38% to 74%. We found important cross-country variation: the population potentially in need of palliative care was lower in Mexico (24%–58%) than in the United States (41%–76%) and varied from 31%–83% in Hungary to 42%–79% in Spain. Irrespective of the estimation methods, female sex and higher age were independently associated with the likelihood of being in need of palliative care near the end of life. Home and nursing home were the two places of deaths with the highest prevalence of palliative care needs. Conclusion: These estimations of the size of the population potentially in need of palliative care provide robust indications of the challenge countries are facing if they want to seriously address palliative care needs at the population level.
AB - Background: To implement the appropriate services and develop adequate interventions, detailed estimates of the needs for palliative care in the population are needed. Aim: To estimate the proportion of decedents potentially in need of palliative care across 12 European and non-European countries. Design: This is a cross-sectional study using death certificate data. Setting/participants: All adults (⩾18 years) who died in 2008 in Belgium, Czech Republic, France, Hungary, Italy, Spain (Andalusia, 2010), Sweden, Canada, the United States (2007), Korea, Mexico, and New Zealand (N = 4,908,114). Underlying causes of death were used to apply three estimation methods developed by Rosenwax et al., the French National Observatory on End-of-Life Care, and Murtagh et al., respectively. Results: The proportion of individuals who died from diseases that indicate palliative care needs at the end of life ranged from 38% to 74%. We found important cross-country variation: the population potentially in need of palliative care was lower in Mexico (24%–58%) than in the United States (41%–76%) and varied from 31%–83% in Hungary to 42%–79% in Spain. Irrespective of the estimation methods, female sex and higher age were independently associated with the likelihood of being in need of palliative care near the end of life. Home and nursing home were the two places of deaths with the highest prevalence of palliative care needs. Conclusion: These estimations of the size of the population potentially in need of palliative care provide robust indications of the challenge countries are facing if they want to seriously address palliative care needs at the population level.
KW - Palliative care
KW - cause of death
KW - end-of-life care
KW - needs assessment
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U2 - 10.1177/0269216316671280
DO - 10.1177/0269216316671280
M3 - Article
C2 - 27683475
AN - SCOPUS:85019001255
SN - 0269-2163
VL - 31
SP - 526
EP - 536
JO - Palliative Medicine
JF - Palliative Medicine
IS - 6
ER -