TY - JOUR
T1 - Epidemiology of ACHD
T2 - What Has Changed and What is Changing?
AU - Khan, Abigail
AU - Gurvitz, Michelle
N1 - Publisher Copyright:
© 2018
PY - 2018/9/1
Y1 - 2018/9/1
N2 - The worldwide population of adults with congenital heart disease (ACHD) has grown steadily over the last few decades, estimated at approximately 1.4 million people in 2010 (Gilboa et al., 2016). Innovations in surgical and medical treatment of children with congenital heart disease (CCHD) have dramatically improved survival, resulting in a growing population of ACHD patients with unique health needs (Marelli et al., 2014; Khairy et al., 2010). This growth has significant implications for health care providers and health systems, which must adapt to meet the demands of caring for this complex population. Obtaining an accurate estimate of the population prevalence of ACHD is essential to define the population and to better advocate for resources to meet the needs of this group. While there is a general consensus that the prevalence of CCHD at birth is about 8 per 1000 live births, defining the prevalence in the adult population is a more challenging endeavor (van der Linde et al., 2011).
AB - The worldwide population of adults with congenital heart disease (ACHD) has grown steadily over the last few decades, estimated at approximately 1.4 million people in 2010 (Gilboa et al., 2016). Innovations in surgical and medical treatment of children with congenital heart disease (CCHD) have dramatically improved survival, resulting in a growing population of ACHD patients with unique health needs (Marelli et al., 2014; Khairy et al., 2010). This growth has significant implications for health care providers and health systems, which must adapt to meet the demands of caring for this complex population. Obtaining an accurate estimate of the population prevalence of ACHD is essential to define the population and to better advocate for resources to meet the needs of this group. While there is a general consensus that the prevalence of CCHD at birth is about 8 per 1000 live births, defining the prevalence in the adult population is a more challenging endeavor (van der Linde et al., 2011).
KW - Adult congenital heart disease
KW - Epidemiology
KW - Surveillance
UR - http://www.scopus.com/inward/record.url?scp=85053119280&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85053119280&partnerID=8YFLogxK
U2 - 10.1016/j.pcad.2018.08.004
DO - 10.1016/j.pcad.2018.08.004
M3 - Review article
C2 - 30125582
AN - SCOPUS:85053119280
SN - 0033-0620
VL - 61
SP - 275
EP - 281
JO - Progress in Cardiovascular Diseases
JF - Progress in Cardiovascular Diseases
IS - 3-4
ER -