Engagement practices that join scientific methods with community wisdom: Designing a patient-centered, randomized control trial with a Pacific Islander community

Pearl Anna Mcelfish, Peter A. Goulden, Zoran Bursac, Jonell Hudson, Rachel S. Purvis, Karen H. Kim Yeary, Nia Aitaoto, Peter Kohler

Research output: Contribution to journalArticle

11 Citations (Scopus)

Abstract

This article illustrates how a collaborative research process can successfully engage an underserved minority community to address health disparities. Pacific Islanders, including the Marshallese, are one of the fastest growing US populations. They face significant health disparities, including extremely high rates of type 2 diabetes. This article describes the engagement process of designing patient-centered outcomes research with Marshallese stakeholders, highlighting the specific influences of their input on a randomized control trial to address diabetes. Over 18 months, an interdisciplinary research team used community-based participatory principles to conduct patient-engaged outcomes research that involved 31 stakeholders in all aspects of research design, from defining the research question to making decisions about budgets and staffing. This required academic researcher flexibility, but yielded a design linking scientific methodology with community wisdom.

Original languageEnglish (US)
JournalNursing Inquiry
DOIs
StateAccepted/In press - 2016
Externally publishedYes

Fingerprint

Patient Outcome Assessment
Research
Health
Budgets
Type 2 Diabetes Mellitus
Decision Making
Research Design
Research Personnel
Outcome Assessment (Health Care)
Population

Keywords

  • Community-based participatory research
  • Diabetes
  • Health disparities
  • Marshallese
  • Pacific Islanders
  • Patient-centered outcomes research

ASJC Scopus subject areas

  • Nursing(all)

Cite this

Engagement practices that join scientific methods with community wisdom : Designing a patient-centered, randomized control trial with a Pacific Islander community. / Mcelfish, Pearl Anna; Goulden, Peter A.; Bursac, Zoran; Hudson, Jonell; Purvis, Rachel S.; Kim Yeary, Karen H.; Aitaoto, Nia; Kohler, Peter.

In: Nursing Inquiry, 2016.

Research output: Contribution to journalArticle

Mcelfish, Pearl Anna ; Goulden, Peter A. ; Bursac, Zoran ; Hudson, Jonell ; Purvis, Rachel S. ; Kim Yeary, Karen H. ; Aitaoto, Nia ; Kohler, Peter. / Engagement practices that join scientific methods with community wisdom : Designing a patient-centered, randomized control trial with a Pacific Islander community. In: Nursing Inquiry. 2016.
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