TY - JOUR
T1 - Enabling our instruments
T2 - Accommodation, universal design, and access to participation in research
AU - Meyers, Allan R.
AU - Andresen, Elena M.
N1 - Funding Information:
Supported, in part, by a cooperative agreement between the Disabilities Prevention Program (now, the Office on Disability and Health), US Centers for Disease Control and Prevention (CDC) and the Commonwealth of Massachusetts's Department of Public Health (contract no. U59/CCU103370), by the National Institute on Disability and Rehabilitation Research (NIDRR), Office of Special Education and Rehabilitative Services, US Department of Education (grants no. H133660037, H133N50014), by the Center for Health Economics, Outcomes, and Quality Research of the Bedford (MA) Veterans Affairs Medical Center, by the Department of Health Services, Boston University School of Public Health, by the CDC through the Saint Louis University Prevention Research Center (grant no. U48/CCU710806), CDC Conference Grant (grant no. R13/CCR717040-01), and by the American Association of Spinal Cord Injury Psychologists and Social Workers (AASCIPSW). The article reflects only the authors' opinions and does not necessarily reflect the official positions of AASCIPSW, CDC, NIDRR, the Department of Veterans Affairs, Boston University, Saint Louis University, the Boston Medical Center, or the Massachusetts Department of Public Health.
PY - 2000
Y1 - 2000
N2 - The objective of this article is to discuss problems related to full participation of people with disabilities in health services and health outcomes research. To show the problems and to suggest solutions, we offer examples from personal research experiences (ours and colleagues'), as well as from published literature, requirements of research agencies, web and news sources, and research participants' feedback. A combination of formal and informal processes can be used to enable future instruments and methods. There are ethical, legal, and methodologic imperatives for research participation enablement. (C) 2000 by the American Congress of Rehabilitation Medicine.
AB - The objective of this article is to discuss problems related to full participation of people with disabilities in health services and health outcomes research. To show the problems and to suggest solutions, we offer examples from personal research experiences (ours and colleagues'), as well as from published literature, requirements of research agencies, web and news sources, and research participants' feedback. A combination of formal and informal processes can be used to enable future instruments and methods. There are ethical, legal, and methodologic imperatives for research participation enablement. (C) 2000 by the American Congress of Rehabilitation Medicine.
KW - Disabled persons
KW - Outcome assessment (health care)
KW - Rehabilitation
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U2 - 10.1053/apmr.2000.20618
DO - 10.1053/apmr.2000.20618
M3 - Article
C2 - 11128904
AN - SCOPUS:0033635484
VL - 81
SP - S5-S9
JO - Archives of Physical Medicine and Rehabilitation
JF - Archives of Physical Medicine and Rehabilitation
SN - 0003-9993
IS - 12 SUPPL. 2
ER -