Abstract
Background: Young adults (YA) who have experienced early psychosis (EP) have valuable information about their recovery process yet are often left out of research. Objectives: We used a community-based participatory research (CBPR) approach in partnership with the Early Assessment and Support Alliance (EASA) EP program and Portland State University to develop a peer-driven, web-based, recovery resource. Methods: We used our CBPR process to collaboratively develop the resource and conducted an iterative usability study to test and refine it. Lessons Learned: The resource was well-received and acces-sible. YA partners emphasize the importance of being prepared to learn about research and one’s self, being open to new experiences, and how being co-researchers can help with processing EP experiences for the benefit of one’s self and peers. Conclusions: Peer involvement in intervention development may increase usability. It benefits YA and adult co-researchers. We strongly recommend including YA who have experienced EP as co-researchers.
Original language | English (US) |
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Pages (from-to) | 471-480 |
Number of pages | 10 |
Journal | Progress in Community Health Partnerships: Research, Education, and Action |
Volume | 14 |
Issue number | 4 |
DOIs | |
State | Published - Dec 1 2020 |
Keywords
- Community-based participatory research
- Early psychosis
- Peers
- Web accessibility
- Web-based intervention
- Young adults
ASJC Scopus subject areas
- Health(social science)
- Education
- Sociology and Political Science