Do advance directives provide instructions that direct care?

Joan Teno, Sandra Licks, Joanne Lynn, Neil Wenger, Alfred F. Connors, Russell S. Phillips, Mary Ann O'Connor, Donald P. Murphy, William J. Fulkerson, Norman Desbiens, William A. Knaus

Research output: Contribution to journalArticle

299 Citations (Scopus)

Abstract

OBJECTIVE: To evaluate whether the lack of effect of advance directives (ADs) on decision-making in SUPPORT might arise, in part, from the content of the actual documents. DESIGN: Advance directives placed in the medical records were abstracted for date of completion and content of additional written instructions. We examined directives with instructions to forgo life- sustaining treatment in the current state of health to determine whether care given was consistent with preferences noted in those directives. SETTINGS: Five teaching hospitals in the United States. PATIENTS: A total of 4804 patients with at least one of nine serious illnesses were admitted to five teaching hospitals in the 2 years following implementation of the Patient Self-Determination Act. Patients were part of a randomized controlled trial to improve decision-making and outcomes. RESULTS: From the medical records of 4804 patients, a total of 688 directives were collected from 569 patients. The majority of these directives (66%) were durable powers of attorney; in addition, 31% were standard living wills or other forms of written instructions (3%). Only 90 documents (13%) provided additional instructions for medical care beyond naming a proxy or stating the preferences of a standard living will. Only 36 contained specific instructions about the use of life-sustaining medical treatment, and only 22 of these directed forgoing life-sustaining treatment in the patient's current situation. For these, the treatment course was consistent with the instruction for nine patients. In two cases, patients may have changed an inconsistent directive alter discussion with hospital staff. CONCLUSION: Advance directives placed in the medical records of seriously ill patients often did not guide medical decision-making beyond naming a healthcare proxy or documenting general preferences in a standard living will format. Even when specific instructions were present, care was potentially inconsistent in half of the cases.

Original languageEnglish (US)
Pages (from-to)508-512
Number of pages5
JournalJournal of the American Geriatrics Society
Volume45
Issue number4
DOIs
StatePublished - Jan 1 1997
Externally publishedYes

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Advance Directives
Living Wills
Medical Records
Proxy
Teaching Hospitals
Decision Making
Lawyers
Personal Autonomy
Therapeutics
Randomized Controlled Trials
Delivery of Health Care

ASJC Scopus subject areas

  • Geriatrics and Gerontology

Cite this

Teno, J., Licks, S., Lynn, J., Wenger, N., Connors, A. F., Phillips, R. S., ... Knaus, W. A. (1997). Do advance directives provide instructions that direct care? Journal of the American Geriatrics Society, 45(4), 508-512. https://doi.org/10.1111/j.1532-5415.1997.tb05179.x

Do advance directives provide instructions that direct care? / Teno, Joan; Licks, Sandra; Lynn, Joanne; Wenger, Neil; Connors, Alfred F.; Phillips, Russell S.; O'Connor, Mary Ann; Murphy, Donald P.; Fulkerson, William J.; Desbiens, Norman; Knaus, William A.

In: Journal of the American Geriatrics Society, Vol. 45, No. 4, 01.01.1997, p. 508-512.

Research output: Contribution to journalArticle

Teno, J, Licks, S, Lynn, J, Wenger, N, Connors, AF, Phillips, RS, O'Connor, MA, Murphy, DP, Fulkerson, WJ, Desbiens, N & Knaus, WA 1997, 'Do advance directives provide instructions that direct care?', Journal of the American Geriatrics Society, vol. 45, no. 4, pp. 508-512. https://doi.org/10.1111/j.1532-5415.1997.tb05179.x
Teno, Joan ; Licks, Sandra ; Lynn, Joanne ; Wenger, Neil ; Connors, Alfred F. ; Phillips, Russell S. ; O'Connor, Mary Ann ; Murphy, Donald P. ; Fulkerson, William J. ; Desbiens, Norman ; Knaus, William A. / Do advance directives provide instructions that direct care?. In: Journal of the American Geriatrics Society. 1997 ; Vol. 45, No. 4. pp. 508-512.
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abstract = "OBJECTIVE: To evaluate whether the lack of effect of advance directives (ADs) on decision-making in SUPPORT might arise, in part, from the content of the actual documents. DESIGN: Advance directives placed in the medical records were abstracted for date of completion and content of additional written instructions. We examined directives with instructions to forgo life- sustaining treatment in the current state of health to determine whether care given was consistent with preferences noted in those directives. SETTINGS: Five teaching hospitals in the United States. PATIENTS: A total of 4804 patients with at least one of nine serious illnesses were admitted to five teaching hospitals in the 2 years following implementation of the Patient Self-Determination Act. Patients were part of a randomized controlled trial to improve decision-making and outcomes. RESULTS: From the medical records of 4804 patients, a total of 688 directives were collected from 569 patients. The majority of these directives (66{\%}) were durable powers of attorney; in addition, 31{\%} were standard living wills or other forms of written instructions (3{\%}). Only 90 documents (13{\%}) provided additional instructions for medical care beyond naming a proxy or stating the preferences of a standard living will. Only 36 contained specific instructions about the use of life-sustaining medical treatment, and only 22 of these directed forgoing life-sustaining treatment in the patient's current situation. For these, the treatment course was consistent with the instruction for nine patients. In two cases, patients may have changed an inconsistent directive alter discussion with hospital staff. CONCLUSION: Advance directives placed in the medical records of seriously ill patients often did not guide medical decision-making beyond naming a healthcare proxy or documenting general preferences in a standard living will format. Even when specific instructions were present, care was potentially inconsistent in half of the cases.",
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