Development of the HD-Teen Inventory

Martha Driessnack, Janet K. Williams, J. Jackson Barnette, Kathleen J. Sparbel, Jane S. Paulsen

Research output: Contribution to journalArticlepeer-review

5 Scopus citations


Adolescents, who have a parent with Huntington Disease (HD), not only are at genetic risk for HD but also are witness to its onset and devastating clinical progression as their parent declines. To date, no mechanism has been developed to direct health care providers to the atypical adolescent experiences of these teens. The purpose of this report is to describe the process of developing the HD-Teen Inventory clinical assessment tool. Forty-eight teens and young adults from 19 U.S. states participated in the evaluation of the HD-Teen Inventory tool. Following item analysis, the number of items was reduced and item frequency and reaction scales were combined, based on the strong correlation (r = .94). The resultant tool contains 15 inventory and 2 open-ended response items. The HD-Teen Inventory emerged as a more compact and efficient tool for identifying the most salient concerns of at-risk teens in HD families in research and/or clinical practice.

Original languageEnglish (US)
Pages (from-to)213-223
Number of pages11
JournalClinical Nursing Research
Issue number2
StatePublished - May 2012
Externally publishedYes


  • HD-Teen Inventory
  • Huntington disease
  • adolescence
  • field test

ASJC Scopus subject areas

  • Nursing(all)


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