Development of the HD-Teen Inventory

Martha Driessnack, Janet K. Williams, J. Jackson Barnette, Kathleen J. Sparbel, Jane S. Paulsen

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

Adolescents, who have a parent with Huntington Disease (HD), not only are at genetic risk for HD but also are witness to its onset and devastating clinical progression as their parent declines. To date, no mechanism has been developed to direct health care providers to the atypical adolescent experiences of these teens. The purpose of this report is to describe the process of developing the HD-Teen Inventory clinical assessment tool. Forty-eight teens and young adults from 19 U.S. states participated in the evaluation of the HD-Teen Inventory tool. Following item analysis, the number of items was reduced and item frequency and reaction scales were combined, based on the strong correlation (r = .94). The resultant tool contains 15 inventory and 2 open-ended response items. The HD-Teen Inventory emerged as a more compact and efficient tool for identifying the most salient concerns of at-risk teens in HD families in research and/or clinical practice.

Original languageEnglish (US)
Pages (from-to)213-223
Number of pages11
JournalClinical Nursing Research
Volume21
Issue number2
DOIs
StatePublished - May 2012
Externally publishedYes

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Huntington Disease
Equipment and Supplies
Health Personnel
Young Adult

Keywords

  • adolescence
  • field test
  • HD-Teen Inventory
  • Huntington disease

ASJC Scopus subject areas

  • Nursing(all)

Cite this

Driessnack, M., Williams, J. K., Barnette, J. J., Sparbel, K. J., & Paulsen, J. S. (2012). Development of the HD-Teen Inventory. Clinical Nursing Research, 21(2), 213-223. https://doi.org/10.1177/1054773811409397

Development of the HD-Teen Inventory. / Driessnack, Martha; Williams, Janet K.; Barnette, J. Jackson; Sparbel, Kathleen J.; Paulsen, Jane S.

In: Clinical Nursing Research, Vol. 21, No. 2, 05.2012, p. 213-223.

Research output: Contribution to journalArticle

Driessnack, M, Williams, JK, Barnette, JJ, Sparbel, KJ & Paulsen, JS 2012, 'Development of the HD-Teen Inventory', Clinical Nursing Research, vol. 21, no. 2, pp. 213-223. https://doi.org/10.1177/1054773811409397
Driessnack M, Williams JK, Barnette JJ, Sparbel KJ, Paulsen JS. Development of the HD-Teen Inventory. Clinical Nursing Research. 2012 May;21(2):213-223. https://doi.org/10.1177/1054773811409397
Driessnack, Martha ; Williams, Janet K. ; Barnette, J. Jackson ; Sparbel, Kathleen J. ; Paulsen, Jane S. / Development of the HD-Teen Inventory. In: Clinical Nursing Research. 2012 ; Vol. 21, No. 2. pp. 213-223.
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