Demystifying Spina Bifida Guidelines Using a Periodicity Schedule

Jessica Y. Chaney, Asma Taha, Joseph D. Pinter

Research output: Contribution to journalArticlepeer-review

Abstract

BACKGROUND: Spina bifida is a congenital neural tube defect that affects the spine and spinal cord, as well as the brain in many cases, with life-long health-related consequences. In most cases, the term spina bifida refers to open myelomeningocele but includes a spectrum of dysraphic conditions. Early recognition and comprehensive care improve long-term health, well-being, and quality of life and decrease the use of emergency services and hospitalizations over the lifespan. Current evidence-based care guidelines are comprehensive, but they are not easily interpreted in busy primary care settings. The development of a periodicity schedule serves to simplify the current spina bifida guidelines into a document that is easy to use by all practitioners and families.

Original languageEnglish (US)
Pages (from-to)1-8
Number of pages8
JournalTopics in Spinal Cord Injury Rehabilitation
Volume28
Issue number3
DOIs
StatePublished - Jun 1 2022

Keywords

  • comprehensive care
  • evidence-based care
  • periodicity schedule
  • primary care practitioner
  • spina bifida

ASJC Scopus subject areas

  • Medicine(all)

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