Data-based considerations for electronic family health history applications

Jane Peace, Rupa Sheth Valdez, Kristin Lutz

Research output: Contribution to journalArticle

4 Citations (Scopus)

Abstract

Family health history contains important information about the genetic and environmental factors that contribute to patterns of health and illness in families. Applications for collecting, managing, and analyzing family health history could be improved if their design were informed by an understanding of how consumers think about and report family health history. This article presents a descriptive analysis of themes from family health history interviews that have implications for development, selection, and use of family health history tools. Important themes included ways in which family is defined, including nonbiological family members and pets; ideas about health and disease, including degree of exposure and individual perceptions; and barriers to reporting family health history, including large biological families and uncertainty. Some themes identified (eg, uncertainty) have been recognized previously and continue to be important considerations. Other themes identified, such as perceptions about severity of illness or conditions and causal relationships, are newly recognized and may have implications for nurses and other providers designing, selecting, and using family health history applications.

Original languageEnglish (US)
Pages (from-to)37-45
Number of pages9
JournalCIN-Computers Informatics Nursing
Volume30
Issue number1
DOIs
StatePublished - Jan 2012

Fingerprint

Medical History Taking
Uncertainty
Pets
Health
Nurses
Interviews

Keywords

  • Family health history
  • Genomics
  • Nursing informatics

ASJC Scopus subject areas

  • Health Informatics
  • Nursing (miscellaneous)

Cite this

Data-based considerations for electronic family health history applications. / Peace, Jane; Valdez, Rupa Sheth; Lutz, Kristin.

In: CIN-Computers Informatics Nursing, Vol. 30, No. 1, 01.2012, p. 37-45.

Research output: Contribution to journalArticle

@article{1d06fe78e8d14e948fae5d9ceb55a6bb,
title = "Data-based considerations for electronic family health history applications",
abstract = "Family health history contains important information about the genetic and environmental factors that contribute to patterns of health and illness in families. Applications for collecting, managing, and analyzing family health history could be improved if their design were informed by an understanding of how consumers think about and report family health history. This article presents a descriptive analysis of themes from family health history interviews that have implications for development, selection, and use of family health history tools. Important themes included ways in which family is defined, including nonbiological family members and pets; ideas about health and disease, including degree of exposure and individual perceptions; and barriers to reporting family health history, including large biological families and uncertainty. Some themes identified (eg, uncertainty) have been recognized previously and continue to be important considerations. Other themes identified, such as perceptions about severity of illness or conditions and causal relationships, are newly recognized and may have implications for nurses and other providers designing, selecting, and using family health history applications.",
keywords = "Family health history, Genomics, Nursing informatics",
author = "Jane Peace and Valdez, {Rupa Sheth} and Kristin Lutz",
year = "2012",
month = "1",
doi = "10.1097/NCN.0b013e31822b865b",
language = "English (US)",
volume = "30",
pages = "37--45",
journal = "CIN - Computers Informatics Nursing",
issn = "1538-2931",
publisher = "Lippincott Williams and Wilkins",
number = "1",

}

TY - JOUR

T1 - Data-based considerations for electronic family health history applications

AU - Peace, Jane

AU - Valdez, Rupa Sheth

AU - Lutz, Kristin

PY - 2012/1

Y1 - 2012/1

N2 - Family health history contains important information about the genetic and environmental factors that contribute to patterns of health and illness in families. Applications for collecting, managing, and analyzing family health history could be improved if their design were informed by an understanding of how consumers think about and report family health history. This article presents a descriptive analysis of themes from family health history interviews that have implications for development, selection, and use of family health history tools. Important themes included ways in which family is defined, including nonbiological family members and pets; ideas about health and disease, including degree of exposure and individual perceptions; and barriers to reporting family health history, including large biological families and uncertainty. Some themes identified (eg, uncertainty) have been recognized previously and continue to be important considerations. Other themes identified, such as perceptions about severity of illness or conditions and causal relationships, are newly recognized and may have implications for nurses and other providers designing, selecting, and using family health history applications.

AB - Family health history contains important information about the genetic and environmental factors that contribute to patterns of health and illness in families. Applications for collecting, managing, and analyzing family health history could be improved if their design were informed by an understanding of how consumers think about and report family health history. This article presents a descriptive analysis of themes from family health history interviews that have implications for development, selection, and use of family health history tools. Important themes included ways in which family is defined, including nonbiological family members and pets; ideas about health and disease, including degree of exposure and individual perceptions; and barriers to reporting family health history, including large biological families and uncertainty. Some themes identified (eg, uncertainty) have been recognized previously and continue to be important considerations. Other themes identified, such as perceptions about severity of illness or conditions and causal relationships, are newly recognized and may have implications for nurses and other providers designing, selecting, and using family health history applications.

KW - Family health history

KW - Genomics

KW - Nursing informatics

UR - http://www.scopus.com/inward/record.url?scp=84856026710&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84856026710&partnerID=8YFLogxK

U2 - 10.1097/NCN.0b013e31822b865b

DO - 10.1097/NCN.0b013e31822b865b

M3 - Article

C2 - 21915045

AN - SCOPUS:84856026710

VL - 30

SP - 37

EP - 45

JO - CIN - Computers Informatics Nursing

JF - CIN - Computers Informatics Nursing

SN - 1538-2931

IS - 1

ER -