Challenges and opportunities using online portals to recruit diverse patients to behavioral trials

Amir Alishahi Tabriz, Patrice Jordan Fleming, Yongyun Shin, Ken Resnicow, Resa M. Jones, Susan A. Flocke, Deirdre A. Shires, Sarah T. Hawley, David Willens, Jennifer Elston Lafata

Research output: Contribution to journalArticle

1 Citation (Scopus)

Abstract

We describe the use of an online patient portal to recruit and enroll primary care patients in a randomized trial testing the effectiveness of a colorectal cancer (CRC) screening decision support program. We use multiple logistic regression to identify patient characteristics associated with trial recruitment, enrollment, and engagement. We found that compared to Whites, Blacks had lower odds of viewing the portal message (OR = 0.46, 95% CI = 0.37-0.57), opening the attached link containing the study material (OR = 0.75, 95% CI = 0.62-0.92), and consenting to participate in the trial (OR = 0.85, 95% CI = 0.67-0.93). We also found that compared to Whites, Asians had lower odds of viewing the portal message (OR = 0.53, 95% CI = 0.33-0.64), opening the attached link containing the study material (OR = 0.76, 95% CI = 0.54-0.97), consenting to participate in the trial (OR = 0.68, 95% CI = 0.53-0.95), and completing the trial's baseline questionnaire (OR = 0.59, 95% CI = 0.36-0.90). While portals offer an opportunity to mitigate human bias in trial invitations, because of racial disparities-not only in who has a portal account, but in how they interact with trial recruitment and enrollment material within the portal-using portals alone for trial recruitment may generate study samples that are not racially diverse.

Original languageEnglish (US)
Pages (from-to)1637-1644
Number of pages8
JournalJournal of the American Medical Informatics Association : JAMIA
Volume26
Issue number12
DOIs
StatePublished - Dec 1 2019

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Early Detection of Cancer
Colorectal Neoplasms
Primary Health Care
Logistic Models
Patient Portals
Surveys and Questionnaires
hydroquinone

Keywords

  • colorectal cancer screening
  • electronic health record
  • health disparities
  • patient portal
  • pragmatic clinical trial

ASJC Scopus subject areas

  • Health Informatics

Cite this

Challenges and opportunities using online portals to recruit diverse patients to behavioral trials. / Tabriz, Amir Alishahi; Fleming, Patrice Jordan; Shin, Yongyun; Resnicow, Ken; Jones, Resa M.; Flocke, Susan A.; Shires, Deirdre A.; Hawley, Sarah T.; Willens, David; Lafata, Jennifer Elston.

In: Journal of the American Medical Informatics Association : JAMIA, Vol. 26, No. 12, 01.12.2019, p. 1637-1644.

Research output: Contribution to journalArticle

Tabriz, AA, Fleming, PJ, Shin, Y, Resnicow, K, Jones, RM, Flocke, SA, Shires, DA, Hawley, ST, Willens, D & Lafata, JE 2019, 'Challenges and opportunities using online portals to recruit diverse patients to behavioral trials', Journal of the American Medical Informatics Association : JAMIA, vol. 26, no. 12, pp. 1637-1644. https://doi.org/10.1093/jamia/ocz157
Tabriz, Amir Alishahi ; Fleming, Patrice Jordan ; Shin, Yongyun ; Resnicow, Ken ; Jones, Resa M. ; Flocke, Susan A. ; Shires, Deirdre A. ; Hawley, Sarah T. ; Willens, David ; Lafata, Jennifer Elston. / Challenges and opportunities using online portals to recruit diverse patients to behavioral trials. In: Journal of the American Medical Informatics Association : JAMIA. 2019 ; Vol. 26, No. 12. pp. 1637-1644.
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abstract = "We describe the use of an online patient portal to recruit and enroll primary care patients in a randomized trial testing the effectiveness of a colorectal cancer (CRC) screening decision support program. We use multiple logistic regression to identify patient characteristics associated with trial recruitment, enrollment, and engagement. We found that compared to Whites, Blacks had lower odds of viewing the portal message (OR = 0.46, 95{\%} CI = 0.37-0.57), opening the attached link containing the study material (OR = 0.75, 95{\%} CI = 0.62-0.92), and consenting to participate in the trial (OR = 0.85, 95{\%} CI = 0.67-0.93). We also found that compared to Whites, Asians had lower odds of viewing the portal message (OR = 0.53, 95{\%} CI = 0.33-0.64), opening the attached link containing the study material (OR = 0.76, 95{\%} CI = 0.54-0.97), consenting to participate in the trial (OR = 0.68, 95{\%} CI = 0.53-0.95), and completing the trial's baseline questionnaire (OR = 0.59, 95{\%} CI = 0.36-0.90). While portals offer an opportunity to mitigate human bias in trial invitations, because of racial disparities-not only in who has a portal account, but in how they interact with trial recruitment and enrollment material within the portal-using portals alone for trial recruitment may generate study samples that are not racially diverse.",
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