TY - JOUR
T1 - Building Strong Clinician-Researcher Collaborations for Successful Hospice and Palliative Care Research
AU - Hurley, Susan Lysaght
AU - DeSanto-Madeya, Susan
AU - Fortney, Christine A.
AU - Izumi, Seiko
AU - Phongtankuel, Veerawat
AU - Carpenter, Joan G.
N1 - Funding Information:
S.L.H. is supported by the Cambia Health Foundation and the Rita & Alex Hillman Foundation. S.I. is supported by the Cambia Health Foundation, the Rita & Alex Hillman Foundation, and Patient-Centered Outcomes Research Institute (PCORI) Award (PLC-1609-36277). J.G.C. is supported by the National Institute of Nursing Research of the National Institutes of Health (NIH) under award number K23NR017663 and the Rita & Alex Hillman Foundation. V.P. is supported by the National Institute of Aging (NIA) under award number NIA- K76 AG059997-01A1. The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH.
Publisher Copyright:
© 2021 by The Hospice and Palliative Nurses Association. All rights reserved.
PY - 2022/2/1
Y1 - 2022/2/1
N2 - Hospice and palliative care research aim to build a knowledge base to guide high-quality care for people with serious illness and improve their quality of life. Considering its focus on patient and family caregiver's experiences, hospice and palliative care research activities primarily take place in real-world clinical settings where seriously ill patients and their family caregivers receive care (eg, nursing homes, clinics, inpatient units). Conducting research in these settings poses many challenges because researchers, clinicians, and administrators may have different priorities-and scientific control is difficult. Therefore, clinician-researcher-administrator collaboration in planning and conducting studies is critical for successful hospice and palliative care research. For an effective collaboration, clinicians, researchers, and site administrators must be considered equal partners. Each collaborator brings their unique expertise, knowledge, and skills that when combined can strengthen scientific rigor, feasibility, and success of the project, as well as have study outcomes that are more translatable to real-world practice. However, little guidance exists to give actionable steps to build collaborative partnerships for hospice and palliative care researchers. The purpose of this article is to describe the process of forming successful clinician-researcher-administrator collaborations through five phases of the research life cycle: idea generation, partnership, proposal writing, research process, and dissemination. Exemplars are drawn from the authors' experiences conducting collaborative research and highlight strategies and resources for successful hospice and palliative care collaborations.
AB - Hospice and palliative care research aim to build a knowledge base to guide high-quality care for people with serious illness and improve their quality of life. Considering its focus on patient and family caregiver's experiences, hospice and palliative care research activities primarily take place in real-world clinical settings where seriously ill patients and their family caregivers receive care (eg, nursing homes, clinics, inpatient units). Conducting research in these settings poses many challenges because researchers, clinicians, and administrators may have different priorities-and scientific control is difficult. Therefore, clinician-researcher-administrator collaboration in planning and conducting studies is critical for successful hospice and palliative care research. For an effective collaboration, clinicians, researchers, and site administrators must be considered equal partners. Each collaborator brings their unique expertise, knowledge, and skills that when combined can strengthen scientific rigor, feasibility, and success of the project, as well as have study outcomes that are more translatable to real-world practice. However, little guidance exists to give actionable steps to build collaborative partnerships for hospice and palliative care researchers. The purpose of this article is to describe the process of forming successful clinician-researcher-administrator collaborations through five phases of the research life cycle: idea generation, partnership, proposal writing, research process, and dissemination. Exemplars are drawn from the authors' experiences conducting collaborative research and highlight strategies and resources for successful hospice and palliative care collaborations.
KW - Clinical settings
KW - Collaboration
KW - Hospice
KW - Palliative care
KW - Research
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UR - http://www.scopus.com/inward/citedby.url?scp=85122756591&partnerID=8YFLogxK
U2 - 10.1097/NJH.0000000000000818
DO - 10.1097/NJH.0000000000000818
M3 - Article
C2 - 34873127
AN - SCOPUS:85122756591
SN - 1522-2179
VL - 24
SP - 64
EP - 69
JO - Journal of Hospice and Palliative Nursing
JF - Journal of Hospice and Palliative Nursing
IS - 1
ER -