Attitude toward and current practice of transfer and transition of adolescents with congenital heart disease in the united states of america and Europe

Deborah Hilderson, Arwa S. Saidi, Kristien Van Deyk, Amy Verstappen, Adrienne Kovacs, Susan M. Fernandes, Mary M. Canobbio, Desiree Fleck, Alison Meadows, Rachel Linstead, Philip Moons

Research output: Contribution to journalArticle

69 Citations (Scopus)

Abstract

The objective of this study was to explore the current practice and attitudes of pediatric cardiologists in the United States and Europe on the transfer and transition of children with congenital heart disease (CHD). A survey among pediatric cardiology programs in the United States and Europe was undertaken. Sixty-nine centers completed and returned the 61-item questionnaire that was specifically devised for this survey. Of 69 participating centers, 74% reported that they transfer their patients to adult-focused care. When a center transfers its patients, 80% transfer them to a formalized Adult Congenital Heart Disease Program. The median age of transfer is 18 years. Comorbidities, pregnancy, and patient/family request to leave pediatric cardiology were identified as initiators for transfer. Complexity of the heart defect was relatively less important when deciding whether to transfer patients. Only one-third of the centers that transfer their patients provide a structured preparation for patients and family. Development of a formal transition program is planned at 59% of the centers that transfer patients. In conclusion, timely transfer and a structured transition process of children with CHD are not implemented in all pediatric cardiology programs. Health-care providers working in pediatric cardiology should make their transfer policies explicit and transition programs ought to be developed.

Original languageEnglish (US)
Pages (from-to)786-793
Number of pages8
JournalPediatric Cardiology
Volume30
Issue number6
DOIs
StatePublished - Aug 1 2009
Externally publishedYes

Fingerprint

Patient Transfer
Heart Diseases
Cardiology
Pediatrics
Health Personnel
Comorbidity
Pregnancy
Surveys and Questionnaires

Keywords

  • Congenital heart defect
  • Survey
  • Transfer
  • Transition

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Cardiology and Cardiovascular Medicine

Cite this

Attitude toward and current practice of transfer and transition of adolescents with congenital heart disease in the united states of america and Europe. / Hilderson, Deborah; Saidi, Arwa S.; Van Deyk, Kristien; Verstappen, Amy; Kovacs, Adrienne; Fernandes, Susan M.; Canobbio, Mary M.; Fleck, Desiree; Meadows, Alison; Linstead, Rachel; Moons, Philip.

In: Pediatric Cardiology, Vol. 30, No. 6, 01.08.2009, p. 786-793.

Research output: Contribution to journalArticle

Hilderson, D, Saidi, AS, Van Deyk, K, Verstappen, A, Kovacs, A, Fernandes, SM, Canobbio, MM, Fleck, D, Meadows, A, Linstead, R & Moons, P 2009, 'Attitude toward and current practice of transfer and transition of adolescents with congenital heart disease in the united states of america and Europe', Pediatric Cardiology, vol. 30, no. 6, pp. 786-793. https://doi.org/10.1007/s00246-009-9442-1
Hilderson, Deborah ; Saidi, Arwa S. ; Van Deyk, Kristien ; Verstappen, Amy ; Kovacs, Adrienne ; Fernandes, Susan M. ; Canobbio, Mary M. ; Fleck, Desiree ; Meadows, Alison ; Linstead, Rachel ; Moons, Philip. / Attitude toward and current practice of transfer and transition of adolescents with congenital heart disease in the united states of america and Europe. In: Pediatric Cardiology. 2009 ; Vol. 30, No. 6. pp. 786-793.
@article{793ede5f92c94a85b603382feb992199,
title = "Attitude toward and current practice of transfer and transition of adolescents with congenital heart disease in the united states of america and Europe",
abstract = "The objective of this study was to explore the current practice and attitudes of pediatric cardiologists in the United States and Europe on the transfer and transition of children with congenital heart disease (CHD). A survey among pediatric cardiology programs in the United States and Europe was undertaken. Sixty-nine centers completed and returned the 61-item questionnaire that was specifically devised for this survey. Of 69 participating centers, 74{\%} reported that they transfer their patients to adult-focused care. When a center transfers its patients, 80{\%} transfer them to a formalized Adult Congenital Heart Disease Program. The median age of transfer is 18 years. Comorbidities, pregnancy, and patient/family request to leave pediatric cardiology were identified as initiators for transfer. Complexity of the heart defect was relatively less important when deciding whether to transfer patients. Only one-third of the centers that transfer their patients provide a structured preparation for patients and family. Development of a formal transition program is planned at 59{\%} of the centers that transfer patients. In conclusion, timely transfer and a structured transition process of children with CHD are not implemented in all pediatric cardiology programs. Health-care providers working in pediatric cardiology should make their transfer policies explicit and transition programs ought to be developed.",
keywords = "Congenital heart defect, Survey, Transfer, Transition",
author = "Deborah Hilderson and Saidi, {Arwa S.} and {Van Deyk}, Kristien and Amy Verstappen and Adrienne Kovacs and Fernandes, {Susan M.} and Canobbio, {Mary M.} and Desiree Fleck and Alison Meadows and Rachel Linstead and Philip Moons",
year = "2009",
month = "8",
day = "1",
doi = "10.1007/s00246-009-9442-1",
language = "English (US)",
volume = "30",
pages = "786--793",
journal = "Pediatric Cardiology",
issn = "0172-0643",
publisher = "Springer New York",
number = "6",

}

TY - JOUR

T1 - Attitude toward and current practice of transfer and transition of adolescents with congenital heart disease in the united states of america and Europe

AU - Hilderson, Deborah

AU - Saidi, Arwa S.

AU - Van Deyk, Kristien

AU - Verstappen, Amy

AU - Kovacs, Adrienne

AU - Fernandes, Susan M.

AU - Canobbio, Mary M.

AU - Fleck, Desiree

AU - Meadows, Alison

AU - Linstead, Rachel

AU - Moons, Philip

PY - 2009/8/1

Y1 - 2009/8/1

N2 - The objective of this study was to explore the current practice and attitudes of pediatric cardiologists in the United States and Europe on the transfer and transition of children with congenital heart disease (CHD). A survey among pediatric cardiology programs in the United States and Europe was undertaken. Sixty-nine centers completed and returned the 61-item questionnaire that was specifically devised for this survey. Of 69 participating centers, 74% reported that they transfer their patients to adult-focused care. When a center transfers its patients, 80% transfer them to a formalized Adult Congenital Heart Disease Program. The median age of transfer is 18 years. Comorbidities, pregnancy, and patient/family request to leave pediatric cardiology were identified as initiators for transfer. Complexity of the heart defect was relatively less important when deciding whether to transfer patients. Only one-third of the centers that transfer their patients provide a structured preparation for patients and family. Development of a formal transition program is planned at 59% of the centers that transfer patients. In conclusion, timely transfer and a structured transition process of children with CHD are not implemented in all pediatric cardiology programs. Health-care providers working in pediatric cardiology should make their transfer policies explicit and transition programs ought to be developed.

AB - The objective of this study was to explore the current practice and attitudes of pediatric cardiologists in the United States and Europe on the transfer and transition of children with congenital heart disease (CHD). A survey among pediatric cardiology programs in the United States and Europe was undertaken. Sixty-nine centers completed and returned the 61-item questionnaire that was specifically devised for this survey. Of 69 participating centers, 74% reported that they transfer their patients to adult-focused care. When a center transfers its patients, 80% transfer them to a formalized Adult Congenital Heart Disease Program. The median age of transfer is 18 years. Comorbidities, pregnancy, and patient/family request to leave pediatric cardiology were identified as initiators for transfer. Complexity of the heart defect was relatively less important when deciding whether to transfer patients. Only one-third of the centers that transfer their patients provide a structured preparation for patients and family. Development of a formal transition program is planned at 59% of the centers that transfer patients. In conclusion, timely transfer and a structured transition process of children with CHD are not implemented in all pediatric cardiology programs. Health-care providers working in pediatric cardiology should make their transfer policies explicit and transition programs ought to be developed.

KW - Congenital heart defect

KW - Survey

KW - Transfer

KW - Transition

UR - http://www.scopus.com/inward/record.url?scp=68449088801&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=68449088801&partnerID=8YFLogxK

U2 - 10.1007/s00246-009-9442-1

DO - 10.1007/s00246-009-9442-1

M3 - Article

C2 - 19365651

AN - SCOPUS:68449088801

VL - 30

SP - 786

EP - 793

JO - Pediatric Cardiology

JF - Pediatric Cardiology

SN - 0172-0643

IS - 6

ER -